NY-area #SarcoidosisWarriors :
#SarcoidosisFamilyReunion has been moved to Sun 6/4. All else the same:
$60/pp includes brunch, raffles, gift bags, & more.
Learn more: bit.ly/SarcFamReunion
Reserve: PayPal to [email protected]
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#sarcoidosis #SarcFamily #SarcStrong

It’s #InfusionDay !
Looking at last week’s post, there is just a world of difference ...
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#infusion #dysautonomia #neuropathy #POTS #RareDisease   #sarcoidosis #SmallFiberNeuropathy #SSFN #CovidIsntOver #WearPair 🤓 #IVIGinStyle #AlwaysCoordinated 😘
instagram.com/p/CqV4ARWORYM/…

💜❄ Last call! ❄💜
I'll be finishing up my #SarcoidosisAwarenessMonth calendar this week, so if you've got something going on lmk so I can share it with the #sarcoidosis community.
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Life and Breath Fnd Sarcoid Awareness Film Caring Hands Sarcoid Sarcoidosis News SarcoidosisUK FSR

This is not a surprise to any rheumatic disease patient who’s dealt with the incredibly frustrating, dehumanizing process of insurance company denials. Just unconscionable. #rheum

Today in #MyHipstory ... HIP HIP HOORAY!!

TL;DR after suffering for years and being brushed aside, I've got a new ortho who agreed to do my #TotalHipReplacement !
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#arthritis #AdvocateForArthritis
#ArthritisWarrior #RheumChampion #SarcStrong

I've been on this planet 35 years, I was born #rare was no NB screening for all the complex diseases I have. All public policies are #publichealthpolicies . And if we want healthy functioning adults then we must expand the program all of the #world . Rare policies affect us all.

Republicans will force a 10 year old to carry her rapist’s baby to term, let a 6 year old carry a gun, permit a 12 year old to work an 8 hour shift in a meat packing plant and allow a grown man to marry a 14 year old with a Judge’s consent, all while telling us that the reason…

Had a great conversation w/ Tiffany & Kelly earlier about being a #MysteryPatient .
Tune in Sun 4/2 for the show!
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#AiArthritis #AutoimmuneArthritis #AutoimmuneSoup #AutoinflammatoryArthritis #RheumatoidArthritis #sarcoidosis #SarcoidArthritis #SjogrensSyndrome #RheumChampion

Your Story Matters!

Learning that you have a #RareDisease can be scary. When no one you know has heard of it, it's easy to feel lonely, lost, & isolated, too.

But you can change that.
bit.ly/kaleidoscopera…
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#KaleidoscopeRare #RareDisease Stories #RareDisease #ZebraStrong

Wishing all those who celebrate a joyous Ramadan.

May you have an easy and meaningful fast, and may the month and year to come full your life with peace, serenity, good health, and love.

Ramadan Mubarak! رمضان مبارك
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#Ramadan ☪️ #Ramadan 2023 #Ramadan Kareem #Ramadan Mubarak

It's almost #SarcoidosisAwarenessMonth !
Are you planning a #sarcoidosis event, activity, campaign, program, or webinar next month?

I'd love to include it on my #SAM calendar!

Send to [email protected]
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#SarcAwareness #SarcLife #SarcStrong
instagram.com/p/CqA2fIBN4EO/…

It's #InfusionDay !
All went smoothly here today, a refreshing change from the complete opposite this morning: ✨
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#IVIGinStyle #AlwaysCoordinated 😘
instagram.com/p/CqEJxaLvgdy/…

donald trump isn’t going to be arrested because he’s disliked.
Although he is.
It’s not because he’s mean spirited or small.
Although he is.
It’s not because he is a racist, sexist, xenophobic fear mongering bigot.
Although he is.
It’s not because he’s an incurious idiot.…

Just posted a photo instagram.com/p/CqBgcTeO9rt/…

It's almost #SarcoidosisAwarenessMonth !
Are you planning a #sarcoidosis event, activity, campaign, program, or webinar next month?

I'd love to include it on my #SAM calendar!

Send details, pics, & links to [email protected]
~🦋
#SarcAwareness #SarcLife #SarcStrong

Rest in Peace and Power to Minnesota public school lunch worker Philando Castile, who would give kids free lunch, regardless of what they owed. He should be here to see this.