michelle long
@chelleylong
Co founder @scolionetwork. Disability Service Manager. passionate friend, wife and mother of 3. Family is everything
ID: 3299084284
26-05-2015 10:00:11
4,4K Tweet
534 Followers
559 Following
This in now in the territory of human rights breaches, cruel, inhumane, degrading treatment of an Irish child. #HelpHarvey Simon Harris TD / Micheál Martin
Mick Caul Stephen Morrison Gillian Sherratt Sinn Féin Mary Lou McDonald 📢 AV Room Briefing - Leinster House This is more than a look back—it's a call to action for the future of paediatric spina bifida and scoliosis services in Ireland. We’ll address the past 10 years of challenges but, more importantly, we’ll push for the urgent reforms needed
Is your elected representative showing up , we will update this list as they confirm attendance . Show your support tag and retweet Úna Keightley michelle long Claire Cahill Gillian Sherratt Stephen Morrison The Scoliosis Advocacy Network #BackUs #backus
As parents and part of the Scoliosis Advocacy Network, we were deeply disturbed by An Taoiseach’s angry response to Mary Lou McDonald in the Dáil yesterday. His frustration was misdirected at her, not the system that has failed children like Harvey. It’s not Simon Harris TD role
⁉️How many children are waiting on a #scoliosis surgery in Ireland today ? ⁉️ 🚩We don’t know as Children's Health Ireland have stopped publishing wait lists.🚩 🚫They are also refusing to answer parents queries about their child’s wait list status 🚫 Enabled by Stephen Donnelly
**And right now, children are suffering.** **Future babies, born with medical complexities, will suffer.** **Children still awaiting diagnosis, will suffer.** This impacts every one of us. The Scoliosis Advocacy Network #BackUs #BackUs
Standing room only at the presentation from OrthoKidsIreland The Scoliosis Advocacy Network #BackUs Spina Bifida & Hydrocephalus Paediatric Advocacy organised by Mary Lou McDonald As Tommy said he has ‘lived his whole life on a waiting list’ These are the people who are impacted by Simon Harris’ broken promises They deserve so much better
thesun.ie/news/13887639/… The family-led groups are urging the Health Minister and Taoiseach to publicly express confidence in the board at Children’s Health Ireland — and disband the board if they can not do this. Simon Harris TD Stephen Donnelly Spina Bifida & Hydrocephalus Paediatric Advocacy #BackUs
It seems Simon Harris TD missed the memo. An Taoiseach promised to meet us & Spina Bifida & Hydrocephalus Paediatric Advocacy - just like he promised no child would wait more than 4 months for scoliosis care by the end of 2017. He doesn’t tend to keep his promises. We await a date to meet with you, Simon Harris TD,
The Scoliosis Advocacy Network #BackUs Simon Harris TD Spina Bifida & Hydrocephalus Paediatric Advocacy Stephen Donnelly Micheál Martin Fine Gael Fianna Fáil Ombudsman for Children National Patient Safety Office Response was sent 5 days ago Simon Harris TD Why would parental advocacy groups wish to meet with CHI reps the same people who refuse to answer if children are even waitlisted? We await an invitation for what we asked for & were promised. A meeting with An Taoiseach.
The reality is Simon Harris TD isn’t working with affected families. Parents don’t trust him after his broken promises on timely care, enabling Children's Health Ireland to evade accountability while children become inoperable. Stephen Donnelly can’t affirm confidence in the CHI board, yet
Families and children are not happy with Simon Harris TD response on this national crisis for our children.
There were 50 kids waiting in 2014 and at the time that was viewed as dangerous there are now....well we don't know because you refuse to publish them but at least 287. You think that you have helped the situation Simon Harris TD? You talk about the clinical voice, there has been
Two of the children waiting for #Scoliosis surgery. They were good enough for a photo opportunity in 2016 when Simon Harris TD made promises to ALL children waiting for surgery. Now he acts with petulance when reminded of his failure. He is Taoiseach & represents all of us