I'm fundraising for The Institute of Cancer Research (ICR). Check out my JustGiving page and please donate if you can. Thank you! #JustGiving justgiving.com/fundraising/fr…

50% OF UK IPF PATIENTS ARE DENIED ACCESS TO ANTIFIBROTIC TREATMENT BY NICE RULES. Early stage IPF patients (FVC > 80%) and those with advanced symptoms (FVC>50%) cannot be prescribed. This is grossly unfair and results in worse outcomes and ultimately shorter lives

Our Spring Clachan will be a truly magical event, in the company of international master magician, Lee Smith. Takes place on Thursday 25th February, book your place now: docs.google.com/forms/d/e/1FAI…

🚨Upcoming event!🚨

MEET Sabbir, 62. Misdiagnosed for 4 years. Eventually diagnosed IPF and given antifibrotics but 15 months later his FVC has dropped close to the 50% NICE threshold and he will soon be denied the life extending drug. NICE RULES MUST CHANGE. Action for Pulmonary Fibrosis NICE #CurePF

Over 50% OF UK IPF PATIENTS ARE DENIED ANTIFIBROTIC DRUGS BY NICE RULES. Early IPF patients (FVC > 80%) and with advanced symptoms (FVC>50%) cannot be prescribed. This is grossly unfair and results in worse outcomes and ultimately shorter lives Action for Pulmonary Fibrosis NICE

Only two weeks to go! Gyles Brandreth will be be our special guest at the Old Friends Autumn Guest Dinner in London on 14th October. This will be a memorable night and super value for money - just £80 for welcome drinks, excellent 3 course dinner with wine and a fabulous speaker.

The power of the mind: I learned early that the mind is powerful & plastic;capable of change but also the control centre of your life.What you say to yourself shapes your direction of travel.Your subconscious believes what it hears, not what's true. So tell it good things ⚡

Interesting read! ft.com/content/d0df2f…

The Society of Old Friends BIG Online Quiz Night on the 24th February with (the slightly intimidatingly excellent) Shaun Williamson! Don’t miss it!

BREAKING NEWS - NICE announces immediate start of its evaluation of Nintedanib for IPF patients with FVC over 80%, who are currently denied the drug. Potentially good news for thousands of early stage patients! Action for Pulmonary Fibrosis NICE #CurePF

#engvbar #FathersDay Family Day at #twickenham

#rebellioushope Deborah James flying the flag for Debra James AllianzStadium

Please join us and #PFMonth this month of September to raise awareness of the challenges associated with this serious disease and encourage friends and family to act now and see a doctor at the first symptoms! #BreathingLife #CurePF

Our "Guide to Living with #pulmonaryfibrosis" provides useful information and an overview of the most important aspects of living with the disease. If you know someone who's experiencing symptoms such as shortness of breath or a dry cough, pass it on – time is key! #PFMonth

BREAKING NEWS – NICE has approved antifibrotic drug nintedanib for ALL IPF patients. After 6-year campaign by @ActionPFCharity NICE has axed the unjust ‘80% rule’ which denied IPF patients the drug until their lung function had fallen to 80%. But, why did it take so long? #CurePF

A VERY close high school friend of mine didn’t invite me to his wedding earlier this year. It was so weird everyone at the wedding kept calling and asking if I’m late… He called me two weeks ago and I ignored his call. ✨

Quietly remembering over 8,000 people who died of pulmonary fibrosis in 2024, including DJ Johnnie Walker, Indian musician Zakir Hussain and patient advocate Maggie Bartlett. As the year comes to an end, our thoughts are with them and their families. Action for Pulmonary Fibrosis #StopPF

So pleased that assisted dying is finally being recognised as important for those living with a terminal illness, and gives them the comfort of knowing they have a choice.