In light of the just-published nonsense in a Scandinavian journal from the CBT/GET ideological brigades--calling themselves the "Oslo Chronic Fatigue Consortium"--I thought I'd re-post this interview I did with Yale's star immunobiologist Akiko Iwasaki: youtube.com/watch?v=ASaqfa…

TODAY IS YOUNG HEARTS DAY 29TH NOVEMBER. Here are our candles to remember young people with ME everywhere! If you asked Tymes Trust for a little gift for your child with ME it'll be there soon!

People with #MECFS had lower quality of life scores than people with other major illnesses.

Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up

"There's a culture and attitude that M.E. doesn't exist." For years many doctors believed M.E. was 'all in the mind' of those who were suffering. Times reporter Sean O'Neill lost his daughter Maeve 2021 aged 27 after suffering from severe M.E.

Save Millie's life! Another very severely ill #pwME is being mistreated & we share another call for help. Please sign & share this petition as widely as you can. chng.it/PPKvy6j2 via Change.org UK #MyalgicEncephalomyelitis #VerySevereME

Essential read for anyone involved in medical and nursing care of teenagers with #ME

'A Rollercoaster Of Awful Emotions': Family Speaks Out for NHS Overhaul to Prevent Deaths of Severely Ill ME Patients – Byline Times Thank you so much ⁦Laura Elliott⁩ for writing this amazing article about Millie! #severeME bylinetimes.com/2024/03/19/a-r…

Millie fears she may die in hospital unless doctors start taking her severe ME symptoms more seriously. She says the hospital enviornment is 'torture' but medics 'won't listen' ME Association #MEAction Network mirror.co.uk/news/health/se…

Millie is in 🏥 suffering from gastroparesis caused by severe #MyalgicEncephalomyelitis. Drs insist she has an eating disorder. There's a risk she could starve to death if she's forced to stay there + not treated properly. Pls #BringMillieHome. #DontLetMEDie GMC Royal College of Physicians

This is distressing footage but I'd like any AHPs to watch with the knowledge that people with severe ME can suffer extreme hypersensitivity to light. This isn't being overly dramatic. She doesn't need to "stop being upset". #SaveCarlasLife

M.E. takes away so much from those we love. Was pleased to lead a Westminster Hall debate UK Parliament yesterday in support of this community and very much welcomed the fresh commitments from Government. Action for ME

It's World ME Day - #MyalgicEncephalomyelitis is more common than you realise. It is EVERY health professional's duty to be aware of how to work safely with #pwME #WorldMEDay Chartered Society of Physiotherapy (CSP) CSP Students World Physiotherapy Royal College of Occupational Therapists

#GreatestMEdicalScandal

Sometimes it feels like we've been shouting into a void for the last 4 years. Health professionals who did not strive to learn how to manage this condition have a lot to answer for - frankly, there is no excuse now. theguardian.com/society/articl…

Today (8 August) is Severe ME Day. It's a day when we remember people who've lost their lives to ME and think of all those who are still suffering from the most severe forms of #MyalgicEncephalomyelitis. Vid link for #MedTwitter. #SevereME #severeMEday dialogues-mecfs.co.uk/films/severeme/

Coroner will be issuing a Prevention of Future Deaths report - the 1st for #ME "There is a need to dispel the deeply entrenched view, held especially by older medics, that ME is a psychological condition." Sean O'Neill #MaeveInquest telegraph.co.uk/news/2024/09/2…

"There isn't a single bed anywhere in England set aside for #ME" Poignant & eloquent piece on BBC Breakfast with sarah & Binita Kane The NHS urgently need to commission specialist ME services Wes Streeting #MaeveInquiry

Letter in Times today. #MEcfs

No one should starve to death in the UK. This is what happened to Maeve Boothby O’Neil due to the lack of awareness, expertise & services for people with severe #ME.She was disbelieved until she died. Coroner has issued a prevention of future deaths notice to NHSE & other bodies