Fesca
@fscleroderma
Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
ID: 568404102
http://www.fesca-scleroderma.eu 01-05-2012 16:01:30
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Russo Partners
@russopartners
Public and Investor Relations for the Innovators in Healthcare and Technology
Rare Disease Day
@rarediseaseday
29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Edith Brown
@babyrider
EURORDIS-Rare Diseases Europe
@eurordis
An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Pulmonary Fibrosis Foundation
@pfforg
We imagine a world without pulmonary fibrosis. pulmonaryfibrosis.org
Lizette
@lmoros
La vida es un viaje, no un destino... (my views are my personal opinion, not from my employer)
PHA Canada
@phacanada
A patient support organization serving those affected by pulmonary hypertension (PH): a rare, incurable lung disease affecting up to 10,000 Canadians.
JointHealth
@acejointhealth
JointHealth™ : Your science-based source for easy-to-read arthritis info on treatments, research, and health policy news. Facebook: facebook.com/ACEJointHealth
Annals of the Rheumatic Diseases
@eular_ard
Annals of the Rheumatic Diseases (#1 research journal in Rheumatology). High quality, peer reviewed research.
Scleroderma Society of Ontario
@scleroderma_sso
We are committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma. #scleroderma #autoimmunedisease
Ciara McManus
@purpleciwi
Clinical Research at CERENOVUS. Problem solver, baker & painter. Living with #Scleroderma and #Raynauds. Diverse Abilities Advocate. They/Them 🏳️🌈🏳️⚧
Lupus Europe
@lupuseurope
Lupus Europe is the umbrella association of currently 32 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
EULAR
@eular_org
The European Alliance of Associations for Rheumatology. The registration for #EULAR2024 Congress is now open!
SRFCure
@srfcure
America’s leading nonprofit investor in medical research aimed at finding better treatments and, ultimately, a cure for #scleroderma.
Kevin Jeffery
@kayjay1954
NatRevRheumatol
@natrevrheumatol
Posts from the editors of Nature Reviews Rheumatology, the top review journal in the field, covering the latest advances.
Kate Betteridge
@k_betteridge
Living with rheumatoid arthritis. Passionate about effective patient engagement through patient information, social media, communication and user involvement
Maria Grazia Lazzaroni
@lazzaronim
MD Rheumatologist @ Spedali Civili Brescia | PhD @unibs_official | EUSTAR Board_Counsellor @EUSTAR_org | Fellow @ern_reconnet #SystemicSclerosis
SRUK | Scleroderma & Raynaud's UK
@wearesruk
Scleroderma & Raynaud’s UK is the only charity dedicated to improving the lives of people affected by scleroderma and Raynaud’s.
National Scleroderma Foundation Tri-State
@sclerodermats
We strive to raise awareness, support #scleroderma patients and raise funds for a #cure. sclerodermatristate.org
European Patients' Forum
@eupatientsforum
We are the leading voice of patient organisations in Europe. #EuropeForPatients
Professor Francesco Del Galdo
@delgaldofrances
Scleroderma Canada
@sclerodermacan
Scleroderma Canada is committed to promoting public awareness, supporting those affected by Scleroderma and funding research to find a cure.
Scleroderma Framed
@scleroframed
Gives more awareness for scleroderma in a positive and artisitic manner
Frances Hall
@fch22hall
Studied Medicine and, later, gained a DPhil at Oxford University. Consultant Rheumatologist at Addenbrooke's Hospital, Cambridge
Patient Chat
@patientchat
Join the Empowered #patientchat discussions bi-weekly on Fridays at 10amPT | 1pmET. All welcome. Hosted by @power4patients #epatient #ptexp #patientadvocacy
Community Directory
@shropinfo
The Shropshire Community Directory ... all the local information you need at your fingertips #SCD
A. E. Esclerodermia
@aeesclerodermia
ASOCIACIÓN ESPAÑOLA DE ESCLERODERMIA A.E.E., asociación sin ánimo de lucro constituida el 3 de febrero de 1995, en las Rozas (Madrid), de ámbito nacional.
Amanda LJ
@accessibilitylj
Accessibility Inclusion Consultant. President Scleroderma Victoria & Australia. Bilateral Amputee & person with Scleroderma. Views my own.
Souzi Makri
@souzmakri
Former Chair EULAR PARE, Cyprus League of People with Rheumatism Vice President, EUPATI Cyprus Chair
Norman Warrener
@tdssilvergloves
Silver Gloves, Silver Socks, Astec Insoles for Raynauds & Scleroderma Cold Hands and Feet. Using (fir) Far Infrared to keep your skin temperature at 37 Degrees.
Nicola SonnePedersen
@nsonnepedersen
Secretary Nestle Nordics #nestlenordic @nestlenordic #mywellness #ncouragers #nestlecrew #cph
Scleroderma Info
@sclerodermao
I am transitioning this account to Scleroderma Living @SclerodermaL. Please go to @SclerodermaL and follow us.
Scleroderma Fndtn GW
@sfgwdc
Scleroderma Foundation Greater Washington, DC Chapter is a nonprofit for people with scleroderma, their families & friends. Disclaimer: bit.ly/1pd5C9l
Søren Brostrøm
@sorenbrostrom
Dr. Dinesh Khanna
@sclerodermaum
👉University of Michigan Scleroderma Program leading the way through excellence in clinical care, teaching, & research #scleroderma tweets≠advice Follow≠endorse
Rosaria (Sara) Talarico
@saratalarico2
MD, PhD. Rheumatologist at the Azienda Ospedaliero Universitaria Pisana. ERN ReCONNET Scientific Coordinator. Working on Rare and Complex Diseases, Behçet.
ACR_Journals
@acr_journals
Official journals of the ACR: Arthritis & Rheumatology, Arthritis Care & Research, and ACR Open Rheumatology. SoMe Editor: Karen Costenbader, MD, MPH
World Scleroderma Foundation
@worldsclerofnd
The World Scleroderma Foundation is a non-profit, non-governmental foundation based in Switzerland, promoting scleroderma research and supporting patients.
Scleroderma India
@scleroindia
A Charitable Trust and Patient Support Group
StoryMD
@storymdhealth
StoryMD weaves your medical data into a contextualized, all-encompassing story that empowers you to track, understand, and reclaim control of your health.
Tânia Santiago
@tanialsantiago
Rheumatologist in @CHUC_Hospital, #CHUCSclerodermaClinic #Capillaroscopy, Member of @eustar_org Board, PhD, @UnivdeCoimbra @befmuc
Lesley Ann Saketkoo MD, MPH
@saketkoomd
#BLM 💜always. Interstitial lung disease, fibrosis,pulmonary hypertension, scleroderma, sarcoidosis, RA-ILD, myositis, patient-centered research & interventions
Ashima Makol MD
@ashimamakol
Rheumatologist, Assoc Professor & Vice Chair @MayoClinic Rochester #Scleroderma #Raynaud's #Capillaroscopy #MSKUS, Mom, Foodie, Traveller. Tweets are my own.
Prof. Vasiliki Liakouli
@vliakouli
Department of Precision Medicine, Rheumatology Unit, University of Campania, Naples - Italy
Alexandra Prosser
@inflammatorpt
ERN-LUNG
@ernlung
Maureen Sauve
@sauvemaureen
Lotta Håkansson
@ordforandelotta
Ordförande i Reumatikerförbundet. Kämpar för ett bra liv för alla reumatiker och lösningen på reumatismens gåta. I ständig rörelse, bokstavligt och bildligt
Scleroderma Kids
@sclerodermakids
Did you know that Kids Get Scleroderma, Too!? Learn more and be sure to check out our coloring book at 👇 #sclerodermakids #kidsgetsclerodermatoo
John
@sclerojohn
scleroderma Canada Executive Director
Scleroderma Manitoba
@mbscleroderma
Helping the scleroderma community in Manitoba connect through awareness, education, patient support and fundraising to support research. #youarenotalone
National Scleroderma Fdn. Florida - Puerto Rico
@sclerodermaflpr
The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education.
Scleroderma Sask
@saskscleroderma
Official Scleroderma Association of Saskatchewan. Follow us here for updates.
sjordan
@sjordan71458728
Scleroderma Awareness of Kansas City
@sclerodermakc
Scleroderma Awareness of Kansas City to educate and make people aware of scleroderma in their community.
Esclerodermia España ADEC
@asociacionadec
Asociación sin ánimo de lucro, de ámbito nacional. Creada el 27 de abril de 1.999. Declarada de Utilidad Pública. Orden 17 de julio de 2.008 (B.O.E. nº 172)
Sick With Optimism
@optimismsick
Journey with #ChronicIllness #Scleroderma #SSc #TMA #AutoimmuneDisease #CKD on #TPE - sharing info, opinion & #optimism; hoping to help others along the way☺️
Laura Andreoli
@lauraandreoli80
MD, PhD #Rheumatology | @EULAR_org ReHFaP Study Group #reproductivehealth #familyplanning #pregnancy | SoMe Advisor @ARD_BMJ | Proud mom of 12yrs-old Silvia 😊
Ana Vieira
@sjogrenpowerana
Sjögren’s ePAG. @eular_org PRP + Research Committee member. @SjogrenEurope @ern_reconnet @HarmonicSS_Proj @LPCDR82 @Agora_Platform #FOREUM SC member.
Sjögren Europe
@sjogreneurope
European Federation of Sjögren's Patient Associations: together to raise awareness. More visibility, attention & solutions for Sjögren's #SjögrenEurope
ERN-EYE
@erneyeeu
ern-eye.eu - ERN-EYE is a European Reference Network dedicated to Rare Eye Diseases.
World Duchenne Organization
@worldduchenne
Global organization to find a cure and viable treatment for those lives affected by dystrophinopathies: Duchenne and Becker Muscular Dystrophy. RT ≠ endorsement
ARMA
@wearearma
ARMA is the alliance providing a collective voice for the arthritis and musculoskeletal community in the UK. Sign up for our newsletter: arma.uk.net/nl
World Young Rheumatic Diseases Day (WORD Day)
@wordday_org
World yOung Rheumatic Diseases Day is an annual awareness event that takes place on the 18th of March. Register now: bit.ly/40Nb8ok