FYI #ALS families, there’s a relatively new telehealth service for pALS that I really wish was around to help me when I was first diagnosed. It’s called Synapticure and I’m honored to be on their advisory board. I ADVISE you to check them out! #endALS #FlexOnALS

#AMX0035 becomes the the third U.S. FDA approved drug for #ALS! This is a rare victory for this community and deserves celebration. #FlexOnALS 💪

.Jamie Smith & I have decided to accept in-home hospice services. My health took a turn for the worse and we needed to shift goals. This doesn’t mean I plan on dying in the near future. Some stay on #hospice long term. But I’m feeling the full weight of #ALS and could use some ❤️

1,227 comments and you better believe that through teary eyes I read EVERY. SINGLE. ONE. Wow. Just wow. #FlexOnALS

This one took everything I had. New #blog chapter tomorrow!

This is a very special #love letter to my youngest daughter and will be the prologue to the book! Up now on the #blog, link on my profile page. #FlexOnALS

Thank you for your response to my Hope letter. I was blown away by the expressions of love and great ideas to use going forward. #FlexOnALS 💪

In case you missed it… #FlexOnALS #blog flexonals.com/blog/8sng62ppo…

As a kid, I remember Pres Clinton saying bc of Pedro Zamora, we all knew someone who was living with AIDS.Scott Smith Brian Wallach are that for me with ALS. Michael J does it with Parkinson’s. Showing one’s life makes us all better. It’s important work. Many thanks. (((Judd Winick))) 🐀

Thank you Mayuri Om Saxena for your thoughtful gift! My #ALS warrior friend got me a kit to make molds of my hands or my and my girls’ hands holding. Which do you recommend?

#TBT to last Halloween where I was still cool cause I could talk and go really fast. Cut to last night and Iris matter ‘o factly told me I was only going to get sicker and then die. The therapy is working. 😭

I’ve been so busy writing I forgot how beautiful Falls are in Kansas City! #FlexOnALS

Today would normally be a #blog post day but I’m punting it to later this week on behalf of #Halloween. I want to enjoy all the amazing costumes coming across my feed plus add a few of my own! 💀👻🎃

Wishing everyone had as fun filled of a Halloween as this Mer-family! #halloween #kingtriton #ariel #halloweencostume #flexonALS

Tomorrow’s (Wednesday’s) chapter will be like nothing you’ve ever seen out of my writing. I’m really excited/anxious to hear your thoughts regarding the direction I’m taking for the end of the book. 📖 #FlexOnALS #blog

For some reason my last tweet didn’t reach many of you, but I’m happy to announce that my latest chapter "A Date with Redemption" is now available on the blog. I have a link on my profile page. #FlexOnALS

Today was an up close reminder of how beautiful our hardwoods are. #FlexOnALS