Karen Lubell
@karenlubell
ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
ID: 43318726
29-05-2009 12:14:24
9,9K Tweet
3,3K Followers
1,1K Following
JK
@j_b_kennedy
Slowly getting there
Prof Doug Kell CBE #FBPE #FBPA🔶🇪🇺
@dbkell
I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE osf.io/pnxcs/ dbkgroup.org/longcovid/. Nothing I say is medical advice
Amanda Harrington-Vail
@amandahv37
I support the Clean Air Campaign #SafeAir4All #LongCovid #ProVaccine #ProMask #ProHepaFilter #CovidIsAirborne #ProCO2Monitoring #ProScience #ProVentilation
Jan ✝️🍼🚼🚼🚼🚼🇺🇸🇺🇸💥🇺🇸💥
@righteous_1776
Wife and Stay at Home Mommy to 4 little angels. Sewing, crafting, baking, gardening, servant of Christ and mommying and LOVING it!!
Sharon
@off1go
Amber
@amberw2307
I have issues with my tissues and all of my systems are nervous.
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
KerenL
@kerenll
Freelance writer. Regular contributor to the Guardian. Lover of open water swimming. And of Greece. Likes pools that aren't kidney-shaped and far horizons
Chris J. Maddison
@cjmaddison
ML faculty @UofT
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
christopher steel
@chrissteel99
Binita Kane
@binitakane
#LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Princess, The Tower
@apainprincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Eliana Uku
@elianauku
#LongCovid patient (mar '20); MBA candidate @StanfordGSB | ex @37angelsny @paypal @inturnhq
B Rob
@alpineopen
I read the science. I’ve had ME/CFS since 1989. From bad health to good. Only to be undone by a flu shot in 2016, severely & permanently worsening the disease.
A J
@i_aj_
Ogillar lögner och ögontjänare.
Wading through treacle
@kimisgubbed
Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Pam Bishop, PhD @pamelarbishop.bsky.social
@pamelarbishop
Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Migrating, find me here: @pamelarbishop.bsky.social
Naomi Harvey PhD #WearAMask
@naomi_d_harvey
Zoologist. She/her. 23yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ naomidharvey.bsky.social
SamR
@rogers_saundra
Freedom Matters. I am a patriot to my core and have no patience for the stupidity of democrats
scott muirhead
@muirhead9
Retired Trucker. Professional Driver. Guitar drums & Vocals. Love My Family and Love My Music! Pray For Peace!
Brian Fog
@useless_priest
ME, when triggered by SARS-CoV-2, is a subset of Long COVID | LC Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪 | No miners
Ted Monroe
@tedmonroe91
English teacher; writer; impatient long Covid patient
Dave W. Palmer, CD
@blue22dave
Veteran. Agriculture Canada. Cold War Veterans never acknowledged for their service. Psalm 73, Mark 7:7 21-23 & 8:38. John 13:34.
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
CoryM
@ab_sask
Father of two awesome kids, love the outdoors, oil and gas, just want to be left alone. #freedomalberta #ccfr
im ok(aeli) ♡
@yaimokae
health, climate, and global events nerd, google enthusiast, data digester, number cruncher, artist, and cat mom. 😷
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research)
@jefflubell_c19
I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Mommy Rheum
@mommyrheum
Advocating for Parents w/ Chronic Illness | Sharing Health Info/Research/Art/Recipes | Personal Rheumatic Experiences
Tess Falor, Ph.D. | Renegade Research
@tessfalor
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Shaney Wright
@shaneywright
@WestHam Fan ⚒ | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Cat Herding Science Nerd 🔬
@catladyactivist
Leave it better than you found it 🌏 plant-fueled 🌱 religion-free 🕊 green spaces 🌳 no war but a class war ✊ #CovidIsAIRBORNE 😷
Mary Humphrey
@hum08947320mary
EhlersDanlosSyndromeWarrior
@eds__warrior
#mEDS #hEDS #BlueSclera #MastCellActivationSyndrome #Migraines #Dysautonomia #Scoliosis #Lordosis #Erythromelalgia #JointPain #Itching #Inflammation
Andrea Grabovac
@meditationmama3
LongCovidPharmD
@organichemusic
Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. PharmD.substack.com ko-fi.com/LCpharmD
Brooke Monroe
@depressedplaid
Surviving is my super power.
Fiona
@fionakeyworker
Sarcastic expert patient with ehlers danlos +Gorlin's medical research read over 178,000 medical publications
Jamie Jones
@77jamiebeth
Mama of Reese and Bradley and currently fighting breast cancer. Ehlers Danlos, Chiari, Hashimotos, Thoracic Outlet, Tethered Chord and Scoliosis warrior!
Tim Hutton
@timhutt81376083
Not wrong to question things
Rob
@306diesel
Trudeau hater. Carney hater. UFC fan liberalism is a mental disorder. Conservative. Hunter. Proud Saskatchewan boy.
Dr Claire Taylor
@drclairetaylor
Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
PostX #UniteToFight2024
@teampostx
Co-Founder of @U2Fight_World /#UniteToFight2024//Long Hauler since 2020
Well Again
@wellagainco
Healed MCAS, Dysautonomia & multiple gut issues. Sharing the protocols, nutrition, supplements, detox strategies & lifestyle changes that rectified my health.
Shannon Zakaib
@shannonzakaib
Mark
@longcovidman
On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Rena Rudy
@rena_rudy
Fan of clean air, not Long Covid
lyn
@mb58903822
RN
jaf loki
@luki_jaf
Freedom figther love to free my home
Lou Thornley
@lou_vs_me
Prevention trumps harm. Ramp up pandemic protections. Might look well at times - but battery often flat. #MECFS #LongCovid
Aparachick
@aparachick
Be kind. Engage with others in a positive way. Don’t ever think you can’t make a difference. Mask up N95, share your Covid knowledge. Renewables NOT nuclear.
Szyzygy3
@szygy3
B
@hereforvaxtruth
EDS. Vax injury. Love wildlife and nature. Appreciate kindness and empathy. Got her head screwed on.
Teyroas
@teyroasjou
Laura Jane Grace
@laurie43922
Tonneyez
@tonneyezrv6q
Tauteroa
@tauteroayvb6w
Collecting bad habits like Pokémon cards 🃏✨
Patrick Ussher
@patrick_ussher
Author of 'Understanding ME/CFS & Strategies for Healing'. ME/CFS patient, advocate and YouTuber. Also composer of contemporary classical music.
Mateo John
@mateojohn179198
Military. ❣️✝️ Faith and family Love fitness 🇱🇷 u.s Army Reserve cha
The Middle Aged Zebra
@middlezebra
عمر صافي خليل
@mkhlyl62711
Navigate Chronic Pain
@navigatechronic
Our AI companion draws its knowledge from the world's leading pain specialists & therapists — always private, always judgment-free, always when you need it.
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Bob Fur
@rob9134
News World News Politics History Finance Science Business Technology Canada News Health US News Music Classic Rock, entrepreneur. 👎 bots, 💯 Conservative
Ismail Nazir
@ismailnazir_
#COYS
Stephen Davis
@planetearth_hd
Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid blue-sky address please add me @planetearth-hd.bsky.social
Maribeth
@mbfromma
DS
@thefringemin
Still testing positive for freedom 2023 🇨🇦
Webb Powell
@doubleyoupowell
Disabled by Long Covid w/ ME + POTS, Jan 2020. Crohn’s. Probably AuDHD.