🦓🤳🏽Raise awareness on social media this EDS & HSD Awareness Month with the social media challenge!

How can I take part?

Use the 31 daily themes (shown in the images) as prompts for your social media posts, photos, or videos from May 1-31st. You can find all of the prompts and…

April is #OccupationalTherapyMonth . An occupational therapist can assess your safety at home and make appropriate recommendations. Everyone’s needs are different, so recommended modifications will depend on your personal challenges and level of physical functioning.

In the…

Dr. Ericson FAAOS FACS FAENS is an award-winning, board-certified #orthopedic hand #surgeon specializing in painful conditions that do not show on standard diagnostic tests. He has the largest operative experience with #EhlersDanlossyndrome (EDS) patients in the US.

Dr. Ericson…

April is #OccupationalTherapyMonth and today we're talking about service dogs.

Service dogs are trained to perform tasks to help people with disabilities. There are different types of service dogs that can be helpful to some people with a type of #EhlersDanlossyndrome (EDS) or…

I often talk about my mobility aids at school visits, and how much they enrich my life, these are my current favs. They are my finger splints, and they help keep my joints in line. They are fantastic especially when I’m tapping away at my next book (which I should be doing rn!)

The Ehlers-Danlos Society My occupational therapist changed my life with what she has done for my hands.

THANK YOU SO MUCH to all who supported this! I am so thrilled to have been able to volunteer my time as a yoga teacher (and my genetic potential to bend, and need to stabilise!) to raising funds for The Ehlers-Danlos Society. They are so supportive to me and many others.

#ehlersdanlos

Occupational therapy is such an important therapeutic for patients - learning how to adapt life’s basic tasks to better accommodate and alleviate symptoms is hugely helpful. Showering, driving, cooking, even getting dressed. Love OT!

👌🏿How can an occupational therapist help with hand issues?

🙌🏼Hand therapy offers a range of options to increase function, decrease pain, and protect the joints. Occupational therapists often specialize in treating the hands. Certified Hand Therapists (CHTs) are occupational…

An incredible £1,200 raised + gift aid - thank you so so much James Downs and your supporters!

Join Sherene Shalhub MD MPH, OHSU News, TheMarfanFoundation, and The Ehlers-Danlos Society for the NWGAAP Symposium. Saturday May 11th in Portlant, OR! Register here: bit.ly/NWGAAP2024.

So well stated!

It is so important to differentiate between rigid bracing and devices that offer support and allow for movement. Many times, we can use these tools to improve our functional capacity! 🧬🦓⚕️

#JointHypermobility

Susan Chalela The Ehlers-Danlos Society
Bauerfeind USA

It’s incredible that THIS episode has creeped to the #1 most downloaded episode on my podcast ⁦BendyBrain: Dr Jessica Eccles⁩! It’s a big deal for neurodivergent folks. Very grateful for the generosity of your time, advocacy & expertise! ⁦The Ehlers-Danlos Society⁩ 🦓

podcasters.spotify.com/pod/show/chris…

Our next virtual Let's Chat support group meeting starts in one hour on Zoom!⁠

Monday, April 8, at 7:00 pm ET (US & Canada) / 9:00am Australian Standard Time
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RSVP here: ehlers-danlos.com/event/lets-cha… #EhlersDanlosSyndrome #Hypermobility #Hypermobility SpectrumDisorder

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Looking forward tho this annual event, this time raising money for a very worthy cause #EDS awareness #EDS #hEDS The Ehlers-Danlos Society

🚴‍♂️ Join us for Aaron's 100-mile cycle ride at The Wine Country Century event on May 4th, supporting The Ehlers-Danlos Society.

🔗 Donate here: bit.ly/3xul3UI
🔗 Learn more: bit.ly/3PJMaBK

#MainStreetResearch

Disclosures: bit.ly/3TCc78H

Do you want to speak with other people who live with a type of Ehlers-Danlos syndrome (EDS) or hypermobility spectrum disorder (HSD)? Our next virtual Let's Chat support group meeting starts in one hour on Zoom!⁠

Sunday, April 7, 1:00 pm Eastern Time ehlers-danlos.com/event/lets-cha…
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Researcher applications are now open for the DICE EDS & HSD Global Registry!

The Ehlers-Danlos Society DICE Global Registry is an extensive repository of demographic, morbidity, and co-morbidity data from people of all ages who live with a type of Ehlers-Danlos syndrome (EDS) or…