hypermobility.org
@hmsacharity
Supporting people with connective tissue disorders or hypermobility related health problems, including but not limited to Ehlers-Danlos, Marfan & Stickler etc.
ID: 274723066
https://www.hypermobility.org 30-03-2011 22:41:13
18,18K Tweet
11,11K Followers
7,7K Following
🍉 Meredith Bear
@wittyvitale
30s, Queer, she/her, Covid-Informed, IC, love dogs and nature, therapist, gamer, avid reader, animation nerd, BLM, trans rights, abolish ACS
Jane Green MBE FCCT connective 😶
@jgjanegreenmbe
Chair @SEDSConnective MBE NeurodivergenceHypermobility I MA Ed. exAHT NED FELLOW I EFNA CAB Keynote Parent/Carer schooldropout Disabled often discombobulated 😶
Dr Clare Forder
@clforder21
Academic Subject Leader @BrightonBschool @uniofbrighton Interested in pre-professional identity development, wellbeing and sustainability. Prof Doc.
Christina Michaels
@christina5news
Specialist Producer @5_News | Prev @ITNproductions 'Vanished' series for Ch5 News Producer of the Year, @EditorsUK - 2022 | [email protected]
Über General
@missiecrissie
just me trying to have the semblance of a normal life while humanity crumbles around me | 🇵🇸 🇵🇸 🇵🇸 | BSc Sport Rehab bookmarks: #msk #anatomy #ultrasound
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
The Ehlers-Danlos Society
@theedsociety
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Scott Daniska
@scott_scientist
Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
John McDonnell
@johnmcdonnellmp
Labour MP for Hayes & Harlington and Former Shadow Chancellor.
American Syringomyelia & Chiari Alliance Project
@asapchiarisyrin
Providing research, education & support #syringomyelia 🧠 #Chiarimalformation⚕️#nonprofit established 1988 2025 Conference: Iowa City linktr.ee/asap.org
Kelly
@broadwaybabyto
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. When you know better - do better. 😷
Jeremy Corbyn
@jeremycorbyn
Independent MP for Islington North
Pippa Crerar
@pippacrerar
Political Editor, The Guardian @pippacrerar.bsky.social
Diane Abbott
@hackneyabbott
Re-elected as Labour MP for Hackney North & Stoke Newington. bsky.app/profile/did:pl…
Birdie, PhD, MA 🦚
@healthywv
Academic, counselor, mom 💉😷 physical activity advocate 🏃🏼♀️opinions and views are my own.❤️ Here to say nice things to strangers. [email protected]
Hanifah
@muslimah_han
Islam, disability, chronic illness, social justice & other stuff.
Professor Lara Bloom
@larabloom
President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️🌈Gay•She/Her• Views my own
Stickman Communications ltd
@stickmancrips
Stickman Communications Ltd: Creating understanding of disability related needs and issues. Run by Hannah Ensor. Now also on spoutible.
Lizzie
@hfarthingale
Jeannie Di Bon
@jdibon
Hypermobility & EDS | Movement Therapist | Author of "Hypermobility Without Tears" | jeanniedibon.com | Founder of The Zebra Club
Sarah Clark
@sarah_clark_84
❤️🐱 Postgrad Research MRes student-researching diagnostic delays. Patient Expert; Writer; Photographer; 🧘 Yogi; #hEDS #MALS #MCAS #POTS #LateDiagnosedAutism
Sian Berry
@sianberry
Green MP for Brighton Pavilion. Challenging Labour with new ideas at all levels since 2014. Champion of justice, the NHS, youth services, council homes. She/her
Richard Burgon MP
@richardburgon
Leeds born and bred. Labour Member of Parliament for Leeds East🌹
lan Byrne MP
@ianbyrnemp
MP for Liverpool West Derby. Parliamentary lead on #RightToFood & #HillsboroughLawNow ~Co Founder FSF #For casework pls email [email protected]
Nadia Whittome MP
@nadiawhittomemp
Labour MP for Nottingham East • Nottingham born and bred • she/her 🌹🏹🏳️🌈
EDS Awareness
@edsawareness1
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians.
Tina Marie Davidson
@tinamariedavids
Ehlers-Danlos Support UK
@ehlersdanlosuk
EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
Ed Davey
@edwardjdavey
Leader of @LibDems, husband, father, carer, and MP for Kingston & Surbiton. Promoted by Liberal Democrats, 1 Vincent Square, SW1P 2PN.
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
The Rheumatology Physio
@physiojack
Jack March Rheumatology Clinical Lead - Chews Health & @TPMPodcast Operations Director
OhTWIST.bsky.social now too
@h2ohtwist
Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.
Rosie Duffield MP
@rosieduffield1
MP for Canterbury, Whitstable and the Villages. [email protected] header: @moleatthedoor 💜🤍💚 temp pic: @Anna_Moffat
Rescued not Retired
@solderandflux
Chinchillas adopted from Wood Green Animal Shelter. Greyhound adopted from Norfolk Greyhound Rescue. 🐾🏡🌿🐶🐭🌊🌍 solderandflux.bsky.social
Simple Politics
@easypoliticsuk
Helping the UK have better conversations about politics. Click the link to help us keep SP on the road. Enquiries: [email protected]
Bushes
@jab1608
Professional SW background/Lived exp of poverty/care system.Long Covid/Auto immune/Immunosuppressed / Solid lefty! /Appalled at hostile environment in UK.
Zarah Sultana MP
@zarahsultana
Labour MP for Coventry South | [email protected] | she/her
Sparrow
@untonuggan
[email protected]. bendy (POTS. MCAS. hEDS?) + neurodivergent. ♿ queer. white. emperor of typos. brain fog zone ⚠️. they/them
Alex Lynn
@alex_lynn_apple
You don't have control over other people; you do have control of your feelings, emotions, actions and reactions. Advocate, green smoothie fan, healthy lifestyle
MSk Lab
@msklab1
The MSk Lab is in the department of Surgery and Cancer, based at Imperial College Research Labs - A group specialising in aspects of the musculoskeletal system.
Alissa Zingman MD MPH - ZebraMD
@doczing
PRISM Spine and Joint, prismsj.com, Research EDSRF.org, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
@OT_Skiff
@ot_skiff
Occupational Therapist (neurorehab) on pause due to #LongCOVID & #POTS (March 2020). @LongCovidPhysio AHP committee #FBLC
SEDSConnective
@sedsconnective
Hypermobility EDS / HSD Pain NEURODIVERGENCE ADHD Autism Dyspraxia TS Dyslexia Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain
Cortney Gensemer, PhD
@cortdoesscience
Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
collagen machine broke
@chronicallybeee
dyke | she/they | #FreePalestine
Jo Summers (joissummers att blue sky)
@joissummer
🐝 Mainly tweet about covid, the government and Brexit. Happy to stop once they follow a less destructive path. Politically homeless #FBPE #FBLC
Candace D.
@diaryofasickgrl
Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Yasir Dar
@yasirdar085
MEDICINE
Cheryl Myles
@cherylmyles16
Lex C
@lexi_hl
she/they
Crystal
@crystald_rd2b
Clinical & Private Practice Dietitian | MS Nutrition | Business Owner | Metal Head | Research Assistant | Interested in EDS, HSD, Gut Microbiome
Brian Leishman
@brianleishmanmp
@ScottishLabour MP for Alloa & Grangemouth🌹 For casework or enquiries please email - [email protected] or call 01259 726407
tejay nichols
@tejaykeki2
Artemisia Vandelay
@vande1vandelay
Mom, attorney, volunteer, critical thinker, & someone who is intellectually honest - not afraid to change thoughts & opinions when the data changes.
Blake Stephenson MP
@blake_midbeds
MP for Mid Bedfordshire | Shadow Treasury PPS | NextGenTory | Promoted by Blake Stephenson and Mid Beds Conservatives, both c/o 20 Wilson Close, SG5 3PN.
KJ
@sunstudiofl
Lucy Steel on SHEDtwt || SBR ANNOUNCED+in recov :D
@silverspoonml
“𝐖𝐨𝐧'𝐭 𝐲𝐨𝐮 𝐥𝐢𝐠𝐡𝐭 𝐦𝐲 𝐜𝐚𝐧𝐝𝐥𝐞~? “ DNI double f/os,, #SHEDtwt ❤︎︎𝐃𝐞𝐥𝐮𝐬𝐢𝐨𝐧𝐚𝐥 𝐒𝐥𝐮𝐭❤︎︎ ☆SH Recovery☆
GC
@thepotspostman
Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness
Steve Witherden MP
@switherdenmp
Dad, husband, teacher. Welsh Labour MP for Montgomeryshire and Glyndŵr. Any casework or questions please email me directly at [email protected]
Minghao Gong
@minghaogongd960
Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
Neil Duncan-Jordan MP
@neilforpoole
Labour MP for Poole 🐬🌹 For casework & enquiries, please email [email protected]
GodsZebra
@godszebra
Proud southern boomer, living with EDS (classical type) & trying to make sense of a world gone wild. Conservative Independent. 🚫DMs 🚫Bitcoin ✝️ 🐾🐶🐈🐦
BridoTyreBhoy
@brijaleo
Genuine Opposition, Real Alternative and True Third Way
Kirsty
@kirstypaedsacp
All views are either my own or backed up with research!!!
Dart Mouthy
@amylspurway
Gettin’ the fuck outta here.
Bea is Chronically Persisting✨
@be_kinderr
Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Ru 🌸♿️ (she/they) 🎀
@rollwithru
queer disabled activist who is a lover of all thinks pink 🩷🌸🧚♀️🎀 ♡ cosplayer | streamer | activist ♡ 🌸for collabs/enquiries: [email protected]
Charis Hill | they/them | Free Palestine 🇵🇸
@beingcharisblog
Here for now. On other apps under the same or similar handle. Views are my own.
Hypermobility MD: Dr Linda Bluestein
@bluesteinlinda
🦓 Expert on Ehlers-Danlos, HSD, MCAS & Chronic Pain🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.