PoTS UK
@UKPoTS
A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
ID:2525880114
https://linktr.ee/potsuk 26-05-2014 21:28:24
3,8K Tweets
7,1K Followers
3,7K Following
Dixie alerts Freya to PoTS collapses. Before Dixie, Freya had multiple hospital stays and self injuries.
Now, Freya has been able to return to Cambridge University, use public transport, shop and meet friends.
Freya says: 'I trust she will keep me safe.'
medicaldetectiondogs.org.uk/maad-informati…
Winnie alerts May to #pots collapses.
May says: “With Winnie I can meet people and go to uni or work without worrying that I'll faint without warning. She gives a 5 minute alert so I can either head off an episode or take action to mitigate its severity.'
medicaldetectiondogs.org.uk/maad-informati…
PoTS UK patron Cat Smith MP asks for your help to improve awareness and healthcare for people with #PoTS !
Please visit our website for further details and letter templates to send to your MP: potsuk.org/parliamentary-…
Thank you for your efforts! 💪🏻💜
#LongCovid #MECFS #EDS
Today is #LongCovid AwarenessDay
Most things in my life have become ‘before #COVID19 ’ or ‘after Covid’ when talking to others about things that have happened / my life. #POTS & #ME & #MCAS are being increasingly diagnosed with #LongCovid . Some days absolutely look like this… 🥹
For 3 years now I've been severely ill following a mild covid infection. I now have severe ME, POTS and MCAS. I'm bedridden and lie in a dark room all day unable to do anything. This is the reality of #LongCovid #LongCovid AwarenessDay