Roselyn Odero, Rare Diseases Kenya aelezea chanzo cha maradhi yasiyo ya kawaida. Nuru AbdulAziz #NTVSasa

Hi Steve Hare Sage Africa Sage 10 days and counting, after payment for renewal of subscription of an account, is just bad for any business! This is the second time it is happening. Your team appears to think your Kenyan market is non existent.

Glad to see Rare Disorders Kenya making such great strides to inform & influence policy makers & stakeholders to institute sustainable systemic change that improves health outcomes & inclusiveness of those living with rare diseases & their families. @moh_kenya Kenya Medical Research Institute EURORDIS-Rare Diseases Europe

1st Rare Disease Stakeholders Workshop in Kenya! Time to prioritise these conditions and improve the quality of life for those living this reality. #RareDiseaseKe Rare Disorders Kenya EURORDIS-Rare Diseases Europe @rarediseasesint Kenya Medical Research Institute Cambridge-Africa Ministry of Health

KEMRI in partnership with Rare Disorders Kenya, Cambridge-Africa, and Ministry of Health, have initiated the mobilization towards awareness creation in #RareDisease as a #publichealth concern. [1/3]

The initiative on #RareDiseases includes mobilization of financial support from Multi-sectoral stakeholders and the development clear roadmap for better diagnosis and management of rare diseases. [2/3]

The long-term vision is to develop programmes committed to the identification treatment and cure of rare diseases through research and patient services. [3/3]

It's been an honour for Dr Lucy McKay to take part in a panel on medical professional education with Rare Disorders Kenya today. The challenges that patients face cross borders and continents. Collaboration and sharing is key #daretothinkrare #raredisease

Aimé Lumaka iapo Kelly du Plessis @rarediseasesint setting up the base for our African Rare Disease Alliance meeting ... This session was moderated by Rare Disease Ghana Initiative :)

More than 300 million globally live with a rare disease 😔

Come #ShareYourColours this 25th Feb at The Nairobi Hospital Convention Center from 9.30am Registration: rddke2023.eventbrite.com (Limited slots available) For more information: rarediseasekenya.org/rdd2023 To support this event: [email protected] #RareDiseaseDay #RareDiseaseKE

Britam Towers illuminated in commemoration of #RareDiseaseDay 2023 They join the global chain of lights - different buildings and structures worldwide - in the theme #ShareYourColours Thank you Britam Cares for being part of the campaign. #RareDiseaseKE #Nairobi #Kenya

From a thought in 2014 to the world's largest health platform in 2023 ... #Excited #Blessed #RareDisease #UHCHLM

Look Mommy .. I'm on X :) This was a fun day!! Thanks UAP Old Mutual is now Old Mutual for making this happen. cc: Roselyn Kanja Rare Disorders Kenya

Rare Disease Day (RDD) is upon us this leap year 😊 Let us spread awareness and support people living with rare diseases (PLWRDs) in Kenya. Join the community and be part of the rare family .. together we are stronger! #RareDiseaseKE #RareDiseaseDay #RareDiseaseDay2024

On this #RareDiseaseDay, we call for action for people living with a rare disease (PLWRD) to have equal opportunities & to realize their full participation in family, work & social life Join and support us make a positive difference in the lives of PLWRDs in Kenya #RareDiseaseKE

Hey guys .. If you are passing by University Way Roundabout, please take a look at the digital billboard and take a photo of the #RareDiseaseDay post for me. Tag Rare Disorders Kenya or #RareDiseaseKE I'm excited about it but I cant go to town as yet ... Thanks and RT :)

Equity for rare diseases in 🇰🇪means Yara thrives with the best quality of life It empowers her parents to care for her while leading fulfilling lives, contributing to society & the economy. Your support in raising awareness gives our community recognition & drives policy action

𝐒𝐡𝐨𝐰 𝐲𝐨𝐮𝐫 𝐒𝐭𝐫𝐢𝐩𝐞𝐬... In solidarity for Rare Disease Day 2024, we champion 'Achieving True Equity for 300 Million People Across the World with Rare Conditions' #RareDiseaseDay2024

Rock your denim for #RareDiseaseDay tomorrow! Snap a pic, tag us Rare Disorders Kenya, and let's spread awareness together 😊 #JeansForGenes #RareDiseaseKE