Christina Baltais 💙🩵
@cbaltais
Artist exploring the intersection between art & advocacy, sharing my experiences living with ME/CFS
ID: 1214173933630476289
https://www.wordsasmedicine.com 06-01-2020 13:16:55
216 Tweet
566 Followers
366 Following
Tom Kindlon
@tomkindlon
With ME 36 years (30 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Jim Cantore
@jimcantore
Certified Broadcast Meteorologist and AMS Fellow. WX GEEK at TWC for 38+ years. Always awaiting mother natures latest temper tantrum. The journey is the reward.
Christopher C. Cuomo
@chriscuomo
@newsnation 8p and 11p east M-F SUBSTACK has my podcast AD FREE and exclusive Long Covid research and treatment.
Emma, thechronicsurvivor✨🕯
@chronicsurv1vor
Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
Mark Rutledge
@markhrutledge
Design Educator +Senior Creative + International Speaker/Lecturer +Futurist + Proud #Anishinaabe + CDP RGD Certified
Bhupesh K Prusty
@bhupeshprusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Kelly
@broadwaybabyto
Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. When you know better - do better. 😷
Judith
@judyintheskynet
Ex researcher (PhD) & artist, very severe #MECFS. Co-founder of blackferkstudio.com #CSFleak #MCAS #PostVAC #queer linktr.ee/Judyintheskynet
Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
A 😎 Long Covid + MECFS Billboards
@aaronca11
@lcmebillboards @lcmepirates notrecovereduk.org
Anil van der Zee ©
@anilvanderzee
Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #IACC #art2cureME #pwme #millionsmissing
Dan Wyke 🦠➡️🧠🔥
@dan_wyke
M.E. inactivist, person-centred counsellor (see link), recovering poet (Rack & Waterloo Press)
Daniel Moore
@talmandaniel
Curious & exhausted peace seeker, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Matt McGorry
@mattmcgorry
Maker of feels and procurer of LOLs. Activist. Bennett on @OITNB and Asher on @HowToGetAwayABC Instagram: @MattMcGorry
Joanna Teglund🕊️✊😷🍉Human life is sacred
@joannateglund
Until you make the unconscious conscious, it will direct your life and you will call it fate. ― C.G. Jung Truth, Beauty, Goodness. The 5th: You Shall Not Kill.
Sabrina Poirier (On Hiatus) 🇨🇦
@sabrina_poirier
Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Dianna Cowern
@thephysicsgirl
Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 youtube.com/physicsgirl
Smile For ME
@smileforme_xx
We are a charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 🩵
Christian Fellows
@chrisfellows21
Single father of 2 and raising my Son and Daughter, Fibro suffer, Champion for others and causes, help others in their Health n Wellness goals, and much more
davidtuller
@davidtuller1
Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B
@katybruce108
Myalgic Encephalomyelitis ME + POTS 38 years Donor to the @mecfsbiobank for 10 years & @DecodeMEstudy Please watch dialogues-mecfs.co.uk/videos/ #pwME
Collective Arts
@collectivebrew
Fusing the creativity of brewing with the inspired talents of emerging artists & musicians. #artplusbrewing
Lizzy H
@hopefullizzy
30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Rivka
@rivkatweets
Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productions
Kathleen Dennis
@kath_dennis
Post-acute infectious illness & ME/LC advocate | West Nile Virus/EBV/H.Pylori long hauler | prev @MSF now disabled former nurse | Equity in health care
María Richardson
@_diatoma
ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
#MEAction Network
@meactnet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing linktr.ee/meactnet
Janet Dafoe
@janetdafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Todd Davenport
@sunsopeningband
Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok, then it ain’t the end. DPT PhD MPH.
ME/CFS News
@mecfsnews
News, interesting information and commentary on ME/CFS. Mostly inactive these days.
Katie As
@ka_ashy
arty activist spirit, chronically ill, lesbian, she/her. UK. #LwiththeT @pwME I still don’t feel safe with any healthcare professionals @[email protected]
Billy Hanlon
@bhanlon15
ME/CFS | Long COVID | IACC
Jo
@cfs_jo
CFS(!) & POTS diagnosis, ME symptoms - trying to accept. Still me. Sense of humour intact. Proud “Anti-Recovery Activist” Mostly on justjo@bskysocial
ICanCME Research Network
@icancmeresearch
The primary resource to initiate, support and sustain innovative and collaborative #MyalgicEncephalomyelitis (ME) research in Canada. #ICanCME #PwME
Martin
@pausedme
#MECFS⎮#Lawyer by profession | #Musician by passion | PERSONAL ACCOUNT |
Whitney Dafoe
@dafoewhitney
Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Bake4ME
@bake4me_
💰 Donate £4 🧁 Bake 4 ME/CFS 👩🏼🤝👨🏽 Nominate 4 friends - Donation link below ⬇️
🥀
@lugaresxcomunes
we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd
Ragnhildvhlien
@ragnhildvhlien
Wife, mother of 3, trying to stay informed.
NickDets
@detsnick
Video Editor • Producer • Writer • #pwME • #MECFS bsky.app/profile/detsni…
Sibylle Dahrendorf 💥✌️
@sibylle_berlin
Once a Filmmaker || Stop denial of #ComplexChronicIllnesses || #SmallFiber #POTS #MCAS #CCI #Lyme #FQToxicity #FlagylToxicity #ME ||
sarah
@swastrosarah
#MaeveInquest updates in the space where thought is free of antagonising algorithm. Her legacy lives on swastrosarah.bsky.social
Long Covid Advocacy 💙
@longcovidadvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne 🛍️ longcovidadvoc.shop
@TheChronicCollaboration
@thechroniccolab
A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
[email protected] 🇵🇸
@sunrequiem_
🌻qigong/yangsheng enthusiast, abolitionist peer supporter, lived experience advocate and blogger. hopkins MPH/MBA, wellesley alum.
Apricot Tree Cafe
@apricottreecaf1
A place where Great Air Quality meets Great Food. Live AQ levels posted at the entrance. Masked Server can be requested.
WE&ME Foundation
@weandmecfs
WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
👻 ghost of air-terminal cafés ☕️
@mecfscomrade
she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️⚧️
Ishbel Frazer
@ishbelfrazer
Life in limbo due to the #GreatestMEdicaScandal
Clean Air Club
@clean_air_club_
Ensuring accessible and cleaner air for the Chicago arts and organizing scene. We provide air purifiers for artists and community organizers, free of charge.
Lange Covid-patiënten in Nederland
@pwlcholland
Communautair platform voor long covid-patiënten gevestigd in Nederland #LongCovid #pwLC #pwME Deel van @CareConnectlc
Post-Exertional Mayonnaise
@pempodcast23
Podcast about living with ME/CFS & chronic illness, creativity and making meaning with Dov Zeller and @talmandaniel
bethereificould
@bethereificould
A mirrorbox and map taking messages from people with M.E. or Long Covid to places they love but can no longer get to #ACEsupported #socialart #missingmillions
Lu Baker
@loobyloobaker
Kendra H.
@survivingcfs
31 | Disabled from #mecfs | Disability rights advocate | Formerly homeless now living in a nursing facility | Former English teacher trying to survive |
dianna haze
@diannahaze
Tweeting through the hazy brain fog of Severe Long Covid. (Chronically ill alter-ego of @thephysicsgirl)
4mm documentary film
@4mmfilm
A new film by @jenbrea. #mecfs #EDS #pots #longcovid #mcas Website: 4mm.film Social: linktr.ee/4mmfilm Coming 2026 (or 7).
AliExpress
@aliexpress_en
Official International Twitter account of AliExpress 🛍️ If you can imagine it, it's on AliExpress💕 👉Need help? Contact @AskAliExpress for customer support.
🌱
@glimmerinabsnce
MECFS 2010 - I don’t belong to the scars that they left on my soul
Hannah Siden
@hannah_siden
Writer | Director | Producer | Curiouser and curiouser!
Carole Bruce
@carolebruce17
💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. bsky.app/profile/cabruc…
Adam
@abrokenbattery
Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Christina
@christina4hope
ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
JE Barnard
@j_e_barnard
Incisive Editing Services #GoodTwitter MECFS amateur sleuth in The Falls Mysteries Seeking Steampunk? @JayneBarnard1 Linktree linktr.ee/je_barnard
Elizabeth Ansell
@elizansell
Founder + Executive Director @njfatigue. Previously at Showtime and ABC News, among other places. Quit job due to #MECFS. This is #NotJustFatigue.
Dr. Raven the Science Maven
@ravenscimaven
Molecular biologist helping people + companies globally learn + share science, for a scientifically engaged world. President of @TheScienceHaven. Views my own.
StarDust949
@stardust949
Aspiring to write for Stage & Screen. Dyslexic - So pardon the spelling. She/her. #pwME #POTS
🕸️Dr.T, PhD
@chydorina
PhD in Biology (not an MD). Cognitive health and chronic disease recovery.