EDS Awareness (@edsawareness1) Twitter Following • TwiCopy

Jennifer Hankinson🇺🇸

@jenniferhankins

Artist, mother, wife, travel-junkie, adventurer, creative wizard, border collie fanatic and defender of freedom. Ex-Memphian. Conservative.🇺🇸

+ Follow

NCBI

@ncbi

Official account of the National Center for Biotechnology Information at @NLM_NIH. Privacy: go.usa.gov/xHJ93 | Website help: [email protected]

+ Follow

Jane Green MBE FCCT connective 😶

@jgjanegreenmbe

Chair @SEDSConnective MBE NeurodivergenceHypermobility I MA Ed. exAHT NED FELLOW I EFNA CAB Keynote Parent/Carer schooldropout Disabled often discombobulated 😶

+ Follow

Julietha🦊

@juliethap

HIPERLAXA MIGRAÑOSA 🦓 Convivo con el Ehlers-Danlos y aqui me quejo! Enamorada de Tintin & Darth Vader 🖤 SpiderWoman 🕷️ Soy Sunspider🕸️ Madre de Padme😻

+ Follow

Dysautonomia Intl.

@dysautonomia

Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.

+ Follow

Karen Lubell

@karenlubell

ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.

+ Follow

The Ehlers-Danlos Society

@theedsociety

The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).

+ Follow

American Gastroenterological Association (AGA)

@amergastroassn

Our mission is to empower clinicians and researchers to improve digestive health. Also follow @AGA_Gastro @AGA_CGH @AGA_CMGH @AGA_TIGE @AGA_GHAdvances @AGA_GIHN

+ Follow

Eric Topol

@erictopol

physician-scientist, author of SUPER AGERS tinyurl.com/3w76us9a and Ground Truths: erictopol.substack.com

+ Follow

Birdon_thewire

@birdon_thewire

ᴮᴱᴸᶠᴬˢᵀᴮᴼᴿᴺ🍀 ᴍᴜᴍ 💁‍♀️ ᴇxʟᴀᴡʏᴇʀ ⚖️ 𝘕𝘏𝘚🌈 ᴘꜱʏᴄʜᴏᴛʜᴇʀᴀᴘɪsᴛ Ψ ᴅoᴄᴛoʀᴀᴛᴇ ᴘꜱʏᴄʜᴏʟᴏGʏ Ψ 📚🧑🏼‍🎓

+ Follow

Liz Kennerley #LongCOVID #RareDisease

@lifeaccrdingliz

#chronicillness #patient & Federal Health Policy #Advocate @SimmonsAlumni, @remember_girls Board member @RareDiseaseDiv1 Patient RISE award recipient. My views.

+ Follow

ACG

@amcollegegastro

+ Follow

Michelle Styles (she/her) 🇮🇪 🇺🇦 💙💛

@mwbstyles

Centre for Pharmacy Postgraduate Education (CPPE) regional manager London, EdD, FRPharmS FFRPS, FHEA

+ Follow

Breegs

@jbreegs

Londoner, Spurs fan, Breegs. All my views are my views. All views that aren't my views are not my views

+ Follow

Professor Lara Bloom

@larabloom

President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️‍🌈Gay•She/Her• Views my own

+ Follow

Kay Clinton

@kay_clinton

Fine Artist: working in paint and pastel, I used to dabble in photography, video and text. Now I'm a Mother to two sweethearts too...

+ Follow

A.

@ana_naro

Fisioterapia 🧠👵🏽🫁🫀✨

+ Follow

ILF_Lympho

@ilf_lympho

The International Lymphoedema Framework's objective is to actively contribute to the improvement of the management of lymphoedema.

+ Follow

Jeannie Di Bon

@jdibon

Hypermobility & EDS | Movement Therapist | Author of "Hypermobility Without Tears" | jeanniedibon.com | Founder of The Zebra Club

+ Follow

🦄 Lolli PrettyTink 🦄

@sarz20

Chocaholic, Animal Lover, Pain Warrior, Reader, #LFC Superfan with #hydrocephalus #spinabiffida & Mum to a crazy Mini JRT!

+ Follow

Lipoedema UK

@lipoedemauk

The UK Lipoedema charity, raising awareness, proving support & education for patients and healthcare professionals.

+ Follow

Current Biology

@currentbiology

Scientific journal publishing original research, overview and commentary across all of biology. All of it! @CellPressNews bsky.app/profile/curren…

+ Follow

Ehlers-Danlos Support UK

@ehlersdanlosuk

EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.

+ Follow

E Littlefield

@elittlefield20

+ Follow

BLS

@britishlymph

The British Lymphology Society consists of healthcare professionals and others directly involved in the management of lymphoedema. #Research #Lymphoedema

+ Follow

Gillian Dempsey

@catedempsey

Barrister-at-Law/ PhD in Economics/Commerce. Law is my profession, but Maths is my passion. I am a tourist in the Uncanny Valley

+ Follow

David Skidmore

@lymeloonies

Husband, father, cartoonist, musician @ 12 years with Chronic Lyme disease - I so hate ticks, but denial more! Created a cartoon book about Lyme (link below)

+ Follow

Lipedema Simplified

@lipedemanews

news, updates, information, webinars, experts, videos

+ Follow

Chronicillnesswarrior1 ♿️💙✝️💟🇺🇦

@fionangreg

Wife, mum, Severe ME, MCAS, Long Covid, dogs, peace, don't rush, love & forgive ❤️ #chronicillnesswarrior #loveyourself #loveothers @MEWarrior1.bsky.social

+ Follow

OhTWIST.bsky.social now too

@h2ohtwist

Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely diagnosed.

+ Follow

Suzan Jackson

@livewithmecfs

Writer with ME/CFS & Lyme & son w/#MECFS & #Lyme; love to travel, read & spend time outdoors w/family & friends; write 2 blogs & author of chronic illness book.

+ Follow

Bonnie Pember

@bonsils1

Archivist/Teacher/Researcher 🥰 Loves learning more about everything!!

+ Follow

Aegastro

@aegastro

Promovemos la investigación colaborativa y la formación de calidad. Spanish Association of Gastroenterology: collaborative research & education.

+ Follow

the Lipedema Project

@lipedemaproject

The Lipedema Project increases awareness and provides education, research and treatment for lipedema.

+ Follow

Karisma Art

@4foreveryone

visual artist

+ Follow

Raras pero Reales

@rarasreales

Sanofi, comprometidos con el descubrimiento de terapias para pacientes con #EnfermedadesRaras. pro.campus.sanofi/es/legal/polit…

+ Follow

Alissa Zingman MD MPH - ZebraMD

@doczing

PRISM Spine and Joint, prismsj.com, Research EDSRF.org, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.

+ Follow

Hypermobility MD: Dr Linda Bluestein

@bluesteinlinda

🦓 Expert on Ehlers-Danlos, HSD, MCAS & Chronic Pain🎙Host Bendy Bodies Podcast 🩺Information, not medical advice.

+ Follow

S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic

@dysclinic

Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice

+ Follow

Candace D.

@diaryofasickgrl

Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.

+ Follow

Cortney Gensemer, PhD

@cortdoesscience

Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education

+ Follow

Bea is Chronically Persisting✨

@be_kinderr

Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻‍♀️Scientist/Advocate [email protected]

+ Follow

collagen machine broke

@chronicallybeee

dyke | she/they | #FreePalestine

+ Follow

SEDSConnective

@sedsconnective

Hypermobility EDS / HSD Pain NEURODIVERGENCE ADHD Autism Dyspraxia TS Dyslexia Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain

+ Follow

Joanna No Banana

@joannanobanana

Joanna (she/her) 29 Queen of Allergies 👑 MCAS. POTS. EDS. CCI 💛 Autistic. ADHD. OCD. PMDD. Striving to live my best life 💕 #ForTinu

+ Follow

The Tweedy Mutant

@the_tweedy

Corin • PhD studying cat geographies • almost never post here anymore • thetweedy on 🦋

+ Follow

Charis Hill | they/them | Free Palestine 🇵🇸

@beingcharisblog

Here for now. On other apps under the same or similar handle. Views are my own.

+ Follow

Sabeeha Malek, PhD

@sabeehamalek

Postdoctoral Researcher @Warwick_CMCB in Koester lab & @wingyingchow lab🔬📚🧬 Studying cell biomechanics & collagen/ECM changes in EDS/HSD #biophysics

+ Follow

A.I.M - Autistic Inclusive Meets

@aimautistic

Autistic Inclusive Meets organisation, we promote acceptance & fight abuse. For boxing, Taekwondo, football, sensory & social: http://Www.autisticinclusivemeet

+ Follow

Leanne Gregory

@ligregorybirm

Fighting the good fight! Being ready Almost cleared decks! Advocate 4 secure, social homes for accessibility & SEND needs Working-class Christian SEND Seen 👀

+ Follow

ME/CFS Skeptic

@mecfsskeptic

Exploring the history of psychosomatic medicine and research on myalgic encefalomyelitis/chronic fatigue syndrome (ME/CFS)

+ Follow

Rhiannon Richards

@rhianno42224910

Colorectal reg, Future Leaders Fellow to SuppoRTTyh working on return to surgical training and complex phased return. Solo mum She/her, views my own

+ Follow

AEPOD Asoc. Española de POTS y otras Disautonomías

@aepod_es

Asociación Española de PoTS y otras Disautonomías Divulgación, apoyo e investigación para mejor atención sanitaria y calidad de vida

+ Follow

Endovascular Therapy

@jendovasculart

Official Account for the Journal of Endovascular Therapy

+ Follow

Suzanne Keppley-Peek

@keppleypeek

Vice President at National MALS Foundation 🦋 Hospice Vigil Volunteer🦋Bereavement Support Group Facilitator ❤️🙏🏼❤️

+ Follow

Lou Thornley

@lou_vs_me

Prevention trumps harm. Ramp up pandemic protections. Might look well at times - but battery often flat. #MECFS #LongCovid

+ Follow

Michael ⚕️🦁

@michaelcwilder

Long Covid 3/22--BS Biology-Lawyer RETWEET not endorsement--I'm gathering/reviewing evidence of Causation and Facts re #LongCovid and Pandemic

+ Follow

Alison

@daughterofbowie

Aged care dietitian. Lover of food and music.

+ Follow

Joe Grenevicki

@gopackjoeg

Fighting the good fight. Living with #hEDS. #ZebraStrong “Say when..” #GoPackGo $JoeGrenevicki #GoGforce

+ Follow

M.E Journals

@mejournals2021

My Essentials (M.E) + Journal Daily = Living Authentically You :)

+ Follow

LegsLikeMine

@legs_likemine

LegsLikeMine supports the 11% of women in the world, who have Lipedema. We provide beautiful and functional products and services to improve life.

+ Follow

Gastroenterology Review

@gireview

All things gastroenterology, hepatology & endoscopy. Review articles, guidelines, board review. #MedEd #FOAMed #gitwitter

+ Follow

AJG - The American Journal of Gastroenterology

@amjgastro

Official journal of @AmCollegeGastro #RedJournal Co-EICs: Millie D. Long, MD, MPH, FACG @mlongmd & Jasmohan S. Bajaj, MD, MS, FACG @jasmohanbajaj

+ Follow

Gastroenterology

@aga_gastro

The flagship journal of the @AmerGastroAssn, Gastroenterology is a premiere journal for original research in the field of GI disease. Impact Factor: 29.4

+ Follow