Steve Jones (@actionpfsteve) 's Twitter Profile
Steve Jones

@actionpfsteve

Trustee of @ActionPFcharity, a patient organisation committed to supporting people living with pulmonary fibrosis. Board member of @EU_IPFF

ID: 925355778126614528

linkhttp://www.actionpulmonaryfibrosis.org calendar_today31-10-2017 13:36:24

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BREAKING NEWS – NICE has approved antifibrotic drug nintedanib for ALL IPF patients. After 6-year campaign by @ActionPFCharity NICE has axed the unjust ‘80% rule’ which denied IPF patients the drug until their lung function had fallen to 80%. But, why did it take so long? #CurePF