New from Los Angeles Times: “Yet new COVID infections are producing new #LongCovid patients. People who were healthy and active just a few months ago are still arriving at USC’s clinic with cardiovascular and cognitive problems that have upended their lives.”

Today is #LongCovidAwarenessDay Long Covid changed my life beyond recognition. I got ill. I never recovered. Lost my job. Became housebound. I rely on others to do things for me. I lie on my bed most of the day. Watch the Guardian's short film about my life with #LongCovid 👇

#LongCovidAwarenessDay community video: instagram.com/reel/DV5jZLSDb…

To honor #LongCOVIDAwarenessDay, #MEAction Network, Solve ME/CFS Initiative, Bateman Horne Center, & Open Medicine Foundation once again joined forces as #UnitedForME. We gathered a set of resources from our orgs to inform & empower: bit.ly/3Na4mX4 #LongCOVID #pwME

Advocacy Week 2026 starts on Monday - March 23rd! Solve ME/CFS Initiative & #MEAction Network partnered to work with the systems that shape what medical providers in America learn! Register here: ow.ly/n9Nf50YvzGc Check out our NEW Participant Toolkit: ow.ly/68hT50YvzGb #pwME #MECFS

Are you experiencing post-exertional malaise (PEM): flare of symptoms and/or appearance of new symptoms after exertion, sometimes delayed after triggering event? See our pacing guides: Adult, Pediatric (w/ LongCovidFamlies) & clinician (w/ @Patientled). meaction.net/pacing-and-man… #LongCOVID

ME/CFS Advocacy Week 2026 starts today and it's not too late to join! Solve ME/CFS Initiative & @meactnet are building the case to make ME/CFS part of standardized medical education. Register: tinyurl.com/MEActionAdvo20… Virtual kickoff call today at 12 pm PT/ 3 pm ET! #MECFS #pwME

News from New Zealand Long COVID community. "Newly released data by the Ministry of Health estimated 185,000 New Zealanders experienced Long Covid symptoms in the 12 months ending July last year." rnz.co.nz/news/national/… #LongCovid

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that. Today advocates are asking Congress to change that - join us! It takes 5 minutes: solvecfs.quorum.us/campaign/15794… #MECFS #MEAwarenessHour Solve ME/CFS Initiative @meactnet

This #MillionsMissing, we are FRAIL and FURIOUS! Injustices are happening to people with ME & Long COVID around the world. Myalgic encephalomyelitis (ME) is not taken with the seriousness we deserve. More info: meaction.net/millionsmissin… #FrailAndFurious #pwME

This #MillionsMissing, we are #FrailAndFurious! Injustices are happening worldwide because ME is not taken with the seriousness we deserve. Let's come together to show the world how devastating this disease is. Join the fight: millionsmissing.org

#MillionsMissing 2026 #FrailAndFurious tees are now available! bonfire.com/store/meaction… We have lots of styles and colors to choose from! You can choose tees with a logo on the back on ones without. A portion of your purchase helps support our work! #pwME #MECFS #LongCovid

Our Scientific Director, Jaime Seltzer, is at Quinnipiac University helping educate undergraduate and graduate students today! Medical education has been a priority for MEAction from the beginning and we continue to find new ways to educate our future clinicians about M.E. #pwME #MedEd

Storytelling is a key part of #MillionsMissing this year! Find all you need in our toolkit: ow.ly/4KLS50YGIhb It’s essential that we make our policymakers understand that ME is a serious, complex disease that deserves care and support, appropriate treatments and research.

#MEAction’s Advocacy Director, Ben HsuBorger, will join a national webinar hosted by The Grassroots Project to discuss how the H.R.1 funding bill passed by Congress will affect disability communities. Join on April 13th at 2 pm ET. See more & register: meaction.net/post/meaction-…

Are you frail & fabulous? Frail & fighting…formidable…funny? We want to hear what your “and” is…so tell us, what is your “f” word? Join us this #MillionsMissing to tell the world we are #FrailAndFurious & so much more! Fight for our healthcare. Millionsmissing.org

#MEAction is seeking passionate, experienced individuals to join our Board of Directors. If interested see more info and fill in form here: docs.google.com/forms/d/1PdN2c… We are a non-profit that advocates for recognition, research, & equitable care for people with ME & Long COVID.

We are at a turning point for ME & need your help! This year, everything we do is in service of one goal: getting ME recognized as a serious & complex medical condition. Your support makes all the difference. Give to our general fund or 1 of 3 projects. meaction.net/millionsmissin…

Thanks to a generous gift from the Whittemore Peterson Institute (WPI), #MEAction has launched an in-depth emergency department project with a clear and urgent goal: to develop clinical guidelines that improve how people with ME/CFS and Long COVID are treated in emergency settings. #pwME #pwLC

MEAction’s Shalida Dobbins shares that this #MillionsMissing we are #FrailAndFurious. We are fighting to protect Medicaid access for people with #MECFS, #LongCOVID, & other disabilities. Join us at millionsmissing.org! #pwME #disability #medicaid