
Float Like a Buttahfly 🦋 Kerry Wong
@buttahflyk
Just a happy hippie trying to do some good, living w/ bunch of chronic illnesses that only THINK they can stop me
~🦋
#AdvocateForArthritis #SarcChat 🔯 she/her
ID:370228061
https://linktr.ee/buttahflyk 08-09-2011 17:28:59
11,0K Tweets
989 Followers
982 Following

NY-area #SarcoidosisWarriors :
#SarcoidosisFamilyReunion has been moved to Sun 6/4. All else the same:
$60/pp includes brunch, raffles, gift bags, & more.
Learn more: bit.ly/SarcFamReunion
Reserve: PayPal to [email protected]
🦋
#sarcoidosis #SarcFamily #SarcStrong


It’s #InfusionDay !
Looking at last week’s post, there is just a world of difference ...
~🦋
#infusion #dysautonomia #neuropathy #POTS #RareDisease #sarcoidosis #SmallFiberNeuropathy #SSFN #CovidIsntOver #WearPair 🤓 #IVIGinStyle #AlwaysCoordinated 😘
instagram.com/p/CqV4ARWORYM/…

💜❄ Last call! ❄💜
I'll be finishing up my #SarcoidosisAwarenessMonth calendar this week, so if you've got something going on lmk so I can share it with the #sarcoidosis community.
~🦋
Life and Breath Fnd Sarcoid Awareness Film Caring Hands Sarcoid Sarcoidosis News SarcoidosisUK FSR


Today in #MyHipstory ... HIP HIP HOORAY!!
TL;DR after suffering for years and being brushed aside, I've got a new ortho who agreed to do my #TotalHipReplacement !
~🦋
#arthritis #AdvocateForArthritis
#ArthritisWarrior #RheumChampion #SarcStrong




Had a great conversation w/ Tiffany & Kelly earlier about being a #MysteryPatient .
Tune in Sun 4/2 for the show!
~🦋
#AiArthritis #AutoimmuneArthritis #AutoimmuneSoup #AutoinflammatoryArthritis #RheumatoidArthritis #sarcoidosis #SarcoidArthritis #SjogrensSyndrome #RheumChampion


Your Story Matters!
Learning that you have a #RareDisease can be scary. When no one you know has heard of it, it's easy to feel lonely, lost, & isolated, too.
But you can change that.
bit.ly/kaleidoscopera…
~🦋
#KaleidoscopeRare #RareDisease Stories #RareDisease #ZebraStrong



It's almost #SarcoidosisAwarenessMonth !
Are you planning a #sarcoidosis event, activity, campaign, program, or webinar next month?
I'd love to include it on my #SAM calendar!
Send to [email protected]
~🦋
#SarcAwareness #SarcLife #SarcStrong
instagram.com/p/CqA2fIBN4EO/…

It's #InfusionDay !
All went smoothly here today, a refreshing change from the complete opposite this morning: ✨
~🦋
#IVIGinStyle #AlwaysCoordinated 😘
instagram.com/p/CqEJxaLvgdy/…



It's almost #SarcoidosisAwarenessMonth !
Are you planning a #sarcoidosis event, activity, campaign, program, or webinar next month?
I'd love to include it on my #SAM calendar!
Send details, pics, & links to [email protected]
~🦋
#SarcAwareness #SarcLife #SarcStrong

