So we had 3 house members goes against ALS yesterday… Who are the 4 Senators to step up and co sponsor and help get this passed! Social media thank you’s will be plentiful!

1/ It has been just over a year since the data from the Phase 3 trial of the NurOwn trial was labeled a "failure". I was lucky enough to have completed that trial. Patients were disappointed to see the tepid reaction from the #ALS community, despite the anecdotal evidence, plus..

One of the most inspiring people I follow. Follow him! He will inspire you too!

Honored to have President Biden share our family's personal story and the story of this patient led movement. Honored to walk with the bravest souls on earth in this fight to stay alive. Let this be the first generation of ALS survivors. #NeverGiveUp

President Biden signed #ACTforALS into law. We are thrilled to celebrate this enormous step forward. Congratulations to those waging the fight against #ALS for making today possible. We look forward to swift implementation as we continue working to deliver new treatments. #ENDALS

Congrats to the Monti Track Teams on their home Victories last night over TriValley, SW, Eld, LM/R. Both Teams improve their Record to 5-0! Monticello Athletics Monticello Schools Monticello HS RJK MIDDLE SCHOOL

When the director of No Ordinary Campaign started working on it, he looked me in the eyes and said, “You will be alive to see it.” He was right. And now it’s real. I hope you will check out the new site and share far and wide our story of hope made real. noordinarycampaign.com

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It’s Friday, and I have amazing news to share about No Ordinary Campaign: After 3 years of work, No Ordinary Campaign will have its world premiere at the Chicago Film Festival and then play 2 nights at the Heartland Film Festival!!! If you have not seen it yet, watch the trailer below👇.

Jennifer died of 100% FATAL #ALS yesterday CONGRESS, ALS devastation continues EVERY DAY IN EVERY COMMUNITY & the incidence is increasing Dying ALS NOW & FUTURE DIAGNOSED NEED Congress to DEMAND Dr. Robert M. Califf FDA Biologics grant an AdComm hearing for safe/effective #NurOwn.

Michael, diagnosed with #ALS at 37 years old, died WITH NO CHANCE OF SURVIVAL. HOW MANY MORE HAVE TO DIE before Dr. Robert M. Califf FDA Biologics treats 100% FATAL ALS with the same URGENCY/FLEXIBILITY as cancer treatments? Congress, DEMAND an #AdComm hearing for safe/effective #Nurown.

#ALS Warriors are some of the strongest people on Earth. But Warriors need a weapon to fight. #NurOwn should be in every ALS Warriors reach! The U.S. FDA has the arsenal but are ignoring the war. They think the "knives aren't sharp enough". ANYTHING is better than NOTHING! #ENDALS

We are connected always 🌹🌙❤️‍🩹 My sister JamieRoseBerryy should be alive. #ALS, #FDA & the ALSA withheld HOPE. JAMIE ROSE BERRY never gave up but even the strongest Warrior needs a weapon in battle. #NurOwnWorks but the arsenal is behind FDA walls. #diedwaiting 💔🌈 #ENDALS

Nurown works and needs your voice. Do it #NUROWN #Tofersen

.U.S. FDA the #ALS community delivered you a petition to grant #NurOwn a transparent and informative AdCom three months ago. While we wait, people have died from this 100% fatal disease. Provide the flexibility & speed you promised for ALS. Schedule. The. AdCom. #NurOwnworks

This is the same procedure for injecting #Nurown for anyone who doesn't know. Tofersen and Nurown are both delivered by intrathecal injection which usually takes no more than 5 minutes. Intrathecal injection means into the spinal fluid BELOW the spinal cord.