Patient-Led Research Collaborative
@patientled
Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
ID: 1330038435722260490
https://linktr.ee/patientled 21-11-2020 06:40:56
2,2K Tweet
26,26K Followers
636 Following
Deanna Dikeman
@dbdikeman
Artist-Photographer. “Leaving and Waving” and “Relative Moments” books published by Chose Commune. 2023 Guggenheim Fellow.
m2 feesh
@m2feesh
Despair is not an option.
JK
@j_b_kennedy
Slowly getting there
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Lady Kismuil Brodie
@kismuil
Any re-tweet is not an endorsement. You'll learn nothing by following me.
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Gez Medinger
@gezmedinger
Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Chris J. Maddison
@cjmaddison
ML faculty @UofT
Dr Robin Hadley 💙💚
@robinhadley1
Author 'How is a man supposed to be a man? Male childlessness a Life Course Disrupted': bit.ly/3aa3TfO Links: linktr.ee/robinahadley
AyAy ☭
@heysugardumplin
'One of those Barbarians.' Antifa since birth. Lefter than left. Loves dumplings.
Alex Bruens, Ph.D.
@alexbruens
opinions my own | UN peace operations & peacebuilding, civil war, political violence, and human rights and repression | they/them 🏳️🌈
catherine landers
@kitlynd
our difference is what we all have in common
Binita Kane
@binitakane
#LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Gayle J. Greenlea🟧🌻🏳️🌈@GJGreenlea.bsky.social
@gjgreenlea
Poet, novelist, muso, counselor for survivors of sexual/gender violence. Black Bough, Fevers of the Mind, Ice Floe, Kalonopia, Headline P&P, Rebelle, Wombwell🌈
welp
@extrmevengeance
😷 safety yall
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Standing Up to POTS
@potsactivist
SUTP works to improve quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
Matt Soleiman
@matthewsoleiman
history of science. @UCSanDiego science studies. bodies, experiences, neurons
Marky Mark
@mrkstdngr
#ME #CFS #CCI #POTS #MCAS
vinicius
@vimsts
soteropolitano
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
David H
@davidh58388604
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Susan S.
@susansw09596703
Crypto, XRP Army, conspiracy truther, Web3, alternative health, and digital marketing professional
Herman Cains Ghost 🇺🇲 🇪🇺 🇺🇦 🇬🇪
@thebluemagoo99
Ебать Putin. Complacency is complicity. Not Our President Ever. this account kills fascism #NOPE #NAFO #FAFO
LIMaF UdeC
@limafudec
Laboratorio de Investigación Materno-Fetal (LIMaF) de la Universidad de Concepción. Marcelo González (PI) a cargo de esta cuenta. limafudec.wordpress.com
Apostle Robert Bakaluba ✝️🔯🕎
@apostlebakaluba
WhatsApp or Calle📞 Number is: +256783043401, AM THE TEMPLE OF LIVING GOD (2.CORINTHIANS 6:16) WhatsApp link👉 wa.me/256783043401
Antimony Jenkins
@antimonyjenkins
Long Covid SOS @longcovidsos.bsky.social
@longcovidsos
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation longcovidsos.org longcovidsos.bsky.social
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
Shaney Wright
@shaneywright
@WestHam Fan ⚒ | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
SeeYouAgainSomeday
@again_someday
One among the millions missing. Info seeking. Trying to recover. #LongCovid #MECFS #pwME
AlleBurgers
@alleburgers
Onze missie is om de verspreiding van Covid-19 te beëindigen door internationale kennis, compassie en actie.
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Tommy Q
@tcue21
Entrepreneur/Banker
Lord Hagen
@lordhagen13
CFS since 2020, lost nearly everything because of this illness but future treatments will cure us all
Afsheen Shamshad
@drshamshada
William
@william72783557
First and foremost a kick ass drummer!!! Taekwondo and kickboxing instructor, and practitioner. Love Business
Jumpin J
@jumpinjanet60
No DM and texts🚫
William Fella McBonkangle
@ligmadictator
NAFO 🔻Anarcho-Pinguist. 3rd penguin division. Surveillance researcher. Anti-Annexationist
Thegamer
@themoder2024
welcome. i am. artist gamer modder YouTuber. subscribe to my channel for content. and follow for more post i tweet marvel Nintendo bendy source filmmaker.
Woodrose
@woodrose61
You are the community now Be a lamp for yourselves Be your own refuge Seek for no other All things must pass Strive on diligently Don’t give up… Buddha
Existential ME
@exxistential_me
Reflections on a life with Very Severe ME
Johnie Marie Stoney
@stoneyjohnie
Fintan jackson
@fintanjackson
Klara Sayn
@klaralue
Dje GZ
@djegz33
Otage du #LongCovid & #ME
Sylvester Walsh
@sylvesterw85118
Arthur analyst and team provide cryptocurrency analysis, earn $500 to $5000 a day, click to join WS:chat.whatsapp.com/KYiVtrNAbvUJ8i…
Az
@amm2479
(𝘦𝘷𝘦𝘳𝘺 𝘢𝘵𝘰𝘮 𝘣𝘦𝘭𝘰𝘯𝘨𝘪𝘯𝘨 𝘵𝘰 𝘮𝘦 𝘢𝘴 𝘨𝘰𝘰𝘥 𝘣𝘦𝘭𝘰𝘯𝘨𝘴 𝘵𝘰 𝘺𝘰𝘶)
Romain
@32sfc46582
Was a book publisher in south of France. Had a wonderfull life until SEVERE MECFS. I want my life back (or at least 50 %) for my wife and my children... #mecfs
Complex Disorders Alliance
@coda_research
The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
UNINAK
@ambrosesu42801
UNINAK is a professional LED screen display manufacturer and exporter.
Elias
@elias_aulit
severe ME/CFS / bedridden
Yxoobo
@yxoobo4671
Isloju
@isloju650
Lisa McGill
@mcgill_lis
new accnt - lost old one 😓 #Covid conscious #LongCovid #ScienceBased #research views are my own. Proud Canadian. hopeful student MSC infectious disease
Perfect Miraclesbythegraceofgod
@mir68776perfect
LongCovidJourney2000
@ljourney2000
Ari
@arixanxim
I bite. they/them
Rob
@rob_wainwright1
Prof. Akiko Iwasaki
@virusesimmunity
We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Daniel Brittain Dugger
@dbdugger
HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Liz
@emplzy
Just me