RareEndoERN
@rareendoern
#EuropeanReferenceNetwork Connecting care in the EU for patients with rare endocrine conditions.
ID: 879339798678450176
http://www.endo-ern.eu 26-06-2017 14:05:20
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1,1K Followers
328 Following
World Health Organization (WHO)
@who
We are the #UnitedNations’ health agency - #HealthForAll. Always check our latest tweets for updated advice/information Support WHO: oneworldhealthforall.org
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Harvard Health
@harvardhealth
Knowledge is the best medicine. Providing you with trustworthy health information from the halls of @Harvardmed and world-famous affiliated hospitals.
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Endocrine Society
@theendosociety
We unite, lead, and grow the global endocrine community to accelerate scientific breakthroughs and improve health worldwide. @endocrinesociety.bsky.social
Care Quality Commission
@carequalitycomm
We are the independent regulator of health and adult social care in England. cqc.org.uk/give-feedback-…
Society for Endo
@soc_endo
The Society for Endocrinology; tweeting about hormones and the latest Society activities.
Johan G.
@johangbeun
Hileen Boosman
@hileenboosman
Senior Consultant @ Morgens | PhD | Programma en projectmanagement | Veranderen | Waardegedreven zorg | VBHC | Zorgvernieuwing | Transities | Strategie
European Society of Endocrinology (ESE)
@esendocrinology
The European Society of Endocrinology, the voice for endocrinology. At the centre of Europe's endocrine community.
Barts Endo
@bartsendo
Professor of Endocrine Medicine. Leads MSc’s in Endocrinology and Diabetes Mellitus for clinicians. Offered by Barts and the London School of Medicine (QMUL)
Alström Syndrome UK
@as_uk
'Alström Syndrome is a rare genetic condition affecting every organ in the body. ASUK provides support & guidance for those affected.' Tweets by Catherine Lewis
Beyond the Diagnosis
@beyondthedx
Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
The Pituitary Foundation
@pituitary_org
Supporting anyone affected by pituitary conditions through helplines, support groups, and events. Join #TeamPituitary to raise essential funds
Thyroid Patients
@thyroidfriends
Follow us to be a Friend of the American Thyroid Association. Friends receive reliable & current thyroid health information important to you & your family
EU One Health
@eu_health
The official account of @EU_Commission Directorate-General for Health & Food Safety (SANTE): #OneHealth: connecting health of humans, animals & plants 👤🐾🌱
Erica v d Akker
@eltvandenakker
@TomDanne
@tomdanne
Prof. Dr. Thomas Danne is a Pediatric Diabetologist and Clinical Researcher with special emphasis on disease modifying therapies for type 1 diabetes
Fondation Maladies Rares
@fdmaladiesrares
Fondation de coopération scientifique | Foundation For Rare Diseases - Foundation for scientific cooperation
Boerhaave Nascholing
@boerhaave_lumc
Onder de vlag van Boerhaave Nascholing organiseert @LUMC_Leiden ruim 200 medische, geaccrediteerde nascholingsactiviteiten per jaar.
VoxVote
@voxvote
VoxVote audience response system for free on your event. #quiz #byod #wifi #voting #app #ars #polling #casting #mooc #kahoot for business
The Lancet Diabetes & Endocrinology
@thelancetendo
Your leading source of international, cutting-edge research, review, and opinion in clinical diabetes and endocrinology. IF=44·0.
Dr Suja Somanadhan
@sujas15
Associate Dean for Global Engagement | Associate Professor I Researcher| #UCD #FulbrightScholar |Paediatrics I PhD I RCN|#RareDiseases #RAIN Views are my own
Cristina Ronchi
@cryronchi
@UoB_MSS Associate Professor in Endocrine Oncology @qehbham @uhbtrust Consultant Endocrinologist @ENSAT_news President @EndoOncology Associate Editor
Helen Simpson
@hormone_doc
do what is right not whatbiseasiest|general badass|endocrine massive|data driven|work hard|play hard
Stephanie Baldeweg
@profbaldeweg
Consultant Endocrinologist = hormone doctor @uclh & Honorary Professor @UCL, Trustee @pituitary_org, Past Chair Clinical Committee @Soc_Endo, Views my own.
Stephen Ball
@sball_endo
Recently retired Professor of Medicine & Endocrinology, Manchester. Cares about high-quality clinical services, training, research, innovation & implementation
njmonline
@njmonline
The Netherlands Journal of Medicine | Scientific medical journal of the Dutch Society Internal Medicine (NIV) | Tweets in English and Dutch
Addison's Disease Self-Help Group (ADSHG)
@addisonsuk
The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA
Kassim Javaid
@kassimjavaid
UK Academic Rheumatologist working in FLS with Capture the Fracture @IOFbonehealth & FLSDB @RCP_FFFAP and rare bone diseases @RudyStudy @FDSSUK
Rudy study
@rudystudy
NIHR funded study of rare diseases. Rudy aims to transform clinical care for participants through patient driven research
Daria Julkowska
@dariajulkowska
IRDiRC
@irdirc
#IRDiRC is a consortium of #RareDisease #research funding agencies n stakeholders. RTs shares likes ≠ endorsement. Account managed by IRDiRC Scient. Secretariat
Lisa shepherd 💙
@lisashepherdcl1
HEE/NIHR Clinical Doctoral Research Fellow @UoB Endocrinology ANP @uhbtrust. Passionate about Endocrinology, Nursing & NHS. All views mine.
EndoBridge
@endobridge
Bridging the World of Endocrinology
EYRC
@enea_young
The ENEA Young Researchers Committee (EYRC) is a subcommittee of the European Neuroendocrine Association (ENEA)
Niki Karavitaki
@karavitaki_niki
Professor of Endocrinology. Passionate about Pituitary gland - tries to understand it with her research for the benefit of patients. Loves Crete.
ERDERA
@erdera_org
The European Rare Diseases Research Alliance. Co-funded by European Union's @HorizonEU Research & Innovation programme. Views expressed are of authors only.
Dr. Maria Fleseriu
@mariafleseriu
Professor, Medicine & Neurosurgery, Director Pituitary Center, OHSU @ohsunews, Board of Directors @TheEndoSociety, Past President @PituitarySoc. Tweets my own
ESE_President
@esepresident
The ESE President is no longer actively Tweeting from this account.
EpiCARE
@epicare_ern
European Reference Network for Rare and Complex Epilepsies. We are 50 specialist hospitals in 24 European countries with expertise in epilepsy & research.
@ERN_RND 🧠
@ern_rnd
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: bit.ly/33mMY4C
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
ePAG Epicare
@eepicare
We are the Patient Advocates, the ePAG (European Patient Advocacy Group) for @EpiCARE_ERN! #RareEpilepsies #Epilepsy #Neurology
GloBE-Reg
@globe_reg
The Global Registry For Novel Therapies In Rare Bone & Endocrine Conditions
ERICA
@erica_rd_eu
The European Rare Disease Research Coordination and Support Action
ETA - European Thyroid Association
@eta_thyroid
The European Thyroid Association's aims are to promote knowledge in the thyroid field and improve knowledge of the thyroid gland and its diseases.
Yllka Kodra
@yllka_kodra
Medical doctor with expertise in public health, epidemiology, registries and patient reported outcomes in the field of rare diseases
European Reference Network on Rare Bone Diseases
@ern_bond
Share. Care. Cure.
Hany Mina
@hanygmina
Digital Health | Project Management | Pharmacy
Pietro Maffei
@pietromaffei3
Medical Doctor, Internal Medicine and Endocrinology, Pituitary Tumors, Acromegaly, rare diseases: Alstrom Syndrome, Wolfram syndrome.
Foresight in Rare Disease Policy
@rare2030
Preparing a better future for people living with rare diseases. For more info [email protected]
Endo_Wue
@endowue
Division of Endocrinology and Diabetology, University Hospital Würzburg
Martine Cools
@martine_cools
Paediatric Endocrinologist, Professor of Paediatrics, Ghent University, interested in gonadal development and maintenance
What Condition?
@whatcondition
Highlighting disabled people achieving great things
ERNICA
@ernica_ern
The European Reference Network for Rare Inherited Congenital Anomalies
ERN CRANIO
@cranio_ern
The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders
European Journal of Human Genetics
@ejhg_journal
The official journal of the European Society of Human Genetics, providing insights into human genetics, genomics, molecular, clinical and cytogenetics research
Deutsche Gesellschaft für Endokrinologie
@dg_endo
German Endocrine Society - endokrinologie.net
ICE 2018 Congress
@ice2018congress
Salma R Ali
@salmarali1
GRID trainee, Paediatric Endocrinology and Diabetes, Glasgow, UK
ERN GUARD-Heart
@ernguardheart
ERN GUARD-Heart is part of the European Reference Networks for rare or low-prevalence disease and focuses on rare and complex diseases of the heart. @AMC_nl
endocrinology
@clin_endocrino
Solve-RD
@solve_rd
Solve-RD is a H2020 funded flagship EU project. We will solve large numbers of rare diseases, for which a molecular cause is not known yet.
PREFER: patient preferences
@imi_prefer
PREFER looks at why, when and how to assess and use patient preferences in medical product decision-making.
OrphanetJournal at BMC
@ojrarediseases
Orphanet Journal of Rare Diseases is fully open access & published by @BioMedCentral (part of @SpringerNature), on behalf of @INSERM.