
I AM ALS
@iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ID: 1064599477342875649
https://iamals.org/ 19-11-2018 19:21:09
6,6K Tweet
25,25K Followers
732 Following

ikanread
@ikanread
ikontainmultitudes but mostly here for Bravo and other reality 🗑️, law, and dog Twitter (she/her) - same handle on all the socials
PAB Goat Rodeo 🎪
@ingee
WITH FEAR FOR OUR DEMOCRACY- I DISSENT. I’M NOT GOING BACK. I fell out of the CoCoNut Tree 🥥 🌴
youdownwithldp
@youdownwithldp
🐅’06 fiercely in the service of humanity.
Katie Couric
@katiecouric
Journalist, @SU2C founder, podcaster, and co-founder of the eponymous Katie Couric Media. #1 New York Times bestselling author (Couldn’t resist)
ALS Advocacy
@alsadvocacy
ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Toronto Blue Jays
@bluejays
Lights Up. Let's Go 🇨🇦 Follow us on Facebook, Instagram, YouTube, Threads, Snapchat and TikTok: @BlueJays
Jill Brattain
@mommajillb
Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
bob verber
@bobverber
Coffee fueled Europe based Californian. Steelers, Cal Bears, SF Giants. Languages -- lots. Hair -- almost none. Opinions and poor attempts at humor are my own.
EveryLife Foundation
@everylifeorg
Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
The American Brain Coalition
@americanbrainco
Nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.
char barton
@charb33
988 National 3 digit suicide hotline # NEEDS TO BE FUNDED/ACTIVATED. Believer in democracy equal opportunity. Universal Health Care. UPDATE MEDICAL SYSTEMS
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
nai
@imonfiya7
A proud mom of 👭fighting ALS with my 28 year old daughter. #helpmybaby……I was able to lose 50 pounds and keep it off. I can help you too.💝
American Association of Caregiving Youth (AACY)
@aacyorg
The American Association of Caregiving Youth® is the only organization in the United States dedicated solely to addressing Caregiving Youth issues/solutions.
Carolyn MacDonald
@mommycita21

Walter Shelton
@wcs929

Steve Gleason - "Live Impossible"
@stevegleason
New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Girl Travelin Alone
@cathystandish

Tim Green
@timgreenbooks
Tim Green: NFL player; @NYTimes bestselling author;TV host/commentator @FOX, @NFL, GMA, @CourtTV, @ABC, @NPR; lawyer/coach/father of 5; newest book Final Season
MND Association
@mndassoc
Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Tim Tobin
@tptobin
Lawyer living with ALS. Husband. Father. Blessed.
Mayuri Om Saxena
@mayuri_saxena
40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 linktr.ee/mayurisaxena
anna hayward
@reikilady22
Farleigh Hospice /Buddhist healer 🙏West Ham Fan @BraintreeReserves @WestHamFoundation @Barkingside @EnsignOfficial @mndassoc @claptonfootball @hatfieldpeveral
Paul Seay
@paulseay2

Leanne Yacyshyn
@leanne_yacyshyn
Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Phil Rosenthal
@philrosenthal
Somebody Feed Phil Season 7 Streaming NOW on @Netflix | JUST TRY IT! Kids Book w/ Lily Rosenthal | Season 8 is coming!
Elizabeth Dole Foundation
@dolefoundation
Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.
Jamie Smith
@jamielw8
Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Hande Ozdinler
@drozdinler
Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Christina Warren
@christinahagi
Reader, writer, book whisperer, EFL teacher...
Team Drea Foundation
@teamdreafdn
Nonprofit & team of 200 athletes who have raised $750k to defeat ALS. Andrea is aiming to be the 1st person w/ ALS to do a marathon in all 50 states on a trike.
ALS TX DAD
@alsdads

Mark Voelkel
@markvoelkel8
JAG
Bridging Voice
@bridgingvoice
Non-profit enabling people w/ ALS to connect & communicate w/ family, friends & the broader world using assistive technology.
No More Excuses ALS Watchdogs!
@als_now
ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Dr. Nadia Sethi
@nadia_sethi
ALS we are coming for you. Widowed by ALS and still fighting it.
AZ Latina ☮️🌊🟦
@avoice4als
Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
terminal_coder 🏴☠️
@terminal_coder
programmer, developer. interest in neuroscience. grateful for each day.
Jean C9orf72
@jeanc9orf72
C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy @end_the_legacy
Ales for ALS
@alesforals
Since 2013, the #AlesForALS program has raised over $6,000,000 for ALS research at @alstdi. Cheers to beer and to helping #EndALS!
Jim Mourey
@jimmourey
Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awareness
Disability & Intersectionality Summit
@disummit_org
Updates and information for the Disability & Intersectionality Summit 2021
Lisa's Legacy for ALS
@lisalegacy4als
Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Leanna
@leannayenney
Living with and fighting ALS!
Chad Clardy
@chadclardy3
Family, sports, music, & love ~ Mental health advocate & professional. Son to ALS SURVIVOR! #EndALS
Her ALS Story
@heralsstory
We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
j.appel_photos
@photos_appel
Photography Dealer, Collector & Music Lover
Morris ALS Principles
@alsprinciples

HopOnACure
@hoponacure
Help us Hop On A Cure for ALS by donating at HopOnACure.org
No Ordinary Campaign
@noc_film
NoOrdinaryCampaign.com
Behan Strong
@behanstrong
Join our movement to raise funds and awareness for Bucknell Alum and former SJC DC boys bball head coach Pat Behan (@CoachBehanSJC) in his fight against ALS
Hummingbird Fund
@fundhummingbird
Ending ALS. Starting with all of us.
Your ALS Guide
@youralsguide
A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
EndTheLegacy
@end_the_legacy
Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Luke Deal
@lukedeal86
Embrace The Journey | @ontovictorynil Student-Athlete
Sandra W. Marlowe
@sandrawmarlowe
Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Forbes Tate Partners
@forbestate
Bipartisan public affairs firm driving outcomes for our partners that achieve their goals and build value in today’s policy and political landscape.
Sarah Parton (she/her)
@sarahkarpar
A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
beanish 🐝
@bean_ish
ALS traveler ... Wife mom sister aunt friend neighbor activist legumist deltiologist... Team Pete forever #ENDALS #ALSAwarenessMonth #iamals
Chris Snow
@chrissnowcgy
Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
SOD1 EndALS
@cehaddadnp
#ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Circleboom
@circleboom
Boom your Social Circle! We create intuitive and easy-to-use social media products for brands, SMBs and users to grow and strengthen their social network.
Andrea Koval
@jaxmadmom84
Mother - widow- angel mom- just surviving too see tomorrow
Becky Mourey
@becky_mourey
Wife, mom, musician, lover of life, living with and fighting to end ALS.
Mandi
@runningmama0522

Brian Wallach
@bsw5020
Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kaye
@kayesteinsapir
Proud mom. Writer. Survivor. Critical thinker. Truth teller. Community organizer. Bluesky, Substack, Threads & IG: @kayesteinsapir #TEAMMOLLY