This #NationalVolunteerWeek , we're sending a heartfelt shoutout to the amazing Cure Crew of the Scleroderma Research Foundation! 🙌 Here are just a few of the creative Cure Crew members who raise awareness of #scleroderma and funds to find a cure. Thank you to ALL members!

#ThrowbackThursday to when Tracy Frech, MD, MSCI hosted “Understanding Scleroderma Vascular Biology” for the SRF patient forum: youtu.be/yTXg53ZQ0IY

Interested in new sessions like this one? Save the date for the 2024 Patient Forum on 6/3! It’s free & virtual—more info soon.

Not enough people know what scleroderma is and does. Even though it's very rare, everyone should know what to watch for as the first signs of scleroderma—including swollen or pufy fingers, joint pain, weight loss, cold sensitivity, & more. Learn more: bit.ly/45gjUw4

Share your #scleroderma life hacks on video! ✨ Create a short video and send it in. We'll feature as many as we can in our upcoming Patient Forum, 'Collaborating for a Cure,' and may even share some here on social media.

Learn More: bit.ly/3VqxxH2

Earlier this month, the Scleroderma Research Foundation hosted an international group of investigators to learn more about CONQUEST, our groundbreaking platform clinical trial, at the Systemic World Congress Meeting in Prague. Thank you all for gathering with us!

This past January, Carl Mayer hosted a special version of his #15dollargameshow on Instagram Live in memory of his long-time friend, Bob Saget—raising more than $3,100 for scleroderma research! Thank you SO MUCH from all of us.

SRF-funded researcher Dr. Howard Chang shares a breakthrough discovery he & his collaborators made, shedding light on why women are more likely than men to develop autoimmune diseases like #scleroderma , in this recent piece from Fox News.

Research is at the center of all we do to find a cure for #scleroderma . This is why here at the SRF we launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind registry of #scleroderma patients. Learn more: bit.ly/3TDmzwu

Let's talk about how #scleroderma can mobility. The increased production of collagen associated with scleroderma can cause vascular dysfunction. This can contribute to stiffness, warmth, tenderness, & pain in the joints and muscles. Learn more: bit.ly/3u5AlOE

It's the rarest day of the year: #RareDiseaseDay ! Join us and raise awareness of rare diseases like #scleroderma as part of this global effort today. 📣

Looking for facts to share about scleroderma? Check out bit.ly/srf-resources today. Thank you!

Nearly 90% of those with scleroderma have Raynaud’s phenomenon. This is why Raynaud's can be a “red flag” that helps lead to diagnosis & treatment of #scleroderma . This was true for Aneila, dx 2021. “Raynaud’s was actually my first symptom,” she said. #RaynaudsAwarenessMonth

It's #RaynaudsAwarenessMonth ! Raynaud’s phenomenon is a common condition & most people with Raynaud’s will not develop scleroderma. But, worldwide nearly 90% of those with scleroderma DO have Raynaud’s.

@wearesruk & SRFCure are working together to raise awareness—join us!

The rarest day of the year is coming up—February 29th is both a #LeapDay and this year's #RareDiseaseDay ! Help us raise awareness in the coming days of rare diseases, like #scleroderma —one of over 6,000+ diseases identified as rare.

Coming up this Tuesday! There's still time to register for this webinar presented by Dr. Howard Chang of Stanford University. Sign up now: bit.ly/3ueOsRO

Dr. Elana J. Bernstein, of Columbia University Irving Medical Center, breaks down exactly how #Raynauds phenomenon works. #Raynauds AwarenessMonth

Watch the full talk from Dr. Bernstein from the 2023 SRF Patient Forum: bit.ly/4bB5IS7

Research News Alert: Howard Chang's new study in Cell on the role of XIST in female-biased autoimmunity, primarily funded by SRFCure, possibly answers why women are more likely than men to develop an autoimmune disorder.

Learn more: nyti.ms/3SNz2gP

The SRFCure was the lead funder of this breakthrough project—a collaboration among a number of SRF-funded researchers and additional research team members.

Calling on all #scleroderma advocates! February marks not just #RareDiseaseAwarenessMonth but also #RaynaudsAwarenessMonth . 📣 Together, let's raise awareness about Raynaud's phenomenon & its impact on those with scleroderma.

More info about Raynaud's: bit.ly/srf-resources

February is #RareDiseaseAwarenessMonth —an opportunity for us to raise awareness about what it means to live with a rare disease like #scleroderma . To kick things off, Dee (dx 2012) shares her journey with this disease. Produced by Project Scleroderma, in collab with the SRF.

You're invited—join us for a free webinar for the broader research community: “RNA Origin of Sex-Biased Immunity,” presented by Howard Chang MD, PhD, with a live Q&A.

When: Feb 20 at 10AM Pacific
Register Now: bit.ly/3ueOsRO