SarcoidosisUK(@SarcoidosisUK) 's Twitter Profileg
SarcoidosisUK

@SarcoidosisUK

SarcoidosisUK is the national sarcoidosis charity. We provide support and information to anyone affected. We also raise awareness and fund research into a cure.

ID:2966210861

linkhttp://www.sarcoidosisuk.org calendar_today07-01-2015 16:01:25

1,2K Tweets

2,5K Followers

287 Following

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We'd like to welcome Graham as our new Senior Executive!

He is excited to be joining the team at this time and is very aware of the challenges facing those with sarcoidosis as a member of his close family has the disease.

Get to know our team: buff.ly/44gm7rD

We'd like to welcome Graham as our new Senior Executive! He is excited to be joining the team at this time and is very aware of the challenges facing those with sarcoidosis as a member of his close family has the disease. Get to know our team: buff.ly/44gm7rD
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Join us for the next London Support Group meeting taking place on Monday 29th April at 7.00pm!

This is a virtual event, taking place on Zoom, and is open to anyone in London and the surrounding areas.

Please contact [email protected] for more details!

Join us for the next London Support Group meeting taking place on Monday 29th April at 7.00pm! This is a virtual event, taking place on Zoom, and is open to anyone in London and the surrounding areas. Please contact info@sarcoidosisuk.org for more details!
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We're wishing Greg the best of luck for the Plymouth Half Marathon this weekend🏃‍♂️

Take a look at his JustGiving page to find out why he's fundraising for us. We are so grateful for his support and we'll be cheering you on every step of the way 💙
buff.ly/3xSlvMZ

We're wishing Greg the best of luck for the Plymouth Half Marathon this weekend🏃‍♂️ Take a look at his JustGiving page to find out why he's fundraising for us. We are so grateful for his support and we'll be cheering you on every step of the way 💙 buff.ly/3xSlvMZ
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Nominate SarcoidosisUK for a £5,000 grant from the Benefact Group today!

Click here to nominate us: health.movementforgood.com/#nominateAChar…

This is free to do and should only take a couple of minutes, thank you so much for your support! 💙

Click 1063986 - SARCOIDOSISUK

Nominate SarcoidosisUK for a £5,000 grant from the Benefact Group today! Click here to nominate us: health.movementforgood.com/#nominateAChar… This is free to do and should only take a couple of minutes, thank you so much for your support! 💙 Click 1063986 - SARCOIDOSISUK
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Dr Tarunya Arun, Consultant Neurologist at the University Hospitals Coventry and Warwickshire has created this short video where she discusses neurosarcoidosis & some of the challenges with diagnosis and management.

To watch the whole video, click here: youtu.be/kpFznTxBhfA

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Last Friday, the office team took on the length of the Victoria Tube Line, due to it's blue branding, to raise awareness of sarcoidosis as part of our Go Blue awareness month campaign! We walked 15.6 miles and it took us just under 6 hours. buff.ly/3IGSu8S

Last Friday, the office team took on the length of the Victoria Tube Line, due to it's blue branding, to raise awareness of sarcoidosis as part of our Go Blue awareness month campaign! We walked 15.6 miles and it took us just under 6 hours. buff.ly/3IGSu8S
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Dr Rakesh Sharma, Susan Gilmour, Cardiac Sarcoidosis Specialist Nurse, & Alexander Liu, Senior Registrar for the service at the Royal Brompton Hospital discuss cardiac devices, the DVLA, & the support and information available.

Watch the full video here: buff.ly/4aFDdSi

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We have a new information leaflet about Sarcoidosis Medication📣It covers different treatment options, how they work, their administration & potential side effects.

Thank you to Dr K Bechman and Dr J Galloway 💙

Download: buff.ly/4aDCalO
Order: buff.ly/4cR1ciO

We have a new information leaflet about Sarcoidosis Medication📣It covers different treatment options, how they work, their administration & potential side effects. Thank you to Dr K Bechman and Dr J Galloway 💙 Download: buff.ly/4aDCalO Order: buff.ly/4cR1ciO
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🌟SARCOIDOSISUK AWARENESS MONTH RAFFLE 🌟

We have over 17 amazing prizes, thank you to everyone who has donated a prize 💙 £2 per ticket!

You must be 16+ to enter. Click here to enter now and for information about eligibility to enter: buff.ly/3TWx4tW

🌟SARCOIDOSISUK AWARENESS MONTH RAFFLE 🌟 We have over 17 amazing prizes, thank you to everyone who has donated a prize 💙 £2 per ticket! You must be 16+ to enter. Click here to enter now and for information about eligibility to enter: buff.ly/3TWx4tW
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We are excited to share this video where Dr James Galloway, at King's College Hospital, talks about Sarcoidosis and the Joints, Muscles and Bones.

He discusses symptoms, and treatment options. Find the full version of this video and more info here: buff.ly/45rX0kS

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SarcoidosisUK Charity Ambassador Kemi is hosting an Open Mic Sharing Night for people affected by sarcoidosis! 📣

'Come join us for a cozy night in of sharing and support as we come together online to share our stories about sarcoidosis'

buff.ly/4cU2LfO

SarcoidosisUK Charity Ambassador Kemi is hosting an Open Mic Sharing Night for people affected by sarcoidosis! 📣 'Come join us for a cozy night in of sharing and support as we come together online to share our stories about sarcoidosis' buff.ly/4cU2LfO
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The next Bristol Support Group Meeting meeting is taking place on Tuesday 16th April!

This is a virtual event and is open to anyone in Bristol and the surrounding areas. Get in touch on [email protected] for more details!

The next Bristol Support Group Meeting meeting is taking place on Tuesday 16th April! This is a virtual event and is open to anyone in Bristol and the surrounding areas. Get in touch on info@sarcoidosisuk.org for more details!
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The next Glasgow Support Group Meeting is taking place on Tuesday 16th April!

This is an in-person event and is open to anyone in Glasgow and the surrounding areas. Get in touch on [email protected] for more details!

The next Glasgow Support Group Meeting is taking place on Tuesday 16th April! This is an in-person event and is open to anyone in Glasgow and the surrounding areas. Get in touch on info@sarcoidosisuk.org for more details!
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We have a new SarcoidosisUK Support Services Poster!

Our goal is to ensure that everyone affected by sarcoidosis is aware of the free support available for them and that they're not alone.

You can order this poster to give your local medical centre here: buff.ly/3xpOY0o

We have a new SarcoidosisUK Support Services Poster! Our goal is to ensure that everyone affected by sarcoidosis is aware of the free support available for them and that they're not alone. You can order this poster to give your local medical centre here: buff.ly/3xpOY0o
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We're wishing Sam and George the best of luck as they take on the London Landmarks Half Marathon this Sunday!🏃‍♀️

They are fundraising for us in memory of their Dad. Thank you for all that you are doing to support our charity! 💙

buff.ly/3VHPcu0

Good Luck!

We're wishing Sam and George the best of luck as they take on the London Landmarks Half Marathon this Sunday!🏃‍♀️ They are fundraising for us in memory of their Dad. Thank you for all that you are doing to support our charity! 💙 buff.ly/3VHPcu0 Good Luck!
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We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is the impact on their mental health.

Click here more information about and resources for sarcoidosis and mental health: buff.ly/2ZnHcTR

We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is the impact on their mental health. Click here more information about and resources for sarcoidosis and mental health: buff.ly/2ZnHcTR
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We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is the lack of co-ordinated care. It can be really difficult for patients if there is no-one to lead their care.

'Being passed from department to department was stressful.'

We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is the lack of co-ordinated care. It can be really difficult for patients if there is no-one to lead their care. 'Being passed from department to department was stressful.'
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We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is chronic fatigue. The severity of sarcoidosis seems to have no influence on the degree of fatigue experienced.

Find out more here: buff.ly/3xd4g8P

We're taking today to share why sarcoidosis is not a joke. One thing people wish was taken more seriously is chronic fatigue. The severity of sarcoidosis seems to have no influence on the degree of fatigue experienced. Find out more here: buff.ly/3xd4g8P
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