Debs Dakin
@dakin2debs
Paediatric Emergency Nurse Practitioner @Leic_hospital, Childrenโs ED and a Mum to a Myalgic Encephalomyelitis and MCAS warrior.
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17-10-2016 12:25:49
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Alexandra Pelivan
@alex_pelivan
๐ท๐ด PEM Consultant. chocolate lover. Podcast host at @paedscommuter . expensive skincare is my thing. Addicted to coffee & travelling ๐ (she/her)
Ellie Nicholl
@ellienicholl
Suffolk girl now in Leicester. ST6 in Emergency Medicine. Sees all Pixar movies on day of release. Candle snob.
NHS East Leicestershire and Rutland CCG
@nhselrccg
East Leicestershire and Rutland CCG is responsible for planning and buying health services for over 327,000 patients. We're available Mon-Fri 9am - 5pm
Solve ME/CFS Initiative
@plzsolvecfs
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ ow.ly/jQji50Srbuv
Leicestershire Police
@leicspolice
Police service for Leicester, Leicestershire & Rutland. Report crime online leics.police.uk call 101 or DM us. Always call 999 in an emergency.
Paula Knight
@paula_jknight
Author Artist THE FACTS OF LIFE (2017) Kidlit books x3 author. Writer, drawer, poetry, photography. Disabled. Bed-based 6+yr v severe M.E. #pwME (she/her)
Felix Hay
@catman161
Advanced Clinical Practitioner. MMedSci. Avid Skydiver. All views are my own.
Leicester's Hospitals
@leic_hospital
Home of Leicesterโs Hospitals, we aim to be leading in healthcare and trusted in communities. Proud to be #TeamUHL
Herpes Virus Reactivating in My Bones.
@thegodofpleasur
Devoted husband to Deb - who (like Ariadne) I rescued from a Greek island. Who was Dionysos & why is Naxos is special to me? bit.ly/1p7nDHO
Roman Kemp
@romankemp
FFS! My Dad is Martin Kemp - Podcast ๐๐ผ
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Leicestershire CC
@leicscountyhall
Bringing you news and updates from the County Council. We'll try to reply as quickly as we can during office hours.
Pierre Naoum
@pccc90
East Midlands Ambulance Service NHS Trust
@emasnhstrust
This is the official Twitter account for East Midlands Ambulance Service NHS Trust. We provide emergency 999 and urgent services across the East Midlands ๐.
Samantha Weston
@sammyweston92
Paediatric nurse. Sister of CED LRI. love my job. ๐๐ฅcoffee addict โ๏ธ Wife ๐ฅฐ๐
๐ซ๐ ๐ต๐๐๐๐๐ ๐จ๐๐๐
@drnighatarif
NHS/Private GPwSI Womenโs Health.๐บMedical Broadcaster๐Author ๐ฅHealth Content Creator. ๐๐ฆ๐ฅ๐ช๐ข ๐ฆ๐ฏ๐ฒ๐ถ๐ช๐ณ๐ฆ๐ด:๐ซ๐ข๐ฏ@๐ฅ๐ฎ๐ญ-๐ถ๐ฌ.๐ค๐ฐm
Anil van der Zee ยฉ
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Swiftsandswallows
@swiftsswallows
@swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Ian Wright
@ianwright0
Twitter where strangers can become friends. @adidasfootball | @wrightyshouse | @crosswayspod | @carverpr | ๐ฉ [email protected]
Damian Roland
@damian_roland
Honorary Professor of Paediatric Emergency Medicine @uniofleicester bit.ly/3MrD1vZ Past Chair @PERUKItweep, Team @EM3FOAMed & @DFTBubbles #FOAMed
Gary Lineker
@garylineker
Once kicked a ball about. Now talk about kicking a ball about. The Rest Is Football @restisfootball @Goalhangerpods ..Instagram . Retweets are not endorsements
Keith Siau
@drkeithsiau
GI doctor with interests in endoscopy, gut health, liver & medicine. ๐ #GITwitter #LiverTwitter #MedEd. Occasional silliness. Siau rhymes with meow ๐บ
Karen Hargrave @karenlhargrave.๐ฆ.social
@karenlhargrave
Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME linktr.ee/ThereForME
Binita Kane
@binitakane
#LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Ageas UK
@ageasuk
We make insurance easy โ especially when you need it most. Find us at ageas.co.uk and through your local broker. Follow @AgeasBroker for broker news.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
๐บ๐ฆ Vickie Wells
@vickie_wells
Advanced Paediatric Nurse Practitioner- Leicester. ๐ณ๏ธโ๐ UTC/DHU
Healthwatch Leicester and Leicestershire
@healthwatchleic
๐ขMaking sure your voice is heard about NHS & social care to improve services ๐Meetings & events, feedbacks & surveys, Enter & View visits
Simmaron Research
@redefiningmecfs
Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
David Sinton
@sintydavid
๐โโ๏ธ ๐ด ๐
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues๐ค๐ผME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-authorโจ
Rachel Rowlands
@rachrwlnds
PEM Dr, searching for ways to improve care for kids Sailor, skier, sandy beach seeker and 'modern family manager' in my spare time All views my own #FOAM #PED
England
@england
๐ด๓ ง๓ ข๓ ฅ๓ ฎ๓ ง๓ ฟโค๏ธ
#MEAction Network
@meactnet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Sam Ghali, M.D.
@em_resus
ER Doctor | Resuscitation | Airway | Cardiovascular Emergencies | ECGs | Emergency Radiology | Trauma | Critical Care | #FOAMed | Patient Advocate
Royal College of Emergency Medicine
@rcollem
RCEM is the membership body representing Emergency Department (A&E) staff and their patients. #ResuscitateEmergencyCare
Williams Syndrome UK
@wsf_uk
Alan Shearer
@alanshearer
260 Premier League goals @BBCMOTD analyst, @premierleague @primevideosport @callawaygolf @hublot @SpeedflexLtd Instagram @alanshearer
Tracy Robinson
@tlrobinson41
maxillofacial (head and neck cancer) Advanced Clinical Practitioner at University Hospitals of Leicester. All views are my own.
Rebecca Loganโฟ๐ป๐๐ท#FBLC
@rebslogan
Wife/mum/#NHSnurse/fitness instructor on โธ๏ธ C19 survivor battling #LongCovid for 60 months. Advocating for LC sufferers in NI. LC advisor with @hope4mefibroni.
KarenG @tenaciousmumma.๐ฆ.social
@tenacious_mumma
Mum/carer fighting for my daughter Sophia, bedbound with #verysevereME #Lyme #POTS #chronicpain #allodynia #vertigo. Missing from life, existing in the dark.
Tina Rodwell #TeamPatient๐บ๐ฆ๐๐๐๐
@tinarodwell1
They called us activists ๐คฆโโ๏ธ I wear that slanderous name calling with pride for all the #MEheroes out there Fighting for my #MEhero son #TeamPatient๐
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
SEDSConnective
@sedsconnective
Hypermobility EDS / HSD Pain NEURODIVERGENCE ADHD Autism Dyspraxia TS Dyslexia Chair/Founder Jane Green MBE @JGJanegreenMBE Patron Dr Eccles @Bendybrain
Liz Campbell
@lizcamp45183873
Mum
Crafty Miss
@craftymissb
I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled insta: thecraftymissb
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic
Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets๐ซmed advice
Ciara Wright PhD, Positive Nutrition
@ciaraglenville
Nutritionist+Scientist - Positive Nutrition Clinics. Long Covid 2022 Remission/ Recovering with Enoxaparin & Lyme treatment 2025 ๐ค
Vicky Elliott
@drvickyelliott
Clinical Psychologist in Paediatric Psychology. Lead Psychologist at the East Midlands Congenital Heart Centre.
Sibylle Dahrendorf ๐ฅโ๏ธ
@sibylle_berlin
Once a Filmmaker || Stop denial of #ComplexChronicIllnesses || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #ME ||
David Noble ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
@davidpnoble63
Microbiologist & molecular geneticist. EU citizen. Welsh rugby fan. Swansea City fan. All views my own and do not reflect those of my employer๐ฟ
Tess Falor, Ph.D. | Renegade Research
@tessfalor
Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
@TheChronicCollaboration
@thechroniccolab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
SJ
@sharrie_hum
#LongCovidKids team member || Parent || #PIMS, #ME, #PP #POTS aware Raising awareness of #CleanAir || Also Teacher - Let the children #play!
WE&ME Foundation
@weandmecfs
WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Jenny Wilson
@jennywi04810918
Etta Loveday
@ettalovedayme
She/Her. Rising awareness for people living with Myalgic encephalomyelitis (ME). #ME #SevereME #VerySevereME
#ThereForME
@thereforme_uk
Kirsty
@kirstypaedsacp
All views are either my own or backed up with research!!!
Julie Houston
@julesahouston
Body malfunctioning since 1998 MECFS POTS MCAS. #LongCovidKids #LongCovid #PANS #PANDAS ally. #MasksInHealthcare #CleanAirForAll julesahouston.bsky.social
Michael Aldag
@michaelaldag12
not saying anything on here don't want to get cancelled
FFORA
@ffora_official
Wheelchair attachable fashion accessories. (and basically attachable to most things tubular...)
Paula McGowan OBE (Also on BlueSky)
@paulamc007
โขHon University Fellow- Fac Health โขFounder The Oliver McGowan Mandatory Training โขPatient Safety Trying to survive Cancer #Melanoma
Rebecca Ryan
@drrebeccaryan
Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS, hEDS.
๐ธ๏ธDr.T, PhD
@chydorina
PhD in Biology (not an MD). Cognitive health and chronic disease recovery.