Marfan Trust
@marfantrust
Founded in 1988, the Marfan Trust supports patients & funds research into the cause & prevention of Marfan syndrome, a connective tissue disorder.
ID: 1657451630
http://www.marfantrust.org 09-08-2013 10:29:55
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ACC Advocacy
@cardiology
Follow #ACCAdvocacy and @ACCinTouch for the most up to date advocacy, health policy content and more from the American College of Cardiology.
Michael Levin
@mglevin
🫀Cardiologist @PennCardiology and @VAPhiladelphia 🧬Interested in human genetics of cardiovascular disease | #rstats enthusiast
pectusexcavatum
@pectusexcavatum
newswise
@newswise
Where journalists choose, connect, and use smart news. Latest news, press releases, connecting PR and journalists 👩🏽💻📰👨🏼💻
TheMarfanFoundation
@marfanfdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
SADS UK
@sadsuk
SADS UK is the official SADS cardiac charity working to save lives, we would love to talk to anyone, whether it be support or networking :D
Rodnie Oro
@rodnie_oro
TAVI Specialist (ABBOTT), Cathlab Nurse, Cinematographer & CEO, Founder of Golden Shutter Ltd. London Filmmaker/Editor 🇬🇧rodnieoro.com
@OptometryToday
@optometrytoday
OT is a bi-monthly journal and website keeping optometry professionals and practice team members up to date on education, daily news and in-depth features
CCNA
@congenitalcna
This is the Congenital Cardiac Nurses Association UK
Romford Recorder
@romfordrecorder
Romford's best weekly newspaper. Follow our reporter @Char_A_journo. Send your stories to [email protected]
Jim Al-Khalili
@jimalkhalili
Jim Al-Khalili CBE FRS HonFREng Emeritus Professor of Physics @UniofSurrey, author, broadcaster, humanist. "Affable Egghead" (Sunday Times).
American Heart Association
@american_heart
Join our movement to change the future of health. Together we can be the progress that ensures longer, healthier lives for all. Follows not endorsements.
Julie De Backer
@judbacke
Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
gisela teixido
@giselateixido
Cardiòloga. Imatge cardiaca. Unitat de Marfan. Vall d'Hebron. Mare i ciutadana del món.
Mundo Marfan Latino
@mundomarfan
La comunidad Marfan hispanohablante
Michael L. Weamer
@michaelweamer
President and CEO of @MarfanFdn. Tweets and RTs express my own opinions.
The Society of Thoracic Surgeons
@sts_ctsurgery
Advancing cardiothoracic surgeons' delivery of high-quality patient care.
Michael C. Siah, MD
@michaelcsiah
Dog Dad Vascular Surgeon @utswvascular @utsw_surgery. Director of Limb Salvage. Raised in Hawaii. Trained in DC. Tweets and opinions are my own.
Wei-Guo Ma, MD
@dr_ma_of_pumc
A heart surgeon, with genuine sympathy and indeed love for patients, has sound judgments matched by courage in action and technical proficiency
Milleron Olivier
@omilleron
Cardiologue hospitalier. Centre de référence national pour le syndrome de Marfan. Hôpital Bichât. Paris. Membre du Collectif Inter-Hôpitaux
Professor Farah Bhatti OBE
@drfbe
Cardiac Surgeon. Council Member and Trustee of The Royal College of Surgeons of England #LiftAsYouClimb #DeedsNotWords
Gareth Owens
@icarus1054
Welsh Physicist, Chartered IT Professional & Executive; also singer, genealogist, classic BMW enthusiast, #AorticDissection survivor & Patient Advocate
Tara Mastracci
@aorticsurgeon
🇨🇦 Vascular Surgeon @Bartshealth in London… views are my own, as evidence-based as possible & focus on addressing health inequity in vascular surgery outcomes
Grayson Wheatley
@drwheatley
Have you given up on staying current with the latest aortic-focused research?
Tahni-Ann Wilson
@tin_wilson
Regd. Genetic Counsellor in Paed & Adult Cardiac Genetics, RBH, NHS. Photographer. Mum to Peanut, JRT. SA Tag Rugby player. My views are my own (she/her).
SCTS UK
@sctsuk
The Society for Cardiothoracic Surgery in Great Britain and Ireland
Aung Oo
@mraungoo
Prof of Cardiovascular Surgery | Founder of UKAS | North London Lead and Pan-London Co-Lead Complex Aortovascular Surgery, Barts Heart Centre
Spinal Muscular Atrophy UK
@sma_uk_
Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
Eric Isselbacher
@eisselbacher
Director, Healthcare Transformation Lab; Co-Director, MGH Thoracic Aortic Center; Massachusetts General Hospital
Association Belge du Syndrome de Marfan, ABSM asbl
@marfanbe
Official account of Association Belge du Syndrome de Marfan, belgian association of patients and relatives affected by Marfan syndrome.
London Aorta
@aorticlondon
03-04 October 2024: The meeting will cover aortic disease & treatment for cardiac & vascular surgeons, cardiologists, radiologists, nurses & geneticists.
pectusexcavatum
@pectussexcavatu
Tienes un #pectusexcavatum? Te comprendo, yo también. Cuenta que recogerá a ese 1 de cada 400.
den i asbl
@marfan_den_i
L'asbl a pour vocation de faire connaître le syndrome de Marfan dans le but d'en accélérer le diagnostic et d'en améliorer la prise en charge au Luxembourg
Dr Maryanne Caruana MD PhD FRCP FESC
@maryannecaruana
Consultant Cardiologist, Mater Dei Hospital, Malta; Lead for ACHD and Aortopathies | President, Maltese Cardiac Society | All views my own
Dr Joyee Basu PhD
@basujoyee
Cardiology Consultant | Former @CRY_UK Research Fellow | Editor, Oxford Handbook of Cardiology 3rd edn. #sportscardiology #HF #ICC #AI #DigitalHealth
UMassVascular
@umassvascsurg
Division of Vascular and Endovascular Surgery at University of Massachusetts Medical School; 0+5 integrated vascular residency program (2 residents/year)
Joe Bavaria, MD
@bavariamd
Professor of Surgery, Past President @STS_CTsurgery tweets are my own
Liz Genovese, MD, MS, FACS
@drlizgenovese
Assistant Professor of Vascular Surgery at the University of Pennsylvania | Director of the Penn Advanced Limb Preservation at the Hosp of the Univ of Penn
BartsGUCH
@bartsguch
We are the Grown Up Congenital Heart Disease (GUCH) team @NHSBartsHealth. Please follow us for the latest news about the service. No clinical queries please.
Celia Chartres-Aris (née Hensman)
@celia_hensman
Most Influential Disabled Person in the UK | Gov Advisor | Global Future Young Leader | Founder Investor | Campaigner & Lobbyist | Researcher, Policy, Legal Exp
Matthew Solomon, MD, PhD
@mdsolomonmd
Chief Scientific Officer, Sutter Health | Cardiologist & Researcher | Data Science & AI | Aortic Disease Specialist | Views are mine.
frank arko
@farkomd
Restoring blood flow & repairing Aortas, PAD, & veins. Forged at @TAMU refined at @Stanford, perfected at #UTSW now landing at @atriumSHVI
Rakesh Uppal
@ru_nhs
Cardiac Surgeon ; Prof Bart’s Heart Centre, Director Barts Life Sciences. All tweets = personal views
💙 Elena de Moya Rubio 🇪🇺
@demoya_elena
#PoTS #MFS #SFN Patient advocate. Disclaimer: This is my personal profile & opinion #makenoiseforturquoise #potsawareness #marfansyndrome #smallfibreneuropathy
Barts Aortic Surgery
@bartsaorta
Official page for the Aortic Surgery service at St Bartholomew’s Hospital, London || Account run by Ana Lopez-Marco, Consultant Cardiac and Aortic Surgeon
Yale Cardiothoracic Surgery Residency
@yalectsurgery
Yale Cardiothoracic Surgery Residency/Fellowship
Marfan Perú
@perumarfan
APSIM es la Asociación Peruana del Síndrome de Marfan conformada por afectados, familiares, amigos, médicos y personal de la salud que se han unido.
Aortic Dissection Charitable Trust
@aorticdissectct
Saving lives by improving the diagnosis of #aorticdissection, bringing treatment consistency across the whole patient pathway #AortaEd, policy change & research
THINK AORTA Global
@think__aorta
Official worldwide THINK AORTA campaign to improve the diagnosis and treatment of acute #AorticDissection, founded and led by @AorticDissectUK.
Aortic Dissection Buddies UK & Ireland
@aortabuddiesuki
Over 1,000 Survivors and family members affected by #AorticDissection. We are the National Patient Support Group of @AorticDissectUK "Today is a Good DAY"
Joseph Coselli, MD
@jcoselli_md
Professor, Executive Vice-Chair Division of Cardiothoracic Surgery, Michael E. DeBakey Dept of Surgery, Director Thoracic Surgery Training Program @BCM_Surgery
Nairy Khodabakhshian
@_nairykh
PhD Candidate at @UofTIMS @sickkids | Studying cardiovascular responses to exercise in pediatric Marfan and Loeys-Dietz Syndrome🫀 | Views are my own | 🇦🇲🇨🇦
Haleema Saadia 🍉
@haleemasaadia_
Mother & Carer | Student | Patient Advocate | Marfan Syndrome | Bee Keeper 🐝 This my personal page hence represents my personal views 😊
Natasha Barr
@caretently
Creating content with CARE for the rare disease community. Medical writing, translation and content creation services. Formerly worked at @vascern + @orphanet
Stephen Spindel MD
@stephenspindel
Cardiac surgeon at Montefiore Medical Center, Mount Sinai trained, Air Force veteran, exercise fanatic
Laerke Ghosh
@laerkelondon
Danish-Londoner! Lover of nature & dogs! Aortovascular Clinical Nurse Specialist at St Bart’s Hospital working to improve patient education and outcomes.
Aortahub
@arturaortahub
Meeting place for professionals interested in Aortic Diseases Project developed by international expert: Artur Evangelista Updates, interviews, clinical cases
Aortic Dissection Awareness UK & Ireland
@aorticdissectuk
The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617
Dr Tootie Bueser💙
@2tbueser
Dir for N&M @SEgenomics | Nurse rep @AiccUK council | Trustee @cardiomyopathyUK | NIHR SCP Researcher & CDRF & NIHR70at70 alum | #cardiogen Nurse
Matt Bown
@matt_j_bown
AorticWomen
@aortawomen
Promoting Awareness for #AorticDisease in Women & gender differences that exist. Tweets Are Not medical advice #aorticdissection #womenwithaorticdissection
Alan Lumsden, MD, CV Chairman/Director
@alanlumsdenmd
Medical Director, Chairman Cardiovascular Surgery, Vascular Surgeon, Founder of @DeBakeyCVedu, Live Broadcast and Podcast Interviews
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
BCCA
@bcca_uk
BCCA aims to support & represent medical professionals whose interest is in the practice or research of CHD in the adult or heart diseases in the fetus or child
Ryan Rodarmer, MS 🧬♥️
@3rscardiogc
Director @VEDSMovement, @MarfanFdn | Veteran Cardio GC | Type A #AorticDissection survivor due to unknown syndrome | Opinions are my own. #AortaEd
Yale Cardiac Surgery
@yalecardiacsurg
The official Twitter account of the Division of Cardiac Surgery at @Yale. A world-renowned center for research, education, and health care.
Dr Shariq Shamim
@shariqshamimmd
Interventional Cardiologist, Cath Lab Director #CHIP #CTO #TAVR #PERT #imagefirst tweets personal views ≠medical advise AFMC-O2 उद्यमेनैव हि सिध्यन्ति
Heart Surgery Priority Setting Partnership
@heartsurgerypsp
Bringing patients, carers and clinicians together to find the top #heartsurgery #research priorities. Partnered with @Lindalliance, funded by @heartresearchuk.