michelle long (@chelleylong) 's Twitter Profile
michelle long

@chelleylong

Co founder @scolionetwork. Disability Service Manager. passionate friend, wife and mother of 3. Family is everything

ID: 3299084284

calendar_today26-05-2015 10:00:11

4,4K Tweet

534 Followers

559 Following

The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

📢 AV Room Briefing - Leinster House This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed

📢 AV Room Briefing - Leinster House 

This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. 

We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

Mick Caul Stephen Morrison Gillian Sherratt Sinn Féin Mary Lou McDonald 📢 AV Room Briefing - Leinster House This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed

<a href="/caulmick/">Mick Caul</a> <a href="/Stephen63224725/">Stephen Morrison</a> <a href="/GillSherratt23/">Gillian Sherratt</a> <a href="/sinnfeinireland/">Sinn Féin</a> <a href="/MaryLouMcDonald/">Mary Lou McDonald</a> 📢 AV Room Briefing - Leinster House 

This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. 

We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

As parents and part of the Scoliosis Advocacy Network, we were deeply disturbed by An Taoiseach’s angry response to Mary Lou McDonald in the Dáil yesterday. His frustration was misdirected at her, not the system that has failed children like Harvey. It’s not Simon Harris TD role

The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

⁉️How many children are waiting on a #scoliosis surgery in Ireland today ? ⁉️ 🚩We don’t know as Children's Health Ireland have stopped publishing wait lists.🚩 🚫They are also refusing to answer parents queries about their child’s wait list status 🚫 Enabled by Stephen Donnelly

⁉️How many children are waiting on a #scoliosis surgery in Ireland today ? ⁉️

🚩We don’t know as <a href="/CHI_Ireland/">Children's Health Ireland</a> have stopped publishing wait lists.🚩

🚫They are also refusing to answer parents queries about their child’s wait list status 🚫

Enabled by <a href="/DonnellyStephen/">Stephen Donnelly</a>
Spina Bifida & Hydrocephalus Paediatric Advocacy (@sbh_pag) 's Twitter Profile Photo

**And right now, children are suffering.** **Future babies, born with medical complexities, will suffer.** **Children still awaiting diagnosis, will suffer.** This impacts every one of us. The Scoliosis Advocacy Network #BackUs #BackUs

Louise O’Reilly TD for Dublin Fingal (@loreillysf) 's Twitter Profile Photo

Standing room only at the presentation from OrthoKidsIreland The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paediatric Advocacy organised by Mary Lou McDonald As Tommy said he has ‘lived his whole life on a waiting list’ These are the people who are impacted by Simon Harris’ broken promises They deserve so much better

Standing room only at the presentation from <a href="/orthokids_irl/">OrthoKidsIreland</a> <a href="/scolionetwork/">The Scoliosis Advocacy Network #BackUs</a> <a href="/SBH_PAG/">Spina Bifida & Hydrocephalus Paediatric Advocacy</a> organised by <a href="/MaryLouMcDonald/">Mary Lou McDonald</a> 

As Tommy said he has ‘lived his whole life on a waiting list’

These are the people who are impacted by Simon Harris’ broken promises They deserve so much better
Mary Lou McDonald (@maryloumcdonald) 's Twitter Profile Photo

Parents don’t want any more empty promises! We want care for these young people and children with scoliosis and spina bifida, because that is what they are entitled to!

Adam Higgins (@adam_higgins27) 's Twitter Profile Photo

“I’ve spent my whole life on waiting lists” - blown away by 14-year-old Tommy in Leinster House today calling for action to tackle spinal surgery waiting lists and pressing politicians for action. thesun.ie/news/13887639/…

The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

thesun.ie/news/13887639/… The family-led groups are urging the Health Minister and Taoiseach to publicly express confidence in the board at Children’s Health Ireland — and disband the board if they can not do this. Simon Harris TD Stephen Donnelly Spina Bifida & Hydrocephalus Paediatric Advocacy #BackUs

Stephen Morrison (@stephen63224725) 's Twitter Profile Photo

Tommy Long advocacy today for other children was a heroic act. But it shows that there is a massive issue within our society. When children have to speak out for other children it means that adults are failing. Stories were told today. No one can say they didn't know.

The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

It seems Simon Harris TD missed the memo. An Taoiseach promised to meet us & Spina Bifida & Hydrocephalus Paediatric Advocacy - just like he promised no child would wait more than 4 months for scoliosis care by the end of 2017. He doesn’t tend to keep his promises. We await a date to meet with you, Simon Harris TD,

It seems <a href="/SimonHarrisTD/">Simon Harris TD</a> missed the memo. 

An Taoiseach promised to meet us &amp; <a href="/SBH_PAG/">Spina Bifida & Hydrocephalus Paediatric Advocacy</a> - just like he promised no child would wait more than 4 months for scoliosis care by the end of 2017. 

He doesn’t tend to keep his promises. 

We await a date to meet with you, <a href="/SimonHarrisTD/">Simon Harris TD</a>,
The Scoliosis Advocacy Network #BackUs (@scolionetwork) 's Twitter Profile Photo

The reality is Simon Harris TD isn’t working with affected families. Parents don’t trust him after his broken promises on timely care, enabling Children's Health Ireland to evade accountability while children become inoperable. Stephen Donnelly can’t affirm confidence in the CHI board, yet

Spina Bifida & Hydrocephalus Paediatric Advocacy (@sbh_pag) 's Twitter Profile Photo

There were 50 kids waiting in 2014 and at the time that was viewed as dangerous there are now....well we don't know because you refuse to publish them but at least 287. You think that you have helped the situation Simon Harris TD? You talk about the clinical voice, there has been

There were 50 kids waiting in 2014 and at the time that was viewed as dangerous there are now....well we don't know because you refuse to publish them but at least 287.
You think that you have helped the situation <a href="/SimonHarrisTD/">Simon Harris TD</a>?
You talk about the clinical voice, there has been
Brendan Byrne (@brenbyrn2) 's Twitter Profile Photo

Two of the children waiting for #Scoliosis surgery. They were good enough for a photo opportunity in 2016 when Simon Harris TD made promises to ALL children waiting for surgery. Now he acts with petulance when reminded of his failure. He is Taoiseach & represents all of us

Two of the children waiting for #Scoliosis surgery. They were good enough for a photo opportunity in 2016 when <a href="/SimonHarrisTD/">Simon Harris TD</a> made promises to ALL children waiting for surgery. Now he acts with petulance when reminded of his failure. He is Taoiseach &amp; represents all of us