IrishDysautonomia
@dysautonomiairl
Hi, I'm Lette, Chronically ill & raising awareness of #Dysautonomia #POTS, #EDS & all associated forms of #InvisibleIllness in #Ireland. All Welcome :)
ID: 409624247
http://irishdysautonomia.wordpress.com/ 11-11-2011 00:40:20
2,2K Tweet
1,1K Followers
1,1K Following
Jem 🦓☘️
@goonermetalhead
Arsenal fan since 1997 ❤️🤍Ehlers-Danlos Syndrome (hEDS) 🦓 #IssuesWithMyTissues My Cockapoo Bob is my wingman 🐕🦺 Crocheter 🧶 DMs are muted 🚫
Shelly
@dublinblondie
Mum, Additional Needs Assistant, DIY attempter, occasional gamer.
Shamekka Marty
@prettylupuschic
I'm not chronic. I'm ICONIC. Advocate*Speaker*Influencer*Cyber HIT Girl Patient Leader at Health Union 📧Bookings: [email protected]
Beverly Dahlinghaus
@bevydahl
Dog Mom | Wife | RN | Zebra
JJ
@felixkitten82
ME/CFS, HSD/hEDS, POTS +more fighter. My world is full of acronyms. Crazy Cat Lady. STP lover. Ex-aspiring medic, ex-singer, ex-mostthingsrightnow.
Katie Holten | Language of Trees🌳 | Code Red 🇵🇸
@katieholten
Artist | Activist | Bestselling Author: THE LANGUAGE OF TREES🌴 🥥 | Rights of Nature 💚 Climate Justice | Long COVID 🦠 Dysautonomia 😷 | Irish | Born @ 331ppm
Michaela Weber
@milaangeliweb
animal welfare | climate reality leader | education | human rights | views are my own | ❤️ Charlie Starsky Bubba Shady Finley #FIVCatsClub
Dysautonomia Intl.
@dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
The Ehlers-Danlos Society
@theedsociety
The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
@TheJOEB🕊
@josephbeesley
Just because you’re offended, it doesn’t make you right.
Máire McSorley
@mairemcsorley
Irish socialist Mam, Nana, Great Nana, Artist, ex Law Centre & CABx Manager. I talk politics, art, food, and post pictures.
Covid Isn’t Over 🇵🇸 #mandatemasks
@sarahgracesc
Proud to be part of the resistance. Wife and mother to my favorite people. #covidisairborne #maskup #followscience chronicallyventing.bsky.social
Isabel Ramirez-Burnett
@isabelramirezrd
NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient/Caregiver-led, decentralized, human-centered research. #MECFS #longcovid #IACI - views are my own!
Ehlers-Danlos Support UK
@ehlersdanlosuk
EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
Princess, The Tower
@apainprincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Anna
@halcionandon
Inquiring mind derailed by #SevereME #LongCovid #Hypothyroidism #Migraine #POTS #ChronicPain, more #FBLC Health in hell mode-NEED SAFE HOME, DISABILITY ADVOCATE
Oh TWIST!
@h2ohtwist
Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
A Chronic Voice
@achvoice
I share #ChronicIllness & #ChronicPain info fr VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #MentalHealth #anxiety #depression
Laura Coffey
@lauracoffey_psy
Lecturer @MUpsychdept, member of @All_Institute. Research interests in #healthpsychology #RehabPsych #chronicillness #disability. Views my own.
Mary
@theneurowild
Living with hEDS, POTS, and MCAS. Volunteer Swan Girl. BTO member. Behavioural Science Geek. Nature is my happy place.
Hannah Foxx
@_hannah_foxx
Neurodiversity, Women’s Health, Intimacy Educator & Dating Coach. Disability & LGBTQ Advocate. Consulting & Public Speaking. #linuxuser #geekgirl #datascience
Neet Feudal Lord of robots
@neetfeudallord
Just a young man dreaming of robots serving under me while I do nothing.
Rob Ashmore
@robashmore2
🇦🇺
BkaJms19
@grimmsgal19
Fiona O Brien (Kerrigan)
@fionaob35063891
Community RGN/Schools immunisations, HSE South . All views are my own.
Luis Venegas
@luisvenegasmd
Aprendiendo viviendo. Viviendo aprendiendo.
Sarah O'Connell
@sarahoc_mecfs
ME #pwME patient 10 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Anna Madainn
@songandjoy
Writer, post-academia. Christian. Lover of nature, poetry, children’s lit, and kindness. 18/19thC lore. Unruly heart, ME/CFS 21 yrs. Wholesome DMs only. 🪺
Sjögren's Ireland
@sjogrensirl
(SHOW-grins). Voluntary organisation advocating for those living with Sjogren's in Ireland. Advocacy, education, community. Contact: [email protected]
Kev
@greeninlondon1
And once the storm is over, you won’t remember how you made it through
Wanhybonbon ☘️💜💚
@wanhybonbon
Level headed health care worker & animal lover ❤️💚🐱🐶 AZ1 Injured 11.02.21=Myocarditis, ME, IST, Dysautonomia, SNHL,Tinnitus, neuro symptoms #IrishCvClan
prasanth varghese
@klreetha
Reconociéndome cebra
@reconociendomec
Un espacio para ventilar y hablar sobre mi vencía como cebra y spoonie: Ehlers-danlos hipermovil, disautonomia, tiroiditis de Hashimoto, osteopenia y más.
Jacqueline Tichik Smith
@bestdoxiemama
1. I had the most amazing man, my true soulmate. He was killed in a carjacking. 2. I have 15+ chronic/rare/invisible illnesses. 3. I no longer have a caregiver
Green Apple Carrots
@grnapplcrrts
Long Covid Kids Choir
@lckchoir2022
🎶We are the Long Covid Kids Choir 🎶 We explore sound, learn songs, practise breathing exercises, have fun&make choir friends from all over the world!
Chronically Cork
@chronicallycork
Living with chronic illness. In Cork. Ehlers Danlos Syndrome. Thymoma. POTs. Migraine .... and many more.
Elizabeth Smith #FBLC
@issydublinnewac
Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈
The Flat Out Reader
@flatoutreader
Flat out is my reading speed and reading position (#dysautonomia). Friends say I have a bad case of tsundoko, so I started these reviews to help me recover.
Kendra
@survivingcfs
30 | Disabled from #mecfs for a decade | disability rights advocate | Artist | See highlights tab for my free graphic art | She/her
Kealee Crandall
@kcpotswarrior
Dysautonomia 🩵 POTS🧂 Fibro 💜 hEDS 🦓 Chronic illness warrior 🦋 IA/AZ 🔱 ASU
shsha
@morokumash4535
Pat Dosen
@pat68965
Wash, rinse, repeat. Just dealing with the chronic pain and illness.
Elli Hilchey
@ellihilche70151
Hattie
@diretho93423
Pledge
@shetay112230
NeuroSync
@neurosyncpots
Empowering dysautonomia warriors with resilience and awareness. #longcovid #covid19❤️ Order your copy now - amazon.co.uk/dp/B0CHPG99NM
Dysautonomia Recovery
@fixdysautonomia
Husband & wife team 👫 Chronicling our recovery journey from #chronicillness. Offering tips to help others manage their #Dysautonomia #LongCovid & #POTS
Sherri Culp
@sherric75281
Vitassium
@vitassium
🧂 An easy boost of sodium + potassium to help manage your chronic illness symptoms 🥄 Created for POTS, EDS + more 📷 Use #Vitassium to be featured!
BulldawgPatriot
@imkennyscupcake
God fearing American, Eyes recently opened! Seeking truth! Though she be but little, she is fierce!
Eleanor See you on blue sky
@albaugh_er
Gigi Lynn hope💙🌈🇺🇦🌊
@gigilynnhope
Wife of the man of my dreams❤️mother to 4💕GiGi to 2 (so far)💜Biden/Harris, Liberal Democrat, Disabled 🚫NO DMs🚫 Kindness matters 😊
Rebecca Ryan
@drrebeccaryan
Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
Kathy Collett
@kathycollett7
Artist, passion for architecture, fashion and object design, advocate for ME and stopping Elder Abuse. 30 years ME research. Former patient of Dr Goldstein.