Float Like a Buttahfly 🦋 Kerry Wong
@buttahflyk
Writer & Patient Advocate 🦋
arthritis | chronic illness | disability | invisible illness | rare disease | sarcoidosis
Creator, Kaleidoscope RareDisease Stories
ID:370228061
https://linktr.ee/buttahflyk 08-09-2011 17:28:59
11,6K Tweets
1,0K Followers
1,0K Following
In “Living in My Box – Coping with Rare Disease,” OhSarcWarrior shares how he balances needs, wants, and life with #sarcoidosis .
Read his story & 59 others in Kaleidoscope #RareDisease Stories, now available on Amazon.
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#SarcoidosisAwarenessMonth #KaleidoscopeRare #SaySarcoidosis
Float Like a Buttahfly 🦋 Kerry Wong SarcoidosisUK Such an honour to be part of this vital and important book
A granuloma is a cluster of white blood cells that have been “walled off” from the rest of your body to try to protect you from something your immune system thought was harmful (Cleveland Clinic)
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#SarcoidosisAwarenessMonth #sarcoidosis #SarcStrong #SarcWarrior #SaySarcoidosis
The reviews are in! Here's what one reader had to say.
Have YOU gotten your copy of Kaleidoscope #RareDisease Stories? Please review on Amazon or Goodreads.
Not yet? Order yours on Amazon sites worldwide. Proceeds donated to NORD.
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#KaleidoscopeRare #ZebraStrong 🦓
Sarcoidosis can occur in any organ of the body. In about 90% of patients, #sarcoidosis affects the lungs and/or lymph glands. This is also known as #PulmonarySarcoidosis . The information on this page is for anyone affected by pulmonary sarcoidosis.
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#SarcoidosisAwarenessMonth
In “ #Sarcoidosis : Snowflakes, Surviving and Self-Advocacy,” Peter Devonald shares how he found comfort in speaking up for himself and others in the sarcoidosis community.
Read his story (& 59 more) in Kaleidoscope #RareDisease Stories.
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#Sarcoidosis AwarenessMonth SarcoidosisUK
Sarcoidosis can occur in almost any organ. In 5 to 15% of patients with #sarcoidosis , the disease occurs somewhere in the nervous system. This is called #neurosarcoidosis .
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#SarcoidosisAwarenessMonth #SarcLife #SarcStrong #SaySarcoidosis
#Sarcoidosis is mainly diagnosed in people aged 20 to 40.
Sarcoidosis in children is extremely rare ... but it has been estimated at approximately 0.4 to 1 per 100,000 children. (SarcoidosisUK).
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#Sarcoidosis AwarenessMonth #SarcLife #SarcStrong #SarcWarrior #SaySarcoidosis
For so long, I resisted the idea of #marijuana to ease my symptoms. I'm glad I came around.
sarcoidosisnews.com/columns/my-jou…
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#SarcoidosiAwarenessMonth #sarcoidosis #SarcStrong #SaySarcoidosis #cannabis #ChronicIllness #ChronicPain #MedicalMarijuana BioNews Sarcoidosis News
Double thanks now: to Linda for purchasing Kaleidoscope #RareDisease Stories for her sister, 15-year #SarcoidosisWarrior Carolyn, and to Carolyn for sharing this pic!
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a.co/d/1qhe4Je
#KaleidoscopeRare #sarcoidosis #SarcoidosisAwarenessMonth #SarcStrong #ZebraStrong 🦓
Help us DRIVE awareness on World AUTOimmune & AUTOinflammatory Arthritis Day! If you have an AiArthritis disease, you know someone who does, or have some extra free time that you want to donate to a good cause, you are welcome to join us! #AiArthritisDay
forms.gle/DVcyQQfnVhzkWz…
The reviews are in! Here's what 1 reader had to say.
Have YOU gotten a copy of Kaleidoscope #RareDisease Stories? Please post a review on Amazon or Goodreads.
Not yet? Order on Amazon sites worldwide. Proceeds donated to NORD.
~🦋
#KaleidoscopeRare #PatientStories #ZebraStrong 🦓
Sarcoidosis of the Liver affects the majority of patients with #sarcoidosis (up to 70%). However most of these patients rarely or never show symptoms in the liver. They are known as asymptomatic patients. Find out more below.
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#SarcoidosisAwarenessMonth SarcoidosisUK
In “Living with Neurosarcoidosis,” Brad shares a lifetime of illness and how he has changed his perspective to enjoy his life with #neurosarcoidosis .
Read his story -- and 59 others -- in Kaleidoscope #RareDisease Stories, now available on Amazon
April is
#Sarcoidosis AwarenessMonth
#Sarcoidosis
#RareDisease
we support the month at @Ataxia_and_me #Ataxia #charity Wales
#Patients helping Patients
#StrongerTogether
cc
Float Like a Buttahfly 🦋 Kerry Wong
Caring Hands Sarcoid
Wales Gene Park