Hazel (@hazeloew) 's Twitter Profile
Hazel

@hazeloew

I am a Christian. I have had the neuroimmune disorder ME, Myalgic Encephalomyelitis, since 1991. From North Somerset, currently in County Down. Isaiah 40 v 31.

ID: 3873409697

linkhttps://www.oneagleswings.me.uk/ calendar_today05-10-2015 18:31:35

2,2K Tweet

210 Followers

80 Following

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From ME Research UK Evidence of impaired regulation of the opioid system in ME/CFS and fibromyalgia meresearch.org.uk/research/evide… “... the endogenous opioid system, a system central to pain regulation, may be dysregulated in people with ME/CFS/FM.” oneagleswings.me.uk #MECFS

From <a href="/MEResearchUK/">ME Research UK</a> Evidence of impaired regulation of the opioid system in ME/CFS and fibromyalgia

meresearch.org.uk/research/evide…

“... the endogenous opioid system, a system central to pain regulation, may be dysregulated in people with ME/CFS/FM.”

oneagleswings.me.uk

#MECFS
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From the ME Association MP Tessa Munt elected as the new Chair of the APPG on ME meassociation.org.uk/2026/01/mp-tes… “I have spoken to many living with ME and all they want is to be able to work and live full lives” oneagleswings.me.uk #myalgicencephalomyelitis #pwME #MECFS #MyalgicE

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From ME Research UK The gut microbiome and ME/CFS – what is the link? meresearch.org.uk/the-gut-microb… “microbiome changes in the gut could also explain the neurocognitive impairments, such as brain fog and memory issues, that people with ME/CFS have.” oneagleswings.me.uk #MECFS

From <a href="/MEResearchUK/">ME Research UK</a> The gut microbiome and ME/CFS – what is the link?

meresearch.org.uk/the-gut-microb…

“microbiome changes in the gut could also explain the neurocognitive impairments, such as brain fog and memory issues, that people with ME/CFS have.”

oneagleswings.me.uk

#MECFS
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London hospital still starving severe ME patient — biased medical approach to blame thecanary.co/uk/analysis/20… Far from stabilising her condition Savannah under their care is enduring a slow and excruciating death via dehydration and malnutrition oneagleswings.me.uk #MECFS

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Come, Thou Almighty King, Help us Thy Name to sing, Help us to praise: Father! all-glorious, O’er all victorious, Come, and reign over us, Ancient of Days. youtu.be/mgzRB4gEPf4?si… oneagleswings.me.uk #sundayhymns

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From ME Research UK Walk for ME 2026 meresearch.org.uk/walk-for-me-20… “The aim of Walk for ME is to get as many people as possible – especially the family and friends of those affected by ME – to do a sponsored walk..” Walk for M.E oneagleswings.me.uk #myalgicencephalomyelitis #MECFS

From <a href="/MEResearchUK/">ME Research UK</a> Walk for ME 2026
meresearch.org.uk/walk-for-me-20…

“The aim of Walk for ME is to get as many people as possible – especially the family and friends of those affected by ME – to do a sponsored walk..”

<a href="/Walk_4_ME/">Walk for M.E</a>

oneagleswings.me.uk

#myalgicencephalomyelitis #MECFS
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'ME and Long Covid have brought my children's lives to a standstill' bbc.co.uk/news/articles/… “… the Rosetta Stone study hopes to look for biomarkers and "decode the immunological profile" of both conditions.” oneagleswings.me.uk #myalgicencephalomyelitis #pwME #MECFS

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An algorithm’s watching me, I am not certain why, It sends advertisements for things I do not want to buy, It makes me feel uneasy, that upon me it has preyed, And if I could locate it, I would whack it with a spade.

Hazel (@hazeloew) 's Twitter Profile Photo

From ME Research UK Brain connectivity changes in ME/CFS – an article in the European Medical Journal meresearch.org.uk/brain-connecti… “researchers found distinct disruptions in how key brain regions coordinate during cognitive fatigue.” oneagleswings.me.uk #myalgicencephalomyelitis

From <a href="/MEResearchUK/">ME Research UK</a> Brain connectivity changes in ME/CFS – an article in the European Medical Journal
meresearch.org.uk/brain-connecti…

“researchers found distinct disruptions in how key brain regions coordinate during cognitive fatigue.”

oneagleswings.me.uk

#myalgicencephalomyelitis
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I need Thee every hour, Most gracious Lord: No tender voice like Thine Can peace afford. I need Thee, O, I need Thee; Every hour I need Thee; O, bless me now, my Saviour! I come to Thee. youtu.be/MDZl6tXZ7YE?si… oneagleswings.me.uk #sundayhymns

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From ME Research UK The impact of immunoglobulins from post-infectious ME/CFS on mitochondria meresearch.org.uk/the-impact-of-… "immunoglobulins from the blood of people with post-infectious ME/CFS caused disruption to the mitochondria of healthy endothelial cells” oneagleswings.me.uk

From <a href="/MEResearchUK/">ME Research UK</a> The impact of immunoglobulins from post-infectious ME/CFS on mitochondria meresearch.org.uk/the-impact-of-…
"immunoglobulins from the blood of people with post-infectious ME/CFS caused disruption to the mitochondria of healthy endothelial cells”
oneagleswings.me.uk
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From Open Medicine Foundation Annual Report for 2025 heyzine.com/flip-book/3767… “We’d like to reflect on the remarkable progress in 2025 made possible by our entire community—from researchers and volunteers to study participants, advocates, fundraisers, donors, and all who support our mission.”

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There is a fountain filled with blood Drawn from Emmanuel’s veins; And sinners, plunged beneath that flood Lose all their guilty stains. youtu.be/cERbUJNvjxo?si… oneagleswings.me.uk #sundayhymns

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Update on Savannah’s case in The Times. She has severe ME/CFS, has lost 30kg and eaten nothing since January 18. Sonya Chowdhury, CEO of Action for ME, describes the situation as “appalling” and says she is very worried Savannah could die. archive.ph/J3Xv3

Update on Savannah’s case in The Times. She has severe ME/CFS, has lost 30kg and eaten nothing since January 18. 

Sonya Chowdhury, CEO of Action for ME, describes the situation as “appalling” and says she is very worried Savannah could die.

archive.ph/J3Xv3
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From ME Research UK Dysautonomia Coxiella and ME/CFS meresearch.org.uk/dysautonomia-c… “… Coxiella burnetii infection may trigger persistent autonomic dysfunction, potentially contributing to the development of ME/CFS and syncope in affected individuals.” oneagleswings.me.uk #MECFS

From <a href="/MEResearchUK/">ME Research UK</a> Dysautonomia Coxiella and ME/CFS

meresearch.org.uk/dysautonomia-c…

“… Coxiella burnetii infection may trigger persistent autonomic dysfunction, potentially contributing to the development of ME/CFS and syncope in affected individuals.”

oneagleswings.me.uk

#MECFS
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From ME Research UK Claims of NHS inaction over specialist services for severe ME cases meresearch.org.uk/claims-of-nhs-… “A young woman, Savannah Victora-May, is in a critical condition due to very severe ME compounded by inadequate treatment in hospital” oneagleswings.me.uk #MECFS

From <a href="/MEResearchUK/">ME Research UK</a> Claims of NHS inaction over specialist services for severe ME cases

meresearch.org.uk/claims-of-nhs-…

“A young woman, Savannah Victora-May, is in a critical condition due to very severe ME compounded by inadequate treatment in hospital”

oneagleswings.me.uk

#MECFS
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From the ME Association New MEA‑Funded Study: Searching for Biological Markers in ME/CFS and Long Covid meassociation.org.uk/2026/02/new-me… “The ME Association is pleased to announce funding for a new 12-month research project ...” oneagleswings.me.uk #myalgicencephalomyelitis #MECFS

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From ME Research UK New research linking genetic traits with immune dysfunction in a subgroup of people with ME/CFS offers insights into disease heterogeneity meresearch.org.uk/new-research-l… oneagleswings.me.uk #myalgicencephalomyelitis #pwME #MECFS #MyalgicE

From <a href="/MEResearchUK/">ME Research UK</a> New research linking genetic traits with immune dysfunction in a subgroup of people with ME/CFS offers insights into disease heterogeneity

meresearch.org.uk/new-research-l…

oneagleswings.me.uk

#myalgicencephalomyelitis #pwME #MECFS #MyalgicE
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From Action for ME: Sequence ME & Long Covid launches actionforme.org.uk/sequence-me-lo… “Sequence ME & Long Covid is a £20 million research initiative designed to explore the root causes of ME & Long Covid using long-read, whole-genome sequencing.” oneagleswings.me.uk #pwME #MECFS

From Action for ME: Sequence ME &amp; Long Covid launches

actionforme.org.uk/sequence-me-lo…

“Sequence ME &amp; Long Covid is a £20 million research initiative designed to explore the root causes of ME &amp; Long Covid using long-read, whole-genome sequencing.”

oneagleswings.me.uk

#pwME #MECFS