Renie Moss (@reniemoss) 's Twitter Profile
Renie Moss

@reniemoss

Advocate/encourager to clinicians and research community working to #ENDNF in my children's lifetime.

ID: 177717859

calendar_today12-08-2010 22:10:40

6,6K Tweet

904 Followers

397 Following

National Human Genome Research Institute (@genome_gov) 's Twitter Profile Photo

April is finally here, which means we are counting down to #DNADay23 on April 25! This year is extra special, as this year also marks 70 years since the double helix was discovered, and 20 years since the Human Genome Project was completed. genome.gov/DNA-Day-2023

April is finally here, which means we are counting down to #DNADay23 on April 25! This year is extra special, as this year also marks 70 years since the double helix was discovered, and 20 years since the Human Genome Project was completed. genome.gov/DNA-Day-2023
Children's Tumor Fdn (@childrenstumor) 's Twitter Profile Photo

>>>Announcing the Children’s Tumor Foundation Strategic Plan 2023-2028<<< The CTF Board of Directors has approved a new and bold strategic plan to bolster our mission to #ENDNF. Read the Strategic Plan Summary Document - ctf.org/strategic

&gt;&gt;&gt;Announcing the Children’s Tumor Foundation Strategic Plan 2023-2028&lt;&lt;&lt;

The CTF Board of Directors has approved a new and bold strategic plan to bolster our mission to #ENDNF.  

Read the Strategic Plan Summary Document - ctf.org/strategic
Eric Green (@nhgri_director) 's Twitter Profile Photo

Genetics and genomics are both important in health, but what is the difference between them? Genetics refers to the study of inheritance and the ways that traits or conditions are passed down from one generation to another. Genomics describes the study of all of a person's DNA.

Cleveland Scene (@clevelandscene) 's Twitter Profile Photo

We are very sorry to share the news that Nick Gilbert, the son of Cleveland Cavaliers owner Dan Gilbert and longtime good luck charm for the Cavaliers passed away earlier today. He was 26 years old. echovita.com/us/obituaries/…

Children's Tumor Fdn (@childrenstumor) 's Twitter Profile Photo

We're thrilled to announce that, for the 3rd year, Lamar Advertising is helping us #MakeNFVisible through a national PSA digital billboard campaign! ctf.org/news/national-… If you see a Make NF Visible billboard, take a photo and tag CTF, #endnf and #makenfvisible!

We're thrilled to announce that, for the 3rd year, <a href="/LamarOOH/">Lamar Advertising</a> is helping us #MakeNFVisible through a national PSA digital billboard campaign! 

ctf.org/news/national-…

If you see a Make NF Visible billboard, take a photo and tag CTF, #endnf and #makenfvisible!
Renie Moss (@reniemoss) 's Twitter Profile Photo

In memory of our beloved Mamie Moss, we are running in the Norma Livingston MotherWalk 5K tomorrow morning. Happy Mother’s Day to the most amazing mother in law that ever walked this earth. #lovelikeMamie #ovariancancer

In memory of our beloved Mamie Moss, we are running in the Norma Livingston MotherWalk 5K tomorrow morning. Happy Mother’s Day to the most amazing mother in law that ever walked this earth.  #lovelikeMamie #ovariancancer
Renie Moss (@reniemoss) 's Twitter Profile Photo

It’s World NF Awareness Day. Wear blue and green for May 17. Sharing our family’s diagnosis story from 2014. #ENDNF The Moss Family - 2014 Strength and Honor Award youtu.be/ozH6hkdkzto

Taylor Sundby, MD 🧬 (@rtsundby) 's Twitter Profile Photo

MPNST #sarcoma is the #1 cause of mortality in #NF1. Early detection and accurate dx of pre-malignant atypical NF is critical to improve outcome. Excited that our Test Account @NCI_CCR_PedOnc #liquidbx collaboration will have two platform talks Children's Tumor Fdn mtg re: early dx

Children's Tumor Fdn (@childrenstumor) 's Twitter Profile Photo

#FACT: Plexiform neurofibromas are tumors associated with NF1 that involve one or more nerves and can occur anywhere in the body. More NF Facts at ctf.org/facts. More ways to #MakeNFVisible at makenfvisible.org. #endnf #NF

#FACT: Plexiform neurofibromas are tumors associated with NF1 that involve one or more nerves and can occur anywhere in the body.

More NF Facts at ctf.org/facts. More ways to #MakeNFVisible at makenfvisible.org. 

#endnf #NF
Neurofibromatosis Therapeutic Acceleration Program (@ntapresearch) 's Twitter Profile Photo

Get ready for the annual Children's Tumor Fdn NF Conference! Progress in NF1 therapeutic discovery made possible via NTAP-driven collaboration and focus is invigorating. Come hear the latest data and get involved. We are eager to grow the field even more, even faster! #NF1Research

Get ready for the annual <a href="/ChildrensTumor/">Children's Tumor Fdn</a> NF Conference! Progress in NF1 therapeutic discovery made possible via NTAP-driven collaboration and focus is invigorating. Come hear the latest data and get involved. We are eager to grow the field even more, even faster!
 #NF1Research
Taylor Sundby, MD 🧬 (@rtsundby) 's Twitter Profile Photo

#REiNS2023 has started! What better way to kick it off than honoring the tremendous efforts of Vanessa L. Merker, PhD and Miranda McManus to improve #neurofibromatosis care and march towards the goal to #endnf. Congrats to all of the REiNS Collaboration nominees! Excited to hear groups’ progress!

#REiNS2023 has started! What better way to kick it off than honoring the tremendous efforts of <a href="/vlmerker/">Vanessa L. Merker, PhD</a> and Miranda McManus to improve #neurofibromatosis care and march towards the goal to #endnf. Congrats to all of the <a href="/REiNScollab/">REiNS Collaboration</a> nominees! Excited to hear groups’ progress!
Neurofibromatosis Therapeutic Acceleration Program (@ntapresearch) 's Twitter Profile Photo

Seeking exceptional early stage clinician scientists who to be part of the cure! NTAP is now accepting applications for The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research, apply at bit.ly/3qp3MsA Johns Hopkins Medicine

Seeking exceptional early stage clinician scientists who to be part of the cure!
NTAP is now accepting applications for The Francis S. Collins Scholars Program in Neurofibromatosis Clinical and Translational Research, apply at bit.ly/3qp3MsA 
<a href="/HopkinsMedicine/">Johns Hopkins Medicine</a>
Children's Tumor Fdn (@childrenstumor) 's Twitter Profile Photo

One tenant of the Children's Tumor Foundation's mission is to expand knowledge, and with that in mind, we're re-sharing this handy-dandy one-sheet about the new & improved way we talk about NF. Check out-and share!-this flyer, and then visit ctf.org/aboutnf to learn more!

One tenant of the Children's Tumor Foundation's mission is to expand knowledge, and with that in mind, we're re-sharing this handy-dandy one-sheet about the new &amp; improved way we talk about NF. Check out-and share!-this flyer, and then visit ctf.org/aboutnf to learn more!
Children's Tumor Fdn (@childrenstumor) 's Twitter Profile Photo

Devastating news: NF research funding through the CDMRP has been eliminated for FY2025. Other disease areas were also affected, but this is a huge loss for our community. Read our full statement: ctf.org/news/ensuring-…

Devastating news: NF research funding through the CDMRP has been eliminated for FY2025. Other disease areas were also affected, but this is a huge loss for our community. Read our full statement: ctf.org/news/ensuring-…