Do come to one of our Drop-ins on Friday 3rd November globe-reg.net/drop-in-sessio…

A big welcome to Sanhita Koley, Data Scientist for the Office for Rare Conditions Registries

The Expert Working Group on Noonan Syndrome has started working on developing a minimum dataset for monitoring the safety and effectiveness of rhGH therapy. To find out more, visit globe-reg.net/noonan-syndrom…

Updated Version 2023.10 of Registry and Data Dictionary now available globe-reg.net/data-elements/

Do come to one of our Drop-ins on Tuesday 21st November globe-reg.net/drop-in-sessio…

Do come to one of our Drop-ins on Friday 1st December globe-reg.net/drop-in-sessio…

The Expert Working Group on Adulthood GHD has started working on developing a minimum dataset for monitoring safety and effectiveness of rhGH therapy. To find out more, visit globe-reg.net/adulthood-ghd/

The GloBE-Reg Centre Grant application deadline is 31st December - for details on how to apply visit globe-reg.net/globe-reg-coll…

Do come to one of our Drop-ins on Tuesday 19th December  globe-reg.net/drop-in-sessio…

Do come to one of our Drop-ins on Friday 5th January globe-reg.net/drop-in-sessio…

Real-world IGF-1 variation in Growth Hormone Therapy in children (RIGHT) launches on the GloBE-Reg platform! To find out more visit: globe-reg.net/igf-1-childhoo…

Do come to one of our Drop-ins on Tuesday 16th January (4-5pm) globe-reg.net/drop-in-sessio…

Do come to one of our Drop-ins on Friday 2nd February (9-10am) globe-reg.net/drop-in-sessio…

GloBE-Reg is delighted to announce that Ashley Gilmer from ICOSEP has joined the @globereg patient advisory group globe-reg.net/patient-adviso…

Do come to one of our Drop-ins on Tuesday 20th February (16:00-17:00) globe-reg.net/drop-in-sessio…

Do come to one of our Drop-ins on Friday 1st March (9-10am) globe-reg.net/drop-in-sessio…

Newsletter globe-reg.net/2024/03/22/new…

Come along to the GloBE-Reg in-person Drop-in sessions at ESPE - today at 1pm and 2pm in meeting room 13 (upper level of the ACC Liverpool) - see map here globe-reg.net/2024/11/08/dro…

Congratulations to Alma Toromanovic and Melita Irving, the winners of Saturday's Office for Rare Conditions - Registries quiz. To take part in today's quiz, please visit the ORC Registries booth (stand 23) for your chance to win.

Congratulations to Alina German and Sare Kaygusuz, the winners of Sunday's Office for Rare Conditions - Registries quiz ESPE