Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profileg
Action for Pulmonary Fibrosis

@ActionPFcharity

💜UK charity supporting people affected by pulmonary fibrosis
🧬funding research towards a better future for people living with PF
🤝together we are stronger

ID:2333845447

linkhttp://www.actionpf.org calendar_today08-02-2014 17:47:08

6,3K Tweets

5,4K Followers

3,5K Following

Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

What effect does fasting have on people taking ?

have made a questionnaire to look at peoples behaviours during whilst on prescribed antifibrotic medications.📝

Find out more here⬇️
actionpf.org/news/ramadan-t…

What effect does fasting have on people taking #antifibrotic #medications? #Researchers have made a questionnaire to look at peoples behaviours during #Ramadan whilst on prescribed antifibrotic medications.📝 Find out more here⬇️ actionpf.org/news/ramadan-t…
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

Carers allowance needs urgent reform to support unpaid carers in the UK, and MPs are calling for a full-scale review.

📢We want to hear our community's thoughts! Let us know in the comments👇

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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

Want to help shape the future of research?

Dr Kevin Bin Liu, our newly funded researcher, is looking into the genetic causes of . For his , he needs people affected by PF to join his Research Advisory Group.

Find out more here:
actionpf.org/research-info/…

Want to help shape the future of #PF research? Dr @KevinBinLiu1, our newly funded researcher, is looking into the genetic causes of #IPF. For his #research, he needs people affected by PF to join his Research Advisory Group. Find out more here: actionpf.org/research-info/…
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We could win £5,000 with your help!🎉

This week, we have the chance to be nominated for a £5,000 grant from the Benefact Group Movement for Good Health Special Draw.

Please nominate us to help us be there for everyone affected by :
health.movementforgood.com/index.php?cn=1…

We could win £5,000 with your help!🎉 This week, we have the chance to be nominated for a £5,000 grant from the @benefactgroup Movement for Good Health Special Draw. Please nominate us to help us be there for everyone affected by #pulmonaryfibrosis: health.movementforgood.com/index.php?cn=1…
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

We would like to say a big thank you to all those running in the London Marathon for APF and raising vital funds for our research and support services.

Thank you all so much for your support 💜

We would like to say a big thank you to all those running in the London Marathon for APF and raising vital funds for our research and support services. Thank you all so much for your support 💜
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

👋Meet Anitha.

Anitha is a medical student at Imperial College London and as part of her degree she's investigating the impact of air-flight experiences for people with .✈️

She's also interviewing doctors who specialise in .

actionpf.org/news/meet-the-…

👋Meet Anitha. Anitha is a medical student at @imperialcollege and as part of her degree she's investigating the impact of air-flight experiences for people with #pulmonaryfibrosis.✈️ She's also interviewing doctors who specialise in #PF. actionpf.org/news/meet-the-… #research
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If you would like to run for APF in the London Marathon 2025, register your details today – the General Ballot is now open for a limited time! The ballot closes on Friday 26 April, so apply early to secure your place 🏃‍♂️Apply here: bit.ly/3QcOm4S

If you would like to run for APF in the London Marathon 2025, register your details today – the General Ballot is now open for a limited time! The ballot closes on Friday 26 April, so apply early to secure your place 🏃‍♂️Apply here: bit.ly/3QcOm4S
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Marium Naqvi(@RespPharmacist) 's Twitter Profile Photo

Huge congratulations to Bradley Price Sue Thomas #OneVoiceILD Action for Pulmonary Fibrosis on the publication of care pathway report. It is fantastic to have come so far in the course of a year. Lots of be proud of. Really looking forward to further developments.

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Carers Trust(@CarersTrust) 's Twitter Profile Photo

Carer’s Allowance is complicated and its incredibly harsh rules mean many carers miss out on financial support

Ramzi Suleiman’s blog explores the wider changes needed to prevent carers from living in poverty including a complete overhaul of Carer’s Allowance

🔗bit.ly/4d1argu

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Bradley Price(@BradleyJPrice) 's Twitter Profile Photo

🚨NEW REPORT ALERT🚨

#OneVoiceILD and Action for Pulmonary Fibrosis have launched an Optimum Integrated Care Pathway for transforming ILD services.

actionpf.org/get-involved/t…

🚨NEW REPORT ALERT🚨 @OneVoiceILD and @ActionPFcharity have launched an Optimum Integrated Care Pathway for transforming ILD services. actionpf.org/get-involved/t…
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STRAVINSKY(@STRAVINSKYstudy) 's Twitter Profile Photo

Free and open to all! Come along to our webinar for an update on @STRAVINSKYStudy’s progress so far.

✅Hear the latest on immunity in clinically vulnerable people
✅See how you could get involved

⏲️18:00-19:00, Weds 24 April
🔗immunology.org/events/update-…

Professor Alex Richter

Free and open to all! Come along to our webinar for an update on @STRAVINSKYStudy’s progress so far. ✅Hear the latest on #COVID19 immunity in clinically vulnerable people ✅See how you could get involved ⏲️18:00-19:00, Weds 24 April 🔗immunology.org/events/update-… @AlexRichter3
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Imperial Medicine(@ImperialMed) 's Twitter Profile Photo

Congratulations to Kevin Bin Liu from NHLI for being awarded the Mike Bray Fellowship by Action for Pulmonary Fibrosis! 🎉

Fellowships are worth £600,000 funding to investigate the genetic causes of .

More 👇
imperial.ac.uk/news/252600/su…

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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

What do you want to know about travelling with ?

✈️Going on holiday with PF may require more planning. We want to answer any questions you might have, from oxygen, travel insurance, and more.

Comment your questions below, or email [email protected]

What do you want to know about travelling with #PF? ✈️Going on holiday with PF may require more planning. We want to answer any questions you might have, from oxygen, travel insurance, and more. Comment your questions below, or email chloe.hough@actionpf.org
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Action for Pulmonary Fibrosis(@ActionPFcharity) 's Twitter Profile Photo

Are you an undergraduate basic science or medical student with an interest in research?

Together with British Association for Lung Research (BALR), Pulmonary Fibrosis NI & Breathing Matters we're supporting summer studentships!🎉

📅Deadline: 10 May
⏰Ending soon-don't miss out!

actionpf.org/news/apply-for…

Are you an undergraduate basic science or medical student with an interest in #respiratory research? Together with @BALRcommunity, @PFNI_NIRELAND & @Breathingmatter we're supporting summer studentships!🎉 📅Deadline: 10 May ⏰Ending soon-don't miss out! actionpf.org/news/apply-for…
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