Patient-Led Research Collaborative
@patientled
Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
ID: 1330038435722260490
https://linktr.ee/patientled 21-11-2020 06:40:56
2,2K Tweet
26,26K Followers
636 Following
Calley Means
@calleymeans
Every institution in healthcare profits when kids are sick and loses money when they’re healthy. Trying to change that incentive.
Royal Hansen
@royalhansen
Vice President, Engineering, Google - Privacy, Safety, Security: Posts on InfoSec, Privacy, Data, AI, Counter Abuse and random stuff from life in CA; Tweets=own
@Riemerville
@riemerville
May your odds be ever in your favor! #LongCovid #POTS #ME #CleanAirHealthySchools
ENSP/Fiocruz
@ensp
Perfil oficial da Escola Nacional de Saúde Pública Sergio Arouca, unidade técnico-científica da Fundação Oswaldo Cruz (ENSP/Fiocruz)
Prof Doug Kell CBE #FBPE #FBPA🔶🇪🇺
@dbkell
I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE osf.io/pnxcs/ dbkgroup.org/longcovid/. Nothing I say is medical advice
Rohan Dixit
@rd108
🦠 Patient Zero @LongCovidLabs 🧠 Inventor of mental health wearable @getlief 🔬 Formerly neuroscientist @StanfordMed, @MGHMartinos
CHEST
@accpchest
Official account of the American College of Chest Physicians® Advancing lung health through education, advocacy & research since 1935 #CHEST2025 @journal_CHEST
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Morgan Stephens
@morganstephensa
reporter covering Dems, former White House @business, @dailykos, @cnn, poet TILT, @usc alum, Long Covid advocate, Bsky morganstephens.bsky.social
zeynep tufekci
@zeynep
Complex systems, wicked problems. Society, technology, science and more. @Princeton professor. @NYTimes columnist. My newsletter @insight theinsight.org
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Pam Belluck
@pambelluck
New York Times writer covering health & science. Author of "Island Practice," a book about a quirky island doctor. Jazz flutist. Lapsed Ultimate Frisbee player.
rasha abdulhadi
@rashaabdulhadi
poet, cultural organizer, fiber arts | social media for an analog world | mastodon: @[email protected] || NO LISTS || follow @gazafunds, donate gazafunds.com
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Gez Medinger
@gezmedinger
Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Resia Pretorius
@resiapretorius
Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Steve Wilcox
@stevemwilcox
Associate Professor. Game + Instructional Designer. Research: pro-social play, social cognition, & critical design. He/him.
Chris J. Maddison
@cjmaddison
ML faculty @UofT
Rachel
@rach_r0bles
long COVID patient and advocate | she/her pronouns | @patientled
Amy Rochlin
@amyrochlin
Executive Director, @MetrodoraFdtn. Working hard to advance progress for patients living w/ complex chronic conditions. #MedTwitter Opinions are my own.
Suzanne D. Vernon
@cpr4cfs
Scientific director for the CFIDS Association using citizen powered research to solve CFS
Matt McGorry
@mattmcgorry
Maker of feels and procurer of LOLs. Activist. Bennett on @OITNB and Asher on @HowToGetAwayABC Instagram: @MattMcGorry
Binita Kane
@binitakane
#LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Thoni Gilles (PhD)
@gillesthoni
La promotion intégrée de l' #ActivitéPhysique favorable à la #Santé : de la santé des individus à la #SantéPublique. #Sédentarité; #Education; #Evidencebased
Dr. Cat Hicks | grimalkina.bsky.social
@grimalkina
Psychologist for Software Teams. Defender of the mismeasured. Host at "Change, Technically": changetechnically.fyi 🦄 🏳️🌈
Project ECHO
@projectecho
Project ECHO makes expertise accessible, getting the right knowledge to the right place at the right time. #AllTeachAllLearn
Leslie Hobson
@lesliehobson3
instagram.com/lesliehobsonph… Songs of Love and Loss -… Animal Friends from A-Z
Dr Nicola Clague-Baker
@claguenjc36
PT researcher/Senior Lect @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/mental health/ME/Longcovid/EDI/all views my own she/her
Putrino Lab
@putrinolab
We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Asad Khan FRCP FRACP 🇵🇸🇳🇿🇮🇳🇬🇧#pwLC
@doctorasadkhan
Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Ondine Sherwood 💙
@selkieo
IT professional. Recent graduate @UCLSELCS MA PPE of Health. @HRA_latest REC member. Campaigning for rights of those with #LongCovid @LongCovidSOS
Greg Hayes
@soundgmh
Family | Music | Film | Surfing | imdb.me/greghayes | aKD #MIS_C #MISC May2020 #longcovidkids
Nina Agrawal
@agrawalnina
Health reporter @nytimes. Proud alum @latimes
Katerina Akassoglou
@akassogloulab
We investigate neurovascular mechanisms of inflammation, neurodegeneration & neurorepair.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Shivani Chaudhry
@shivani_chdhry
Human rights; all forms of justice; poetry and prose; music, silence, and the spaces between... | On pause due to #LongCovid | 😷=❤ | 🇵🇸 🕊
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Rep. Ilhan Omar
@ilhan
Representing Minnesota's 5th District in the People's House. @USProgressives Deputy Chair. Account managed by staff.
Zhaoqi Yan
@yan_zhaoqi
Postdoc at the Gladstone Institutes, studying neuroimmune interactions in lab of @Akassogloulab
Kate Alexandria 🍉🌈
@kfreddiea
Chaotic bi writer in an uncooperative body on a dystopian planet. OHS survivor & medical mystery. 📝: KnockLA, @HuffPost, @WomensMediaCntr, & more. (she/they)
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Alba Azola, MD
@azolaalba
Assistant Professor @RehabHopkins and @HopkinsKids, Long COVID/Chronic Fatigue Clinic. Human, mother, physician, dancer, and scientist! My opinions are my own.
Long Covid SOS @longcovidsos.bsky.social
@longcovidsos
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation longcovidsos.org longcovidsos.bsky.social
Daniel Missailidis, PhD
@danmissailidis
Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: scholars.latrobe.edu.au/d2missailidi/p…
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫
K
@longcovid_me
Formerly healthy, sidelined by #LongCovid since 2020.
Blackdisabledlivesmatter
@blackdisabledl2
We are an organization fight for black disabled lives at all time
Mario Nawfal
@marionawfal
Largest Show on X | Founder @ibcgroupio | Investor 600+ Startups
Asociación Long COVID Aragón
@longcovidaragon
Asociación de afectados de #COVIDpersistente o #LongCOVID en #Aragón, #Spain. Unidades Multidisciplinares Ya [email protected] #CureLongCovid 😷
LangzeitCOVID @[email protected]
@langzeitc
Long COVID Germany @langzeitc.bsky.social [email protected]
Long Covid in Delhi
@nolongcovid
Living with #LongCovid since April 2021. Here for solidarity, support, awareness, advocacy. #TreatLongCovid #CountLongCovid #CovidIsNotOver #FBLC 😷
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Jae Kyu (Jae) Ryu
@jaekyuryu
thetranscendedman
@atranscendedman
Transparent to the transcendent. Wrote a book on Long Covid. - jondouglas.dev/longhaul/ Extraordinary claims require extraordinary evidence. - Sagan
International Long Covid Awareness
@lcawarenessint
#LongCovid • #LongCovidAwareness -- #LongCovidAwarenessDay -March 15 -- #LongCovidAwarenessMonth -March -- #CureLongCovidNow #LongCovidMakesUsOne
LongCovidSpain
@longcovid_spain
Dando voz a los pacientes e investigadores de #CovidPersistente #LongCovid Encuentra tu asociacion mas cercana en el link ⬇️
+ BERLIN BUYERS CLUB +
@berlinbuyers
covid destroyed us, we are young, we want our lives back / DMs not checked here. Please contact via our website.
dianna haze
@diannahaze
Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
Amatica Health
@amaticahealth
Patient-centred chronic disease research
@longcovidtheanswers
@longcovidanswer
The CREDIBLE destination for everything Long Covid | Dr. Funmi Okunola MD 🩺 Certified CPD/CEU/CME for Licensed Medical Professionals. Find your answers!
rusty-chris
@rusty_cjm
Research Fellow at University of Bristol. Applied Data Science, Mathematical Modelling, Healthcare and other domains. Living with Long COVID.
Hopkins ME/CFS & Related Disorder Program
@hopkinsmecfsc
Our goal is to provide outstanding clinical care to patients with ME/CFS & related disorders and improve our understanding of these illnesses through research.
Public Health Action Network
@pubhealthaction
Our mission is to safeguard public health by improving air quality, promoting evidence-based COVID-19 prevention strategies, and empowering communities.
Christoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS | Godspeed 🙇🏼
Ian Goodfellow
@goodfellow_ian
DeepMind Research Scientist. Opinions my own. Inventor of GANs. Lead author of deeplearningbook.org Founding chairman of @pubhealthaction
Otavio Ranzani
@otavio_ranzani
Assistant Professor Global Health | Epidemiology | RCTs Critical Care, Infections, Climate Change #DecolonizeGH 🇧🇷 @ISGLOBALorg @USPonline. My views.
Jun Kim
@jun_kiim
CEO, Virologist, Immunologist; Harvey Cushing Neuro-Oncology Laboratories (HCNL) @eachiocca @harvardmed @mgbneurosurgery @mentormedschool
Prof. Akiko Iwasaki
@virusesimmunity
We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Norio Honjo
@noriohonjo