Kelly Barber
@kellybarber069
Sister, cousin, aunt, friend and dog mom. Battling ALS. Miz Independent.
ID: 1362529270166347778
18-02-2021 22:28:06
131 Tweet
190 Followers
154 Following
. Senator Todd Young "Everything in my life I owe to God, family, Naval Academy & U.S. Marines" Now #Veterans w #ALS are depending on you to fight for their lives. Sponsor #S1813 so they can get drugs stuck in clinical trials. #ACTforALS VoteVets youtu.be/1cQye7CZpmw #Hoosiers
Q: Crashing #zoom: Can you give Daddy medicine to make his body feel better? A: Yes they can Rae, by passing #ACTforALS - #S1813 Mark Warner Tim Kaine The Virginian-Pilot Richmond Times-Dispatch The Roanoke Times fredericksburg.com #GirlDad #AllIWantForChristmasIsYou #Christmas #ChristmasGiftIdeas
"Both biological & clinical signals of a treatment effect" ~ Dr Merit Cudkowicz #NurOwn • Clinical data - "robust & clinically meaningful benefit" • Biomarker data - "significant robust & sustained changes across multiple pathways" FDA Biologics @califf001 ir.brainstorm-cell.com/2021-12-13-Bra…
There is no time to waste BrainStorm! #ALS patients are suffering and dying EVERY DAY while denied access to safe/effective #Nurown. The community needs you to ACT C Lebovits. #FileTheBLA NOW! Ralph Kern #DyingWaiting
C Lebovits @CatalentPharma C Lebovits BrainStorm @CatalentPharma Positive forward and continuing efforts- thank you. Please FILE BLA asap! Let pALS keep HOPE going! We can't wait! Each life is so important to so many... my sister needs #NurOwn ASAP! #filetheBLA #BerryStrong #endALS
The day I received my #ALS diagnosis, one of the first things I said to my doctor was, "Why couldn't it be cancer? At least I would have a chance." Isn't sad we aren't given everything possible to fight this disease? BrainStorm #FileTheBLA #FightLikeAGirl
Me and my friends thought about having a drinking contest whenever the word “like” was used on The Bachelor. We just counted because we would be drunk after the first conversation.
I'm still alive b/c of NurOwn I'm officially 5 years from symptom onset Only 10% of us make it to that milestone I know exactly why my family & I were able to celebrate this anniversary C Lebovits Ralph Kern Mary Kay Turner Stacy Lindborg David setboun please file the BLA #NurownWorks
Over the last 7 months my health has declined rapidly. I’m no longer able to get in and out of bed on my own. I can stand but walking is very hard. Just a few steps takes everything I have. My breathing has diminished. I’ve lost all hope HELP BrainStorm
I’m just sick! To just flat out deny #NurOwn is criminal. FDA Biologics Holly Fernandez Lynch The ALS Association all have blood on their hands. C Lebovits should resign. Fuck all of you! #ALS
#ALS patients have a short time left to join the push to help avert one of the biggest mistakes in #ALS' history. Since #NurOwnworks, its loss would set ALS HOPE back a decade! ➡️ Join the #NurOwn fight. Ask FDA Biologics to honor your right to speak! This is it, pALS. #NoAdComNoVoice
Kristin & her 2 boys have been left WITH NO HOPE as #ALS ravages her body. #DyingWaiting Congress, don't allow the regulatory RIGIDITY of the FDA Biologics to kill hope & deny scientific debate on safe/effective #Nurown. Dr. Robert M. Califf, #NoAdComNoVoice @RepAnnaEshoo @SenatorBraun
.Dr. Robert M. Califf, how many more have to bury loved ones before the FDA Biologics treats #ALS with the same urgency/flexibility as oncology treatments? Bernie died of #ALS WITH NO CHANCE OF SURVIVAL. Congress, tell the U.S. FDA to grant an #AdComm hearing for safe/effective #Nurown.
When you see how quickly #ALS takes our fierce advocates (JamieRoseBerryy Scott Smith Michael Moutsoulas, etc), it's easy to see why progress in ALS is so difficult. Corrupt The ALS Association leadership for years has left dying ALS patients/loved ones to fight for #Nurown alone
16-year-old Ben died of #ALS WITH NO CHANCE OF SURVIVAL The incidence of #ALS keeps increasing & younger & younger people are afflicted #Congress MUST tell Dr. Robert M. Califf to end the regulatory RIGIDITY of the FDA Biologics for a disease with NO SURVIVORS #NurownWorks #NoAdComNoVoice