S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profileg
S Blitshteyn MD, FAAN, Dysautonomia Clinic

@dysclinic

Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice

ID:1154100426070986758

linkhttp://www.dysautonomiaclinic.com/ calendar_today24-07-2019 18:45:58

5,5K Tweets

19,8K Followers

1,3K Following

S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profile Photo

Would love to see reading MRI of the brain that comes back 'normal' in people with brain fog... Combined with 7T MRI, this would likely transform and our diagnostic potential.

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S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profile Photo

If I had limited funds for research, I would not have wanted to spend it on studying sleep disturbance, exercise, meditation or other lifestyle measures. Instead, invest in new and repurposed therapies that target neuroinflammation, autoimmunity and mitochondrial…

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S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profile Photo

Many people have word finding difficulty after infection.

This is a common theme in my clinic:

Me: 'What are your most disabling symptoms?'
Them: 'Fatigue, dizziness and... and... I don't know.... oh yes, brain fog.'

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S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profile Photo

I always use this argument when I talk about IVIG, SCIG or PLEX for patients with and : it's cheaper for society to make these therapies affordable and accessible than to have millions of young chronically-ill and disabled people being out of work.

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Dana Parish(@danaparish) 's Twitter Profile Photo

💯 I have seen countless patients, including ME, come back from horribly debilitating chronic illness.

Don’t let ANYONE STEAL YOUR HOPE! Incl MDs. I was told a millions things that weren’t true!

Medicine is constantly evolving. The next “thing” may be your road to better…

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S Blitshteyn MD, FAAN, Dysautonomia Clinic(@dysclinic) 's Twitter Profile Photo

Not only or are not 'like heart failure,' their cardiovascular pathophysiology is the opposite of heart failure. Heart failure is volume overload; dysautonomia and Long Covid are volume depletion and preload failure. NIH RECOVER trials PI should know…

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Once a mum, always a mother(@re_envision101) 's Twitter Profile Photo

Thank you!!!
There’s no shame for an MD say they don’t know.
It’s not ok for anyone to impose their lack of knowledge, skills or expertise on another by saying there’s no hope.
Just because you don’t know the solution doesn’t mean there isn’t one.
Be honest, be kind.

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Alison Armstrong 🇺🇦🕊️🌎(@momma_alison) 's Twitter Profile Photo

THIS! It's CRUEL and unnecessary to say this to a patient. Being realistic is important, but you cannot extinguish HOPE for a patient!

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