The project page about Anna Higo's PhD on the hypermobile shoulder has been updated! A review paper has been published and ethics has now been approved for a survey that will go live soon so watch this space to take part! hedstogether.com/projects/suppo… Anna Higo

I canNOT wait to go through this!!! I’m TOO excited 😆💞🎉🥰💃🏼

eventbrite.com/e/ehlers-danlo… Announcing the most exciting opportunity for GPs this year! [Drumroll] Ehlers-Danlos Support UK are holding an afternoon event for FREE (thanks to a generous donor). I'm chairing alongside an amazing faculty. Workshop-based practical learning by GPs for GPs!

EDS UK invites UK-based GPs and GP trainees to a FREE educational event in London this November. The event will focus on how to spot hypermobility-related conditions in Primary care: ehlers-danlos.org/news/a-free-ed… #MedTwitter #MedEd #GPs #Hypermobility

NEW page on website! Surveys completed by people with hEDS/HSD (&similar) & healthcare professionals on their experiences & care from pregnancy to post-partum. THANK YOU to all who took part! hedstogether.com/projects/eds-m… Dr Gemma Pearce Emma Reinhold Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM @LMBell_ Paul Magee

Are you hEDS/HSD experiencing shoulder symptoms and living in the UK? Please take our 20minute survey exploring experiences and perceptions to the use of specialist orthotic clothing known as Dynamic Elastomeric Fabric Orthoses (DEFO). Please share and RT app.onlinesurveys.jisc.ac.uk/s/coventry/the…

Research into conservative management for hEDS/HSD with shoulder symptoms is severely lacking. Your participation will help shape future research 🙏. #HSD #hEDS #shoulders Dr Gemma Pearce Behnam Liaghat, PhD Jason Tallis Prof Shea Palmer Emma Reinhold Ehlers-Danlos Support UK hypermobility.org

Do you have hypermobile #EhlersDanlosSyndrome or a similar diagnosis? Do you have issues with your shoulder? Are you an adult living in the UK? Please complete this survey to let us know your experience & if you might want shoulder support or not 😊 app.onlinesurveys.jisc.ac.uk/s/coventry/the…

limbostate Dr Gemma Pearce Anna Higo hEDStogether Behnam Liaghat, PhD Prof Shea Palmer Jason Tallis Dr Sarah E. Bennett Sabeeha Malek, PhD Ehlers-Danlos Support UK The Ehlers-Danlos Society There are loads of possible diagnostic terms - listing them all would take up many characters, and probably still not cover all of them! - symptomatic hypermobility, jhs, hsd, bjhs, possible connective tissue disorder, heritable disorder of connective tissue……etc etc.

There's this new study which is for EDS and HSD with shoulders. My daughter's shoulder is always on the move😆 If anyone wants to do it SEDSConnective The Ehlers-Danlos Society Dysautonomia Intl. Crohn's & Colitis UK

Stickman Communications ltd limbostate Anna Higo hEDStogether Behnam Liaghat, PhD Prof Shea Palmer Jason Tallis Dr Sarah E. Bennett Sabeeha Malek, PhD Ehlers-Danlos Support UK The Ehlers-Danlos Society 👍 it also includes other older criteria versions like EDS hypermobility type (HT) and EDS type III 😊

Check out Anna Higo's blog with some fantastic news! Anna Higo In the blog she summarises a recent publication on shoulder treatments for hypermobility & launches a NEW SURVEY! Have a look, share with others and take part 😁❤ THANK YOU 🙏 hedstogether.com/annas-blog-abo…

Check this out 😃Please share the survey 🙏🏻 app.onlinesurveys.jisc.ac.uk/s/coventry/the… Jo Gibson Lennard Funk Chartered Society of Physiotherapy (CSP) Chrissy Holmes Emma Reinhold BendyBrain: Dr Jessica Eccles Jane Green MBE FCCT connective 😶

Our fabulous Anna Higo was interviewed for the telegraph recently about hypermobility. telegraph.co.uk/health-fitness…

Our survey on hypermobility and the shoulder is closing soon. This is a final push so please do take part and/or share! :) Participants need to be 18+ in UK with a hypermobile diagnosis like hEDS, HSD, EDS type III, EDS-HT, JHS. Find out more here app.onlinesurveys.jisc.ac.uk/s/coventry/the…

New publication! Free open access to all 😃 POTS is starting to get better recognition now it is associated with Long COVID but there is still not appropriate or consistent healthcare provided system wide. Read more here doi.org/10.1016/j.ijnu…

Fabulous new open access work by Helen Eftekhari Dr Gemma Pearce Sophie Staniszewska and Kate Seers in partnership with hEDStogether and PoTS UK 🎉🥳The first study to provide an in-depth understanding of the experiences of both people with #POTS and health professionals!!🌟

⭐️💻 Webinar tomorrow evening - Ask the Experts 💻⭐️ Tomorrow evening the hypermobility.org are hosting a free webinar with #PoTS expert Nurse Helen Eftekhari and expert Occupational Therapist JBOT - Jo Southall. Please see further details & how to sign up here: hypermobility.org/event-details/…

Fabulous to see Dr Gemma Pearce Dr Sally Pezaro PhD FRCM MSc SFHEA PgCAPHE RM & @ndholliday being celebrated as part of #WomenInScienceDay We have lots of fabulous women working in #STEM across #hEDStogether projects hedstogether.com/our-team/ Anna Higo Helen Eftekhari Sabeeha Malek, PhD @laurenmpurdy Emma Reinhold

NEW! Free fully accessible paper showing the results of running the rehabilitation intervention with and for people with POTS #posturalorthostatictachycardiasyndrome #feasibility #RCT bmjopen.bmj.com/content/15/2/e…