Marfan Trust
@marfantrust
Founded in 1988, the Marfan Trust supports patients & funds research into the cause & prevention of Marfan syndrome, a connective tissue disorder.
ID: 1657451630
http://www.marfantrust.org 09-08-2013 10:29:55
5,5K Tweet
1,1K Followers
956 Following
Shivani 🦓🧂🥄🦋
@dysautonomiac
Marketing @wearlumia. Tweets my own. Reliably Dysfunctional. #mcas #dysautonomia #longcovid #pots #eds #mcas #zebra #iacc #wearlumia #wearables
The Bookof knowledge
@ladybooboo
TheMarfanFoundation
@marfanfdn
The Marfan Foundation works to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.
Leslie
@mommamia62
kaarthick shankar
@kaarthick
Youssef Maalouf
@ymaalouf
CCNA
@congenitalcna
This is the Congenital Cardiac Nurses Association UK
El sótano de @nit@
@elsotanodeanita
La vida no se mide por el numero de veces que respiramos, sino por los lugares e instantes que nos quitan la respiracion
Julie De Backer
@judbacke
Genetic Cardiologist @uzgent @ugent | Interest in #ACHD and #Marfan | FESC @escardio
Sergio
@sergioskalistyy
Think Heart
@thinkheartuk
Raising awareness and understanding of congenital, inherited and acquired heart conditions in babies, children and young people.
Wei-Guo Ma, MD
@dr_ma_of_pumc
A heart surgeon, with genuine sympathy and indeed love for patients, has sound judgments matched by courage in action and technical proficiency
Laura Collier
@lauracollier78
Dominik Gardáš
@dominikgardas
Dr Stephen T Webb
@stephen_t_webb
Past President @ICS_updates 🇬🇧 🩺🥼Consultant in Intensive Care @RoyalPapworth Cambridge 🏥 Follow for🫀🫁🚴♂️🦋🌳🍪⚔️☘️ Views=own
Gareth Owens
@icarus1054
Welsh Physicist, Chartered IT Professional & Executive; also singer, genealogist, classic BMW enthusiast, #AorticDissection survivor & Patient Advocate
Tara Mastracci
@aorticsurgeon
🇨🇦 Vascular Surgeon @Bartshealth in London… views are my own, as evidence-based as possible & focus on addressing health inequity in vascular surgery outcomes
Autism life
@lifeautism
mum of 5 children four boys one girl X my oldest son has autism we have had a long hard struggle but he has come out on top he does me proud every day xx
Giovanna
@ggrc1976
Jack Perryman
@perrymanjack
まこ
@mako_yamepi
Dagim Leykun
@dagim_leykun
Vascular Surgeon | General Surgeon 📚 Assistant Professor | 🌟 Dedicated to Excellence in Surgery | 🌍 Volunteering for Impact.#VascularSurgery #MedEd
Annabelles Challenge Vascular EDS Charity
@ajschallenge
We support patients & families touched by #VascularEDS working with NHS EDS Service. Proud recipients of The Queen’s Award. VascularEDS.org 🧬
Ele@montañes
@elemdzara
Cardiologa infantil H.12 octubre.
Aung Oo
@mraungoo
Prof of Cardiovascular Surgery | Founder of UKAS | North London Lead and Pan-London Co-Lead Complex Aortovascular Surgery, Barts Heart Centre
Gail Humphreys
@gailhumpy
pizza making paramedic
Itzi #SinCienciaNoHayFuturo
@itziaellac
Lisa Cheyne
@lisacheyne1
Medico-Legal Manager
alistair pagnamenta
@alistairp2011
Human genetics researcher based at University of Exeter
Beth Steckler (she/her)
@purplemamabear
Focused on improving healthcare for patients & caregivers & medical professionals. Patient advocate, patient engagement. Believes kindness CAN change the world.
Saleem Jahangeer
@jahangeer_sal
Consultant Cardiac and Aortic Surgeon
Dr Joyee Basu PhD
@basujoyee
Cardiology Consultant | Former @CRY_UK Research Fellow | Editor, Oxford Handbook of Cardiology 3rd edn. #sportscardiology #HF #ICC #AI #DigitalHealth
Anthony
@tobztkeh
Computer GEEK
ClinRheumatol
@clinrheumatol
Clinical Rheumatology - Journal of the International League of Associations for Rheumatology 2023 Impact Factor: 2.9 Editor-in-Chief: Prof. Adewale Adebajo
BartsGUCH
@bartsguch
We are the Grown Up Congenital Heart Disease (GUCH) team @NHSBartsHealth. Please follow us for the latest news about the service. No clinical queries please.
Yasser Naceri
@yasser_naceri
Habuyuyumi
@habuyuyumi1987
ハブユユミ
Barts Aortic Surgery
@bartsaorta
Official page for the Aortic Surgery service at St Bartholomew’s Hospital, London || Account run by Ana Lopez-Marco, Consultant Cardiac and Aortic Surgeon
Güler Arzuman
@guler_arzumann
Hak geldi, batıl ortadan kalkmaya mahkumdur. 17/81
THINK AORTA Global
@think__aorta
Official worldwide THINK AORTA campaign to improve the diagnosis and treatment of acute #AorticDissection, founded and led by @AorticDissectUK.
Joseph Coselli, MD
@jcoselli_md
Professor, Executive Vice-Chair Division of Cardiothoracic Surgery, Michael E. DeBakey Dept of Surgery, Director Thoracic Surgery Training Program @BCM_Surgery
Haleema Saadia 🍉
@haleemasaadia_
Mother & Carer | Student | Patient Advocate | Marfan Syndrome | Bee Keeper 🐝 This my personal page hence represents my personal views 😊
Just a cat guy 🐈⬛🐈⬛🐈⬛ Jason Minot
@minotjason
Cat-father Est. 1990 🐾Bruzer🐾Missie🐾Diego🐾Lottie🐾Simba(MIA)😢🐾Nala🐾💪🐈⬛🌈Twiglet🌈Lottie snr.🌈Roly🌈Bow🌈
Nate Michael
@chickenbristle2
Max
@maxtrader60
Cathy Jordan
@cathyjo98390036
Boring retired architect living the good life in rural Arkansas.
E. Alejandro
@ealejandrozv
Waking the flock up 😎🌅#8:32
@wakingtheflock
Shining a light on corruption. Challenging the narrative to help wake the flock up. #shinebright #askquestions #teamtruth #banthejab #biglies #EndtheFed
左青龙
@zuqnglng660109
Aortahub
@arturaortahub
Meeting place for professionals interested in Aortic Diseases Project developed by international expert: Artur Evangelista Updates, interviews, clinical cases
みかん
@mikanl_n
ロイス・ディーツ症候群 / 指定難病/ 腹部大動脈瘤 / 大動脈弁閉鎖不全症 ★体験談はブログへ★
Looshewd
@looshewdm_uhfw
Bomma
@bomma1068912
ipek
@ibeg8019
Atamın izinde
Charles Marques Lourenço
@charleslourenco
Clinical Geneticist Neurogenetics and Hereditary Metabolic Disorders Specialist
Kirsty Widdowson
@kirstywiddowson
Starble
@starblehq0h
blmac
@blmacblack
R_is_for_Rare
@risforrare89018
working to highlight rare genetic and rare health conditions
Shinorez
@shinorezv4fb
Lucy Atkinson
@luandra2505
Aortic Dissection Awareness UK & Ireland
@aorticdissectuk
The national patient charity for #AorticDissection. Raising awareness, providing support, improving care, enabling research. Registered charity number: 1198617
Dr Tootie Bueser💙
@2tbueser
Dir for N&M @SEgenomics | Nurse rep @AiccUK council | Trustee @cardiomyopathyUK | NIHR SCP Researcher & CDRF & NIHR70at70 alum | #cardiogen Nurse
JuanC Quijano-Campos💙
@jcquijanocampos
HEE/NIHR Clinical Doctoral Research Fellow (@QMULWHRI) and Honorary Clinical Research Fellow (@BartsHospital & @RoyalPapworth) | Nurse | All views my own
SIMA Asociación
@sima_asociacion
#SIMA es una Asociación Nacional sin ánimo de lucro, formada por los afectados por el #SíndromedeMarfan y sus familiares. Más de 260 familias
VASCERN
@vascern
Gathering the best expertise in Europe to provide accessible cross-border healthcare to patients with rare vascular diseases #ERNeu #RareDiseases
BCCA
@bcca_uk
BCCA aims to support & represent medical professionals whose interest is in the practice or research of CHD in the adult or heart diseases in the fetus or child
Ryan Rodarmer, MS 🧬♥️
@3rscardiogc
Director @VEDSMovement, @MarfanFdn | Veteran Cardio GC | Type A #AorticDissection survivor due to unknown syndrome | Opinions are my own. #AortaEd
IonaKTulloch
@ionaktulloch
Scruffy nature-loving writer, marketeer, runner, insomniac, mother, sister, daughter, friend, colleague, maid, gardener, therapist, taxi driver...