Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profileg
Float Like a Buttahfly πŸ¦‹ Kerry Wong

@buttahflyk

Just a happy hippie trying to do some good, living w/ bunch of chronic illnesses that only THINK they can stop me
~πŸ¦‹
#AdvocateForArthritis #SarcChat πŸ”― she/her

ID:370228061

linkhttps://linktr.ee/buttahflyk calendar_today08-09-2011 17:28:59

10,6K Tweets

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Caring Hands Sarcoid(@Sarcoid_Network) 's Twitter Profile Photo

Rest in Heavenly Peace Anna Blaney-Pleasant. Your words of wisdom, your encouragement and your warmth will be missed. We’re sending our heartfelt condolences and prayers to Anna’s family, Sarcoidosis community and all that had the pleasure of knowing her.πŸ’œπŸ™πŸ½πŸ’œ

Rest in Heavenly Peace Anna Blaney-Pleasant. Your words of wisdom, your encouragement and your warmth will be missed. We’re sending our heartfelt condolences and prayers to Anna’s family, Sarcoidosis community and all that had the pleasure of knowing her.πŸ’œπŸ™πŸ½πŸ’œ #Sarcoidosis
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Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profile Photo

Day 19: I am so grateful that I can wake up with the love of my life to this incredible view this week, our own private little paradise.
~πŸ¦‹
@ Crash Boat Aguadilla instagram.com/p/ClKJVkWvb1d/…

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Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profile Photo

'They mean well, but ...'
This week's Sarcoidosis News column offers a new perspective and practical advice for showing the in your life that you care.

What would YOU add?
πŸ¦‹

sarcoidosisnews.com/columns/what-s…

'They mean well, but ...' This week's @SarcoidosisNews column offers a new perspective and practical advice for showing the #SarcoidosisWarrior in your life that you care. What would YOU add? πŸ¦‹ #sarcoidosis #caregiver sarcoidosisnews.com/columns/what-s…
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Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profile Photo

THIS!!
It's not that planners are evil & looking to push us out of their world ... but if they don't know us, don't know about us and our needs, they can't address them. That's why we can't leave it up to 'them.'
WE need to be in the room where it happens.
~πŸ¦‹

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Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profile Photo

Thanks for joining us for today’s . Listen to the original DEIA episode of International Foundation AiArthritis Voices 360 Talk Show at bit.ly/3UGy9F5, and check out all the episodes at bit.ly/3hJZIip.
Byeeeeeee!!

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Float Like a Buttahfly πŸ¦‹ Kerry Wong(@buttahflyk) 's Twitter Profile Photo

Q6. Can you tell us about a time you were unable to participate in an event or activity because it was for you? How did that feel?
What about a time you were able to attend because your health needs were considered? How was it made for you?

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