Renie Moss
@reniemoss
Advocate/encourager to clinicians and research community working to #ENDNF in my children's lifetime.
ID: 177717859
12-08-2010 22:10:40
6,6K Tweet
904 Followers
397 Following
World Health Organization (WHO)
@who
We are the #UnitedNations’ health agency - #HealthForAll. Always check our latest tweets for updated advice/information Support WHO: oneworldhealthforall.org
UAB
@uabnews
The official account for The University of Alabama at Birmingham: Education, research, innovation, economic development, community engagement, and patient care
Taylor Swift
@taylorswift13
All’s fair in love and poetry... New album THE TORTURED POETS DEPARTMENT. Out now 🤍
Dr. Deezy (Sade W. Clayton, PhD)
@sadewill93
Find me on BlueSky: sadewill.bsky.social▫️BWF PDEP Fellow▫️Cell/Developmental Biologist ▫️Spine Bio enthusiast▫️I'm just tryna make my grandma proud▫️she,her(s)
Jonathan Miller
@jemiller51
Children's Tumor Fdn
@childrenstumor
The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
Anna C.E. Hurst, MD
@acedens
Diagnosing rare disease with genomes, dysmorphology & coffee. MD Geneticist at Univ. of AL at Bham. Genetics residency PD. Tweets are my own. She/her
Ryan Eversley
@ryaneversley
Professional Race Car Driver for @PrecisionRacLA. Co-Creator and Host of the Television show and podcast @DWRshow!
Canvas by Instructure
@canvas_by_inst
#CanvasLMS allows institutions to craft the learning ecosystem that fits their classrooms and accelerates their learning. Follow us @instructure🐼
Vanessa L. Merker, PhD
@vlmerker
Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
HHS.gov
@hhsgov
Official account of U.S. Department of Health & Human Services | Follow @SecKennedy | Privacy policy: hhs.gov/privacy.html.
HudsonAlpha
@hudsonalpha
A nonprofit institute where scientists, educators, clinicians and entrepreneurs collaborate and apply genomics to improve the human condition around the globe.
Frank Stitt
@frankstitt
Executive chef and cookbook author. Co-owner and operator of the Stitt Restaurant Group—Chez Fonfon, Bottega and Highlands Bar & Grill.
Swapna Kakani, MPH
@swapnaspeaks
#ptexp #raredisease Spkr|Expert|Advocate. @TEDx Spkr. #ShortBowelSyndrome Warrior. #SmallIntestineTx Recipient.Founder of the gutsy perspective
Kyle Whitmire
@warondumb
Columnist for @aldotcom. 2023 Pulitzer Prize winner. I write about character, cruelty and corruption.
CDC
@cdcgov
CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: bit.ly/2MhQ6Hp
Judge Stephen Dillard
@judgedillard
Presiding Judge & 30th Chief Judge @AppealsCourtGA
YouthServe Bham
@youthservebham
empowering youth leadership through community service
Alexion
@alexionpharma
Alexion, AstraZeneca Rare Disease was created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. GL/NP/0116 GL/NP/0095
Dr. Stephanie Joy Bouley | In my 🩵#EndNF💚 Era
@sjb1120
PhD working to #EndNF | Ravenclaw | Dice Maker | TAZ fan | NADDPODer | 20 sides to every story | I had the time of my life fighting dragons with you 🫶🏻
Dr. Laurence Boitet
@lblack92
Assistant Professor & Director. Recovering Bench Scientist. Organizational Behavior Researcher. Unapologetic #Wellness Advocate. Views are my own.
Kelly Carpenter
@hockey_nf_mom
Wife, Mom of 3 boys (one with NF), Meteorologist
Alicia Hunsberger
@hunsbergera
NLOCF
@nlocf
Create awareness about the S & S of ovarian cancer. Raise funds for ovarian cancer research. Making a difference & Saving Lives! 501(c)3 non-profit.
Jordan Whitlock
@jordan_whitlock
Ph.D. 🧬 | Rare Disease | @setbp1 scientific coordinator | Boy mom | Red Sox #22 ❤️
Carlos Prada
@prada2013
Geneticist, Division Head, Professor and Latino, Tweets/Opinions are my own
Nerve Tumours UK
@nervetumoursuk
Formerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
Taylor Sundby, MD 🧬
@rtsundby
🎗️Ped-onc @NCI_CCR_PedOnc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own
National Coordinating Center for the RGNs
@nccrcg
Join us for the 5th Annual Public Health Genetics and Genomics Week from May 20-24. #PHGW #PublicHealthGenetics #PublicHealthGenomics Retweet/likes≠endorsement
Maria Ioannou
@mariaioannou_md
PGY-1 @hopkinsneurons Former postdoctoral research fellow @hopkinskimmel studying #glioblastoma and #NF1 |M.D. from 🇬🇷
RASopathies Network
@rasopathiesnet
A 501c3 organization; Our mission is to advance research of the #RASopathies by bringing stakeholders together. #rarediseases @rasnet.bsky.social
Chaotically Science
@drpepperis100
Hi, I’m Hailey and I do science... but chaotically. PhD candidate// Co-founder @BlackinCMDBio // She/Her
NF2 BioSolutions
@nf2biosolutions
NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis
Dr. Melissa LaBonty
@elegantelegans
SOU Asst Prof, Cell Biology | C elegans | UAB IRACDA-MERIT Postdoc | Tufts PhD | She/her | Views my own | #blacklivesmatter
Adrienne Samani,PhD
@musclemouseadr1
CTM. Mom to Fiona. Dog mom to Georgie. FirstGenPhD. Intolerant to racism. Fueled by coffee.
Yuan Pan
@yuanpan3
Cancer Neuroscience, NF1, Neuron-glial interactions, Assistant Professor at MD Anderson, CPRIT scholar
Brian Na, MD PhD
@bnamdphd
pediatric & adult neuro-oncologist at @ucsfhospitals @ucsfchildrens via @harvard @drexelmedicine @uh_rbcresidents @ucla | #NF #SWN #AYA | 🌈🇰🇷🇺🇸
John Martin Richter
@jmrichter1
@AuburnFootball // Psalm 118:14
Grace Gregory
@gracegregory_
NF2 BioSolutions PhD student • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.
Aleksandra Foksinska
@afoksin
Rare disorder research analyst. Overachiever on everything since day one. Catholic catechist for Confirmation. I love my homies with extra chromies 🧬.
Lindy Zhang, MD PhD
@dr_lindyzhang
Ped Hematology/Oncology Fellow🎗@JohnsHopkins, studying NF1-MPNST || @APAMSA alumnus || forever Go Blue! 〽️
Yulong Fu
@dr_yulongfu
Geneticist, PhD. Director of @UABMGL
Simge Acar, MD
@simgemd
PGY-1 👶 @ComerChildrens @UChicago | Former research fellow @WUSTLmed | @KU_Medicine | 📸🥾🚴♀️👩🍳 | from 🇹🇷🌊
Neurofibromatosis Young Investigators Forum
@nfyiforum
Dec 5-6, 2024 | Supported through independent educational grants from Alexion and SpringWorks Therapeutics
Dr. Giavanna Verdi, M.D.
@giavannaverdi
🧸🧬 PGY-2 Pediatric-Medical Genetics Resident at Children’s of Alabama | 🩺 @StGeorgesU Alumni | 👩🏻 She/Her | Made in 🇮🇹 |
NEJM Evidence
@nejmevidence
NEJM Evidence, a new journal from NEJM Group, presents innovative #OriginalResearch and fresh, bold ideas in #ClinicalTrial design and clinical decision-making.
Gillian Sapia RN
@gillianhsapia
Rare Disease mom. Legislative Advocate and Activist. Opinions expressed are MY OWN and do not reflect the views of any organization, employer, or other entity.
MRIMath LLC
@mrimathl
Transforming Medicine With Trustworthy AI. Our mission is to improve cancer diagnosis.
Deeann Wallis
@deeann_wallis
NF1 Project
@nf1project
An international research project aimed at improving understanding of how genetics affects the number of skin neurofibromas a person with NF1 may develop.
SambaB
@nf1advocacycan
Proud Canadian Mom to a daughter with NF1. Clinical reasearch professional who recently joined Twitter to advocate for NF1 treatment approvals in Canada.
Zhao Ding
@sznfcc
Father of NF2 rare disease patient; raise awareness and funding for NF2 cure; Volunteer at China Pao Pao Home Neurofibromatosis Care Center
@An_NF2_point_of_view
@nf2pointofview
Angel Lauren Wall, 24. Raising awareness by sharing my journey with NF2. All opinions are my own.
Neurofibromatosis Therapeutic Acceleration Program
@ntapresearch
Accelerating the development of effective therapeutics for plexiform and cutaneous neurofibromas
Namrata GR Raut (she/her)
@namratagrraut
ResearchFellow @JankowskiLab @CincyChildrens #endNF1 #epigenetics #SEMOalum #TWUalum NeuroscientistInProgress 📍#Nepal🇳🇵to 📍#USA🇺🇸 Views are mine
Jaishri Blakeley
@jblakel3
Marjorie Bloomberg Tiven Professor of Neurofibromatosis; Johns Hopkins University
wayneliangmd.bsky.social
@wayneliangmd
Director, #Informatics #MedEd @ChildrensATL. #PedsBMT #PHODocs @ATLPedsHemOnc @EmoryPediatrics. Opinions my own≠medical advice.
Ian
@iano81
Stacey DeCillis
@stacey_decillis
mom to 3, NF mom working to find a cure for #jacksonswarriors,
Science for the Church
@sci4thechurch
Equipping churches to grow spiritually through engaging science
Christine Pratilas MD
@cpratilasmd
pediatric oncologist; physician scientist; sarcomas, RAS, NF1, targeted therapy; Johns Hopkins University
Aadel Chaudhuri, MD PhD
@aadel_chaudhuri
Professor & Vice Chair of Translational Research @MayoRadOnc | Enterprise Co-Director of Cancer Precision Medicine @MayoCancerCare @MayoClinic | Liquid Bx ctDNA
Justin Davenport
@davenportvhhs
Business & Information Technology Teacher and FBLA Adviser at Vestavia Hills High School. #VHpride #1Rebel
Shaurita D. Hutchins
@shauritacodes
#Genetics #Genomics & #Bioinformatics PhD student at @UAB_GBS. In @lizworthey's lab. #WomenInStem #HBCUGrad #PhDLife #DataScience #SciComm
María Baker
@translator_terp
Interpreter, translator, fan of learning and professional developer, yogi, the most reliable person you will ever meet.