EBLifeStyle
@eblifestyle717
EBLifeStyle Is a nonprofit organization. Epidermolysis Bullosa also known as EB is protein deficiency that affects the skin.
ID: 1387887714675138560
https://www.eblifestyles.org 29-04-2021 21:53:41
328 Tweet
47 Followers
45 Following
Linda Sherman Gordon Rethinking Aging Club founder
@lindasherman
See you at #SMMW25 - BOD, Speaker, exCEO ClubMed Japan, mg.editor @BoomerTechTalk, Rethinking Aging Club Podcast, TV📺 Film 🎬 TVReview.co
Taylor Swift
@taylorswift13
All’s fair in love and poetry... New album THE TORTURED POETS DEPARTMENT. Out now 🤍
Mount Women's Basketball
@mount_wbb
2021 NEC Regular Season • 2021 NEC Tournament Champions • 2022 NEC Tournament Champions #RespectThePeak 🏔️
Sammm
@holospacefreak
always choose love over fear ⚡️
National Organization for Rare Disorders (NORD)
@rarediseases
National Organization for Rare Disorders (#NORD) is the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay.
Debra - The Butterfly Skin Charity
@debraireland
We are the butterfly skin charity. Uniting for change for everyone living with epidermolysis bullosa (EB). Registered charity (CHY 8703/RCN 20021726)
DEBRA Australia
@debraaustralia
Non-profit organisation caring for families in Australia with Epidermolysis Bullosa (EB). Help us find a cure, donate at debra.org.au.
Vanessa
@tinker86belle
I have no special talents, I am only passionately curious!~Tink
Walk for EB
@walkforeb
Fundraising activity for EB Hope Foundation, 501(c)3 charitable organization. Raising awareness and funds for epidermolysis bullosa (EB), a rare skin disease
DEBRA Canada
@debracanada
Creating awareness about EB & support for families and people suffering from EB.
Avril Kennan 🌍
@avrilkennan
CEO, Health Research Charities Ireland - @HRCIreland (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
Droppa 😎
@gene_droppa
Serial Entrepreneur | Real Estate
Debra France
@debrafrance
Association à but non lucratif, nous luttons contre l'Epidermolyse Bulleuse, maladie génétique orpheline qui provoque des plaies et souffrances énormes.
Deanna Molinaro
@deannamolinaro
—————— part time vampire🩸🧛🏻♀️ —————— #artist #painter #writer #speaker #eb #advocate #fightEB |dEBra🇨🇦|💛 commission & bookings [email protected]
DEBRA UK
@charitydebra
DEBRA is the national charity for people living with the painful genetic skin blistering condition, #EpidermolysisBullosa (EB).
Charity Links
@charitylinksuk
Charity Links provides ongoing Charity news on UK Charities and their Corporate Charity of the Year Partnerships.
debra of America
@debraofamerica
Leading national nonprofit improving the lives of those impacted by Epidermolysis Bullosa (EB) —"The Worst Disease You've Never Heard Of."
BreastCancerIreland
@breastcancerire
BCI is a charity set up to raise money for #ResearchingaCure for #breastcancer & promoting #breastcancerawareness. To donate go to breastcancerireland.com
Jenny 🦋
@ebifamiljen
EB mum, former chairman debra Sweden, work with Logistics. Run for EB Sweden: ebloppet.se #ebloppet #run4ebsweden
Hollye Wagner
@hwags18
EB Mom, mother of two daughters, Ice Hockey player and I love sports!
ZayMar✨
@zaykiam
owner and operator of ZayMar Party Rentals LLC 📸🎈(Home of the 360 Experience 🎥)
Sarah Sweeney
@sarahsweeney85
Cure EB
@cureeborg
Raising funds for #EpidermolysisBullosa research and clinical trials. Please support us by joining our fundraising initiatives 🦋 Together we can #cureEB
Shardai
@lifewithshardai
Romans 8:28❤️🙏🏼. Junctional EB 💛🦋. Got jokes...should probably do comedy 🤷🏽♀️😉. In love with music 🎧🎵. Adventure seeker and slight nerd 🤓🛸.
EB Research Partnership
@ebresearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB). 🦋 #HealEB 🔬 Find a cure
EB-fella
@ebawarenessuk
My views are my own and I represent myself - images are allegedly GRAPHIC but sadly real #stopthepain - to help find a cure please donate to @CharityDebra
Debra Singapore
@debrasingapore
DEBRA Singapore, a support group for patients living with congenital epidermolysis bullosa (EB), has just been approved as an official society in Singapore.
Grace Glenn
@gracexglenn_
💖Back-up💖 🆓Enjoy 1 month of FREE access😘 🆙ONLYFANS 18+ Content below👇
MacKenzie Scott
@mackenziescott
(No one representing me or my giving will ever ask anyone to pay a fee or submit personal information. Scams can be reported to ic3.gov/complaint.)
Epidermolysis Bullosa News
@epibullosanews
We are dedicated to sharing the latest news, research, and epidermolysis bullosa patient perspectives.
Debra Japan
@debra_japan
稀少難治性皮膚疾患の表皮水疱症🦋蝶の羽のように脆い皮膚を持ち日々痛みと困難と闘っています。 病気の理解を広めることを第一に全国の病友とご家族、活動の協力・支援してくださる方々との出会いと連携を呼び掛けています！！
Krystal Biotech
@krystalbiotech
A commercial-stage biotechnology company focused on the discovery, development and commercialization of genetic medicines for high unmet medical needs.
Miracle Dressing
@miracledressing
Miracle Dressing is a new paradigm in pressure injury protection requiring no dressing changes for 21 days. Reduce nursing time and patient pain.
MiaThrives
@miathrives
Helping Families Affected By Epidermolysis Bullosa (EB)
EBEating
@eb_eating
My name is Chloe, I am a Speech & Language Therapist, and researcher, exploring the nature of eating and drinking difficulties in Epidermolysis Bullosa (EB)
Kirk Brazeau
@kb1824
Proud EB Dad of #ArcherStrong🦋 #GoBlue 〽️ #MUFC 🔱 #LGRW 🐙 #OnePride 🦁 #FutbolisLife ⚽️ instagram.com/kirkbrazeau/
DEBRA International
@interdebra
For a world where anyone with epidermolysis bullosa (EB) has support from a DEBRA group, and access to specialist treatments, healthcare, and social support.
Doge Italia
@dogeitalia
#dogetothemoon🐕🚀🌔
z
@wasabiiwizard
Richie A
@dystrophicrich
Born with rare skin disorder called Dystrophic Epidermolysis Bullosa but still living life! Masters In Oriental Medicine
Michael Hund
@michaelphund
CEO @ebresearch | A futurist in relentless pursuit of the greater good | Father | Philosopher | Founder | @YaleSOM | Kansas Jayhawk
@maryyhaddad
@mary36178902
Hello, welcome to my page of random things, I’m just here to share my thoughts and make you smile 😊🌸
Hodges Caldwell Jr 🦋
@hodgescaldwell3
Founder/CEO of EBLifeStyle Inc a non profit organization designed to help spread awareness for Epidermolysis Bullosa a protein deficiency that effects the skin.