EBLifeStyle
@eblifestyle717
EBLifeStyle Is a nonprofit organization. Epidermolysis Bullosa also known as EB is protein deficiency that affects the skin.
ID: 1387887714675138560
https://www.eblifestyles.org 29-04-2021 21:53:41
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Linda Sherman Gordon Rethinking Aging Club founder
@lindasherman
See you at #SMMW25 - BOD, Speaker, exCEO ClubMed Japan, mg.editor @BoomerTechTalk, Rethinking Aging Club Podcast, TV📺 Film 🎬 TVReview.co
Nuno Rodrigo Duarte
@nrodrigod
Inpsyght
@born2diss
Growth / Product Analyst | Epidermolysis Bullosa Simplex
Paresh Kale
@paresh218
Computer Engineer (.net programmer)
Robin Demarest
@mtb_chick_robin
Liv Cycling Ambassdor and D&D shop Ambassdor. Mountain biking lets my inner kid have a blast!
Droppa 😎
@gene_droppa
Serial Entrepreneur | Real Estate
Deanna Molinaro
@deannamolinaro
—————— part time vampire🩸🧛🏻♀️ —————— #artist #painter #writer #speaker #eb #advocate #fightEB |dEBra🇨🇦|💛 commission & bookings [email protected]
DEBRA UK
@charitydebra
DEBRA is the national charity for people living with the painful genetic skin blistering condition, #EpidermolysisBullosa (EB).
Charity Links
@charitylinksuk
Charity Links provides ongoing Charity news on UK Charities and their Corporate Charity of the Year Partnerships.
debra of America
@debraofamerica
Leading national nonprofit improving the lives of those impacted by Epidermolysis Bullosa (EB) —"The Worst Disease You've Never Heard Of."
Harsha K Rajasimha
@harsharajasimha
#Entrepreneur #RareDiseases #orphandrugs #decentralizedtrials #PrecisionMedicine #AI #clinicalTrials #Digitalhealth #RWE #clinicalresearch opinions my own
Tycelia
@crosskidzmomma
Sim Flanagan
@flanagansim
Arts, Accessibility & Activism. Former GM @melbwebfest & @otherfilmfest. Living my best working #mumlife. She / Her.
Hollye Wagner
@hwags18
EB Mom, mother of two daughters, Ice Hockey player and I love sports!
ZayMar✨
@zaykiam
owner and operator of ZayMar Party Rentals LLC 📸🎈(Home of the 360 Experience 🎥)
Shardai
@lifewithshardai
Romans 8:28❤️🙏🏼. Junctional EB 💛🦋. Got jokes...should probably do comedy 🤷🏽♀️😉. In love with music 🎧🎵. Adventure seeker and slight nerd 🤓🛸.
EB Research Partnership
@ebresearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure
francesco
@francescopitale
Raahul Kumar
@raahulm13
EB-fella
@ebawarenessuk
My views are my own and I represent myself - images are allegedly GRAPHIC but sadly real #stopthepain - to help find a cure please donate to @CharityDebra
Elka Winnie
@elkaw86579
同じ会社に2度買われる
@nidokawareru
SFG.86
@sfg_86
🇵🇷🇲🇽#Giants⚾ #49ers 🏈 #Lakers 🏀 #FresnoStateBulldogs🏈 #WestCoastTheBestCoast
Joker Tradez
@joker_tradez
“They Laugh At me Because I'm Different. I laugh At Them Because The're all the same” -Joker
Medical Laboratory Genetics Hub
@labgenehub
🧬 Clinical vignettes to sharpen your medical genetic diagnostic skills - great for exam prep (such as ABMGG, ABGC) and continuing certification. 🩺
Stichtingvlinderkind
@stichtingvk
Stichting Vlinderkind zet zich in voor genezing van de ernstige huidaandoening Epidermolysis Bullosa. Strijd met ons mee en doneer nu! 🦋 Tel 0851091108
Nathan
@yarravilledad
Aabi Raaj
@aabiraaj99
Martin Habif
@martinhabif
Scientifically speaking, Jack of all trades, master of none. Biased towards quantitative-life-sciences (he/him/his).
Eliksa Therapeutics
@eliksatx
Harnessing the regenerative power of amniotic fluid and amniotic membrane
Ala'a osama💉💊
@loolz960
believe in yourelf and fight for what you believe Born with epidermolysis bullosa(EB)🦋different and unique I believe that one day all my dreams will come true
breastcancernew24h
@breastcancerne1
Ann Silberman is here for anyone who needs to talk to someone with personal experience as a patient with #breastcancer.
BFR Deft
@lgsp7
#KT
BUR-EB
@burebproject
Changes in the Socio-economic Burden of Epidermolysis Bullosa in Europe 🇪🇺 Funded @EU_H2020 project under the EJP RD COFUND-EJP N° 825575
Debbie Howard
@debbiethecarer
Helping companies address employee caregiver needs
Miracle Dressing
@miracledressing
Miracle Dressing is a new paradigm in pressure injury protection requiring no dressing changes for 21 days. Reduce nursing time and patient pain.
栗田一歩@Sign Lab.
@signlab_2010
手話通訳者｜写真家｜東京カメラ部 日本の47枚 2016｜IG部門2019 2023 2024｜64th NIKKOR U31 特選｜一日一手話｜
Kirk Brazeau
@kb1824
Proud EB Dad of #ArcherStrong🦋 #GoBlue 〽️ #MUFC 🔱 #LGRW 🐙 #OnePride 🦁 #FutbolisLife ⚽️ instagram.com/kirkbrazeau/
Coyote
@el_coyotito3
#ATMtheMafia
Debra Japan
@debra_japan
稀少難治性皮膚疾患の表皮水疱症🦋蝶の羽のように脆い皮膚を持ち日々痛みと困難と闘っています。 病気の理解を広めることを第一に全国の病友とご家族、活動の協力・支援してくださる方々との出会いと連携を呼び掛けています！！
DEBRA International
@interdebra
For a world where anyone with epidermolysis bullosa (EB) has support from a DEBRA group, and access to specialist treatments, healthcare, and social support.
Richie A
@dystrophicrich
Born with rare skin disorder called Dystrophic Epidermolysis Bullosa but still living life! Masters In Oriental Medicine
Michael Hund
@michaelphund
CEO @ebresearch | A futurist in relentless pursuit of the greater good | Father | Philosopher | Founder | @YaleSOM | Kansas Jayhawk
@maryyhaddad
@mary36178902
Hello, welcome to my page of random things, I’m just here to share my thoughts and make you smile 😊🌸
Hodges Caldwell Jr 🦋
@hodgescaldwell3
Founder/CEO of EBLifeStyle Inc a non profit organization designed to help spread awareness for Epidermolysis Bullosa a protein deficiency that effects the skin.