Kelly Barber (@kellybarber069) 's Twitter Profile
Kelly Barber

@kellybarber069

Sister, cousin, aunt, friend and dog mom. Battling ALS. Miz Independent.

ID: 1362529270166347778

calendar_today18-02-2021 22:28:06

131 Tweet

190 Followers

154 Following

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

. Senator Todd Young "Everything in my life I owe to God, family, Naval Academy & U.S. Marines" Now #Veterans w #ALS are depending on you to fight for their lives. Sponsor #S1813 so they can get drugs stuck in clinical trials. #ACTforALS VoteVets youtu.be/1cQye7CZpmw #Hoosiers

AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

Q: Crashing #zoom: Can you give Daddy medicine to make his body feel better? A: Yes they can Rae, by passing #ACTforALS - #S1813 Mark Warner Tim Kaine The Virginian-Pilot Richmond Times-Dispatch The Roanoke Times fredericksburg.com #GirlDad #AllIWantForChristmasIsYou #Christmas #ChristmasGiftIdeas

Q: Crashing #zoom:  Can you give Daddy medicine to make his body feel better?

A:  Yes they can Rae, by passing #ACTforALS - #S1813

<a href="/MarkWarner/">Mark Warner</a> <a href="/timkaine/">Tim Kaine</a> 
<a href="/VirginianPilot/">The Virginian-Pilot</a> <a href="/RTDNews/">Richmond Times-Dispatch</a> <a href="/roanoketimes/">The Roanoke Times</a>
<a href="/NewsintheBurg/">fredericksburg.com</a>

#GirlDad 
#AllIWantForChristmasIsYou 
#Christmas #ChristmasGiftIdeas
AZ Latina ☮️🌊🟦 (@avoice4als) 's Twitter Profile Photo

"Both biological & clinical signals of a treatment effect" ~ Dr Merit Cudkowicz #NurOwn • Clinical data - "robust & clinically meaningful benefit" • Biomarker data - "significant robust & sustained changes across multiple pathways" FDA Biologics @califf001 ir.brainstorm-cell.com/2021-12-13-Bra…

"Both biological &amp; clinical signals of a treatment effect"
~ Dr Merit Cudkowicz

#NurOwn
• Clinical data - "robust &amp; clinically meaningful benefit"
• Biomarker data - "significant robust &amp; sustained changes across multiple pathways" 

<a href="/FDACBER/">FDA Biologics</a> @califf001
ir.brainstorm-cell.com/2021-12-13-Bra…
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

There is no time to waste BrainStorm! #ALS patients are suffering and dying EVERY DAY while denied access to safe/effective #Nurown. The community needs you to ACT C Lebovits. #FileTheBLA NOW! Ralph Kern #DyingWaiting

Lesha Jett (@imlolly713) 's Twitter Profile Photo

C Lebovits @CatalentPharma C Lebovits BrainStorm @CatalentPharma Positive forward and continuing efforts- thank you. Please FILE BLA asap! Let pALS keep HOPE going! We can't wait! Each life is so important to so many... my sister needs #NurOwn ASAP! #filetheBLA #BerryStrong #endALS

Sarah Nauser (@sarahnauser) 's Twitter Profile Photo

The day I received my #ALS diagnosis, one of the first things I said to my doctor was, "Why couldn't it be cancer? At least I would have a chance." Isn't sad we aren't given everything possible to fight this disease? BrainStorm #FileTheBLA #FightLikeAGirl

Brian Wallach (@bsw5020) 's Twitter Profile Photo

If you follow me you know I have ALS. That ALS is 100% fatal. And that for the first time in 160 years patients like me have reason to hope. Please join the more than 14,000 people who have signed this petition in under 24 hours. Help make hope real. iamals.org/action/brainst…

Kelly Barber (@kellybarber069) 's Twitter Profile Photo

Me and my friends thought about having a drinking contest whenever the word “like” was used on The Bachelor. We just counted because we would be drunk after the first conversation.

Sandy Morris (@sandymorris333) 's Twitter Profile Photo

I'm still alive b/c of NurOwn I'm officially 5 years from symptom onset Only 10% of us make it to that milestone I know exactly why my family & I were able to celebrate this anniversary C Lebovits Ralph Kern Mary Kay Turner Stacy Lindborg David setboun please file the BLA #NurownWorks

I'm still alive b/c of NurOwn
I'm officially 5 years from symptom onset
Only 10% of us make it to that milestone
I know exactly why my family &amp; I were able to celebrate this anniversary
<a href="/Cylebo/">C Lebovits</a> <a href="/ralph_kern/">Ralph Kern</a> <a href="/MaryKayTurner1/">Mary Kay Turner</a> <a href="/StacyLindborg/">Stacy Lindborg</a> <a href="/DSetboun/">David setboun</a> please file the BLA
#NurownWorks
Kelly Barber (@kellybarber069) 's Twitter Profile Photo

Over the last 7 months my health has declined rapidly. I’m no longer able to get in and out of bed on my own. I can stand but walking is very hard. Just a few steps takes everything I have. My breathing has diminished. I’ve lost all hope HELP BrainStorm

No More Excuses ALS Watchdogs! (@als_now) 's Twitter Profile Photo

#ALS patients have a short time left to join the push to help avert one of the biggest mistakes in #ALS' history. Since #NurOwnworks, its loss would set ALS HOPE back a decade! ➡️ Join the #NurOwn fight. Ask FDA Biologics to honor your right to speak! This is it, pALS. #NoAdComNoVoice

Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

Kristin & her 2 boys have been left WITH NO HOPE as #ALS ravages her body. #DyingWaiting Congress, don't allow the regulatory RIGIDITY of the FDA Biologics to kill hope & deny scientific debate on safe/effective #Nurown. Dr. Robert M. Califf, #NoAdComNoVoice @RepAnnaEshoo @SenatorBraun

Kristin &amp; her 2 boys have been left WITH NO HOPE as #ALS ravages her body.  #DyingWaiting

Congress, don't allow the regulatory RIGIDITY of the <a href="/FDACBER/">FDA Biologics</a> to kill hope &amp; deny scientific debate on safe/effective #Nurown.

<a href="/DrCaliff_FDA/">Dr. Robert M. Califf</a>, #NoAdComNoVoice 

@RepAnnaEshoo @SenatorBraun
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

.Dr. Robert M. Califf, how many more have to bury loved ones before the FDA Biologics treats #ALS with the same urgency/flexibility as oncology treatments? Bernie died of #ALS WITH NO CHANCE OF SURVIVAL. Congress, tell the U.S. FDA to grant an #AdComm hearing for safe/effective #Nurown.

.<a href="/DrCaliff_FDA/">Dr. Robert M. Califf</a>, how many more have to bury loved ones before the <a href="/FDACBER/">FDA Biologics</a> treats #ALS with the same urgency/flexibility as oncology treatments?

Bernie died of #ALS WITH NO CHANCE OF SURVIVAL.

Congress, tell the <a href="/US_FDA/">U.S. FDA</a> to grant an #AdComm hearing for safe/effective #Nurown.
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

When you see how quickly #ALS takes our fierce advocates (JamieRoseBerryy Scott Smith Michael Moutsoulas, etc), it's easy to see why progress in ALS is so difficult. Corrupt The ALS Association leadership for years has left dying ALS patients/loved ones to fight for #Nurown alone

When you see how quickly #ALS takes our fierce advocates (<a href="/JamieRoseBerryy/">JamieRoseBerryy</a> <a href="/ScottFightsALS/">Scott Smith</a> 
<a href="/MMoutsoulas/">Michael Moutsoulas</a>, etc), it's easy to see why progress in ALS is so difficult.

Corrupt <a href="/alsassociation/">The ALS Association</a> leadership for years has left dying ALS patients/loved ones to fight for #Nurown alone
Shah Minokadeh, M.D. (@minoshah) 's Twitter Profile Photo

16-year-old Ben died of #ALS WITH NO CHANCE OF SURVIVAL The incidence of #ALS keeps increasing & younger & younger people are afflicted #Congress MUST tell Dr. Robert M. Califf to end the regulatory RIGIDITY of the FDA Biologics for a disease with NO SURVIVORS #NurownWorks #NoAdComNoVoice

16-year-old Ben died of #ALS WITH NO CHANCE OF SURVIVAL

The incidence of #ALS keeps increasing &amp; younger &amp; younger people are afflicted

#Congress MUST tell <a href="/DrCaliff_FDA/">Dr. Robert M. Califf</a> to end the regulatory RIGIDITY of the <a href="/FDACBER/">FDA Biologics</a> for a disease with NO SURVIVORS

#NurownWorks #NoAdComNoVoice