Over 300 million people worldwide live with a rare disease. With #RareDiseaseDay2025 just 100 days away, Rare Disorders Kenya invites you to join us in raising awareness and supporting individuals living with rare diseases in Kenya. Let’s make a difference together! #RareDiseaseKE

Thank you Karen (Elevate TV) for such an enlightening opportunity to discuss matters disability and parenting 💕 You can find the full video on here: youtube.com/live/63bpjFDXj… #DisabilityParenting #Life #RareMom

#FollowFriday Spotlight: RDK - Rare Disorders Kenya whose mission it is to advocate for people with rare diseases, (incl. skin conditions) health policy and a healthcare system that works for those w/ rare diseases. 🌐 rarediseasekenya.org #RareDERM

#BreakingNews It doesn't always follow that if you #love someone you will be able to #care for them & remain alright through it. Sign up, get the support you need. forms.gle/zk2rLGzanUqatz… #Monday #caregivers Aga Khan University Hospital, Nairobi NCD Alliance Kenya Rare Disorders Kenya Renal Patients Society of Kenya Foundation For People with Epilepsy

Rare Disease Day 2025 Counting down the days to this year's RDD with the theme being "More Than You Can Imagine". RDs are not only a health issue as they affect individuals and their families holistically. Let's change the lives of PLWRD a family at a time! #RareDiseaseDay

Doing some research and I found self going through the journey of what is now Rare Disorders Kenya .. What started as an innocent idea to create awareness around #RareDiseaseDay in 2014 has over the last decade morphed into this massive and oh-so-rewarding movement. #RareDisease2025

Small rare disease charities fill a critical gap, yet they struggle with visibility, funding & burnout. What happens if they disappear? This is a wake-up call: 💡 🔹 Support them however you can. 🔹 Build sustainability & succession plans. We cannot afford to let them fade away!

Wohooo!!! We are super excited to be hosting #rdd2025 on 1st March 2025. #rarediseaseday2025

Our co-founder Roselyn Kanja will be part of the awesome panelist in this more than necessary discussion. Please join her and others for an hour on 25th Feb from 7:30pm. Meeting link: meet.google.com/esi-wofq-nim #RareDiseaseKE

Join us TODAY from 7:30–8:30 PM for a vital discussion on family-centered care in Rare Diseases! 🧬 Our co-founder Roselyn will be joined by expert specialists as we explore innovative care for our community. See you there; meet.google.com/esi-wofq-nim #RareDiseaseCare #RDK #RDD

Globally, over 300 million people live with #rarediseases, but in Kenya, the impact is deeply personal. Many patients endure diagnostic delays of 4-5 years, which disrupt education, employment, and family life. #RDD #RareDiseaseDay

Rare Disease Day is here 🎉🎉 Join us on 1st March from 10am - 2pm at Gertrude’s Children’s Hospital as we celebrate the rare disease community. Call +254 701 025 753 or email [email protected] for reservations. #rarediseaseday2025 #rarediseases

🚨 #RareDiseaseAwareness Webinar Alert! 🚨 Join us for a powerful discussion on: 🔹 Early diagnosis & its impact on quality of life 🔹 How YOU can support rare disease patients 🔹 Expert insights from medical professionals & advocates 📍 Register now: forms.gle/F8G8kZcG2pMCzB…

Join us for a powerful discussion with GeneCare Center & Human Genetics & Genomics Society of Kenya on: 🧬 The impact of early diagnosis 💜 How you can support rare disease patients 🎙️ Insights from experts & advocates 📅 18th March 2025 ⏰ 7:30 - 8:30 PM EAT 📍 Online Meeting Link: meet.google.com/baa-mmhv-dpj

Exciting News!🎉🎉 We're thrilled to have Sophie Mukwana, the Secretary of Human Genetics & Genomics Society of Kenya, as our moderator for tomorrow's webinar! 💜 We can't wait to see you all there! Be sure to share this with your network—let's spread awareness on #rarediseases

At the Hope Arthritis Foundation medical camp at Our Lady of the Rosary Catholic Parish - Ridgeways. We are having a FREE medical camp aligning with the global World Young Rheumatic Disease (WORD) Day. Ensuring that no child suffers in silence! #RareDiseaseKE #Kenya

Today we are at Nairobi Chapel for their #Enzi Sunday worship. Come to our tent and say hello and get to learn more about rare diseases and how Rare Disorders Kenya can assist. Mbarikiwe :)

Join our Executive Director, Dr. Sam Gwer, alongside an incredible panel of changemakers as they discuss collective action, funding reform, and systemic change in global development. 🔗 𝗥𝗲𝗴𝗶𝘀𝘁𝗲𝗿 𝗻𝗼𝘄: 𝗹𝘂.𝗺𝗮/𝘀𝗶𝗱𝗲𝗯𝗮𝗿