RareDiseasePatient♿️😷Ⓥ🐱🌈🚺🎵📖💡☮️🌹🌱♻️🚭
@rarepatient
#RareDisease patient, missing life as polymath, classical musician, linguist, university instructor, minister, metaphysicist, intuitive, naturalist, #vegan ARA
ID: 1198824339136606208
http://www.gofundme.com/HOPE-for-a-RareDisease-patient 25-11-2019 04:44:06
1,1K Tweet
216 Followers
199 Following
Rachel Oliver
@rachel_mbn
immune deficiency autoimmune chronic illness long-covid since January 2022 NBA MLB NFL non-Jewish Zionist / I stand with Israel
Adrienne
@adriennelj
Being a lady is like being powerful; if you have to tell people that you are, then you aren't. ~~ Margaret Thatcher
The Respi_Guy
@vinaymudaliyar
DNB Respiratory Medicine (NITRD, New Delhi); DM Pulmonary, Critical Care & Sleep medicine (AIIMS, Patna)| EDARM (ERS,Switzerland)| SCE Respiratory Medicine (UK)
Deb
@buckleydebbie
Hangtooth
@squijibo
will typo and make errors continuously due to nerve damage in hands and neurological issues in general
Lisa Musick
@mjolnirtime82
Anni stays home! 🏡
@halconius
spacepunk urbanist. A nerd interested in science, sci-fi, future, urbanism, urban/town planning, development and Bristol!
Kayla Miller
@xkaylalyn
Seronegative NMOSD patient/advocate/warrior
Holly
@firstgrace28
❤ for community advocacy activism. Love family. Reading & Music essential. Beach = happy place. #MillionsMissing #pwME OPINIONS ENTIRELY MY OWN!
Datura
@daturastarr
Vanessa Carter AMR 🇬🇧🇿🇦
@vcarteramr
#AntimicrobialResistance Patient Advocate • Chair @WHO Taskforce of AMR Survivors • @AfricaCDC Civil Society Champion • Founder of @theAMRnarrative
Dynnel ryan
@dynnelphoto
María Richardson
@_diatoma
ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
tamb
@dr_apostrophe
.
KaaS_TechGirl
@kaas_techgirl
Patient Worthy
@patientworthy
We're a resource for engaging, informative content and rare patient news, well done.
dazzle4rare
@dazzle4rare
Est. 2016 | Signal boost RARE with #dazzle4rare every Aug | #Signalise is our #podcast | Our 🔗 linktr.ee/dazzle4rare
Dr Melanie
@melanieweckert
ME/CFS MCAS, POTS from 2011. PhD Microbiology (not medical). Living on Yuin land, Australia. Writer poetry, fiction. Voted YES. No bombing ANY civilians.
L M M 🇨🇦
@newfymainlander
Vulnerable mom of a vulnerable child trying to survive this mixed up world. Please help us and others stay safe; Wear a mask! 😷
@SunnieRae2020
@sunnierae2020
#Scoliosis 🦓 #Rare Disease Addison's☢️ Cherokee🪶Chippewa #420Life ♐ Lil wild allover Free Spirit for sure.. 🫡 🇺🇦 Spiritual guided🤲 KC🏈
I AM MADELINE
@iammadelinepod
Pod: Madeline's struggle with debilitating #LongViral #EBV #MyalgicE, so stigmatized some Drs don't believe it's real. 1st 5 eps @AshDKelly @byGawley
DR MADEEHA TAJ.
@tajmadeeha
MBBS.PGcert in Public Health(U.K). Health promotion, Leadership and Research, Health Policy Management, Disease Control and Prevention, Forever Business Owner.
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
CEFAZOLIN✨
@cefazolin_5
Med student💊 💉....Nerd 🤓
Kellyann Murphy
@kellyannm210
Beloved of the King of Kings. Medical Zebra. Ehlers-Danlos Syndrome MCAS/cPTSD/Autism/AuDHD. Family Scapegoat Survivor. #NEISVOID
Kathleen 'Kat' Dearinger™👍
@dandywalkerinst
Council Member, Colorado RDAC, CEO DW Brain Institute, Certified Human Rights Consultant 🙌, American Legion, Honor Guard & Proud Lion 🦁My opinions are MINE !
Matthew Smith
@bolu2200
I love to help I find genuine joy and fulfillment in extending a helpi
Alicia Painter 🫒 (they/them)
@aliarthpainter
NHS public governor. State-schooled, Autistic, Dyspraxic, hEDS. Tea drinker with too many hobbies. Aspiring clinical researcher. *Opinions are my own.* 🚲 🇵🇸
RS
@rswz66
HeidiMelena
@littlebirdhcm
Dirty Hippy Artist not entitled to anything🧚🏻♀️🍃💫 be your nature or die trying Preachers kid disabledartist #autonomy #freeagency
Decentralised Patient Community Platform #pwLC
@pwlccareconnect
Global community to join forces with #pwlc, patient advocates & #longcovid advocacy organizations for care & treatment at warp speed. Part of @PuchoDigiHealth
NewGenWisdom
@newgenwisdom
Our channel is dedicated to guiding the new generation toward self-mastery by blending ancient knowledge with modern insights.
Robert “Kelly” Brumbelow
@rkbrum
#Deontologist #popperRationalist #OPC #TwoKingdoms #Metabolomics #BioPhysics #AnalyticalPhilosophy #SystematicTheology #SchmidtsSyndrome #Reformed🦼🗽⛪
CranioCervicalInstability
@craniounstable
My entire adult life has been a daily struggle with #cervicalspine instabi(ity symptoms, and now totally disabling and untreated #CCI and #MECFS. Please help!
Tonethe
@tonethe491906
olaide
@olaide651579
Jacob Richards
@anarcho_mtn_man
Kelly Smith
@kellysmith19090
I'm a professional crowdfunding campaign expert on # fundraiser #gofundme#indiegogo #kickstarter
Mutual Aid for ME
@mutualaidforme
#MutualAid for people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome, energy limiting and complex chronic illnesses. We operate mostly on Instagram!!
Thyserdress
@thyserdressznh
Mari Knuutila
@mariknuutila
Eläkeläisestä kotirouvaksi, äiti, äitipuoli ja mummo. Kehno keskustelija.
Dovie Hudson
@doviehudso34919
Kylie Schamberger-Gutmann
@gutmannkyl46238
Crijbee
@crijbee881
Jordan is living her best life in Orlando 😷🎢
@notkitsnicket
Former teacher reporting on Orlando theme park a11y. Immunodeficient+ lung disorders = masking before it was cool. Currently rocking an Aranet + P100.
Hannah Rebekah Rice
@hannahrrice
Sewing the fragments of my life together. Disabled. Philosophy. Loves to learn. Curiousity & wonder. Mom. #MECFS #LongCovid #ExFundy #POTS #hEDS #Dysautonomia
Jiggs Barasara
@barasarajignesh
Entrepreneur passionately advocating societal well-being through his company and his NGO, works with various stakeholders to better the life of every individual
Kameron 🦓
@mckinneykameron
Big fan of science, human rights, democracy & the Cleveland Browns. Military wife. Mother of wigglebutts. hEDS, POTS, MCAS. #NEISvoid #WearAMask
Kit Law
@likekitmarlowe
PavlovWarnedUs
@pavlovwarnedus
📚🎶☕️🌹Here mostly to share info that I think will be helpful in lessening the pain in the world. Mostly retweets, occasionally I say something insightful.