50 kids participated in the Tri My Best adaptive sports event, presented by @SHCGreenville, and included a 50-meter swim, a mile bike ride & a mile run. Hejaz Shriners provided 23 adaptive bikes kids could keep after the event. ow.ly/JtrU50FTvho

The Stevens family was live on TV yesterday to talk about Ryker's NF journey and the upcoming Shine a Light NF Walk in Utah! abc4.com/dailydish/shin… via ABC4 News #endnf #makenfvisible

Thank you Children's Tumor Fdn for the thank you card we received for our fund raising efforts for the Shine a Light Walk this coming November. This is our first walk and we are excited to be a part of it. #EndNF

IN THE NEWS: Neurofibromatosis advocate and beauty queen brings awareness to invisible disease sentinelandenterprise.com/2021/08/23/neu… #endnf

Thankful for Dr. Widemann’s leadership to #endnf in our children’s lifetime!

Today is #RareCancerDay, a day devoted to raising awareness, advocacy, and funding for rare cancers. It is an important day to recognize those in the NF community with MPNST, a malignant form of NF, and to support all who are fighting rare cancers. #EndNF

The CTF NF1 Gene Therapy Initiative is funding a research program focused on gene-based therapeutic approaches for the treatment of NF1. We asked one of these researchers, Samantha Ginn, to tell us more about her work and how she ended up in the NF field. bit.ly/3vF9mpz

Alexa, show me heroes that don’t wear capes! CureNFwithJack #endnf #genetherapy

#NewsWeLove 😍 Lilly Ann Brooks doesn't let #neurofibromatosis slow her down. A sorority girl at The University of Alabama & the 2021 National Ambassador to Children's Tumor Fdn, Brooks is now pursuing her dream to work for Disney. 👏 Carla Wade HER STORY: bit.ly/3vI1qnr

Congratulations to the 17 runners on the NF Endurance team who crossed the finish line at the 50th TCS New York City Marathon! Together, they raised over $100,000 in 2021 in honor of NF Heroes and families to support NF research! #EndNF #TCSNYCMarathon 📸: Beth McKenna

Today, we express our gratitude to all who have served our country. Thank you to our Veterans, we honor you today. 🇺🇸

2015: Our 9 year old son was predicted to need tracheostomy due to his growing NF1 plexiform. December 2021: he is 16 and singing baritone in his high school choir. Thankful for our @NCI_CCR_PedOnc MEK wonder team! #endnf #clinicaltrials #mekworks

Neurofibromatosis is a lifelong condition that affects all populations equally, regardless of gender or ethnicity. #neurofibromatosis #nf #makenfvisible #endnf

TODAY IS MAY 17, WORLD NF AWARENESS DAY! #MakeNFVisible is about seeing NF, and seeing the person living with it. Click here → makenfvisible.org to check out all the things you can do to Make NF Visible during NF Awareness Month in May and beyond.

World NF Awareness Day is about raising NF awareness! Help #MakeNFVisible today by wearing blue & green, the official NF cause colors. Have fun + be creative-color your hair, paint your nails, wear a bright colored shirt - your choice! Post on social media, tag us and #EndNF.

UAB's Assistant Vice President for Research Regulatory Oversight knows how important raising awareness for World #neurofibromatosis day is! Thank you to Jonathan Miller for helping to #ENDNF

Emergency Saturday Broadcast: Trump Orders Department of Defense To Occupy The Entire Southern Border Days After Hegseth Announced That The US Has Now Occupied Panama x.com/i/broadcasts/1…

At least she’s doing what any common sense person would do when facing this kind of trouble. Any member under investigation by FEDERAL agency should do the same thing.

When we slow down and give thanks, God lifts our eyes back to Him. 🙌 #Gratitude #Faith #ChristianEncouragement #GodFirst #Blessed

Public service announcement 😂 Don’t be that person this year. #Thanksgiving #ThanksgivingPrep #TurkeyDay #HolidayReminder #Relatable #HolidayCooking #LifeHack