Do you want to work with us? 🙋 With openings across all three of our European offices, we are looking for talented and passionate individuals to join the EURORDIS team. If you believe in our vision and mission then we want to hear from you! 🔗 go.eurordis.org/wvv7f7

Ready to kick off the 1st ⁦REMEDi4ALL⁩ Sustainability meeting! Feeling strategic?

REMEDi4ALL, patients are equal partners in research. 🔬 Rick Thompson (Rick Thompson), CEO Beacon for Rare Diseases and project partner shares his views on why #patientengagement matters so much. 👉 Find out more about REMEDi4ALL here: remedi4all.org

Really happy to be at the ⁦AMRC⁩ festival of partnerships today. Learning a lot, and highlighting our work for #rarediseases at ⁦Beacon for Rare Diseases⁩

We’re off! Prof Alfredo Carrara gives the opening talk for the first ⁦⁦REMEDi4ALL⁩ multistakeholder meeting. We’re talking pancreatic cancer and repurposing.

Gauthier Bouche from the ⁦Anticancer Fund⁩ takes us into the world of repurposing at the ⁦REMEDi4ALL⁩ multistakeholder meeting.

Don Lo from ⁦REMEDi4ALL⁩ makes the case for repurposing - why find every possible new drug out there before we have made the BEST use of the drugs we already have?

Patrycja shares her personal story as a pancreatic cancer survivor - investigative tests found a tumour in her abdomen at the age of 25.

Ali Stunt, founder of ⁦Pancreatic Cancer Action⁩ Pancreatic Cancer Action in the UK, talks about her personal pancreatic cancer story and the need for improved outcomes for patients.

Dr Luca Cardone says repurposing is a mandatory strategy for #PancreaticCancer research the the ⁦REMEDi4ALL⁩ Multistakeholder meeting.

Prof Alfredo Budillon introduces the VESPA trial - one of the demonstrator projects within ⁦REMEDi4ALL⁩ looking to repurpose drugs for pancreatic cancer.

Panel discussion time!

I’ve been writing about the VITAL role of #patients in #RareDisease research this #RareDiseaseDay2024 - how do you see patients driving research change?

The winner of this years The Student Voice Prize prize has been published by OrphanetJournal at BMC . Check out the fantastic essay on “Embracing the Unknown” by Leisha Devisetti this #RareDiseaseDay2024 ojrd.biomedcentral.com/articles/10.11…

⚡The air is electric here on Day 1 at #iDR24! Together with over 50 speakers from across a broad range of disciplines we will deep-dive into the evolving landscape of #DrugRepurposing. ➡️Find out more here: remedi4all.org/international-…

Not only are we co-organisers and pathway hosts for #iDR24 - we’re also exhibiting and displaying a poster, co-authored with our friends at EURORDIS-Rare Diseases Europe! Make sure to find us during the breaks and pick up one of our coveted Beacon swag bags! 🔥

Wow - what a great day innovating, connecting & reshaping the #DrugRepurposing ecosystem! We'd love to hear your takeaways from the day. 📣And it's not over yet...the #iDR24 poster presentations are about to take place!

It was an absolute privilege to be part of the team organising and delivering #iDR24. Thanks to all the attendees, and my amazing colleagues in Beacon for Rare Diseases and REMEDi4ALL! See you next year!

And just like that, #OpenAcademy2024 is complete! 🎉 Our thanks go to everyone who has made this experience possible and our amazing group of participants for throwing themselves into the training so wholeheartedly! Learn more about #EURORDISOpenAcademy:  openacademy.eurordis.org

We’ve compiled a series of case studies to demystify the #DrugRepurposing process. Our latest case features Nitroxoline, a common antibiotic repurposed for rare amoebic encephalitis—led by #iDR25 speaker Natasha Spottiswoode. ➡️ More here: loom.ly/g4avr9o