“I wish you never find out how much you can live without” A comment I saw on a Reddit post of a mild ME/CFS patient asking severe patients how they can live without socialising or a job.

CURE-ID is reopening the #LongCovid treatment survey! Please make a new report if you haven’t, or update your existing one. They particularly need: a) Treatments that *haven’t* worked b) Newer treatments (monoclonals etc) c) More data overall, to find significance in analysis 1/

Wearing a mask is an act of resistance. It helps protect your health and the health of those around you. It tells the government you don’t believe anyone is expendable. It says you value community care. It shows solidarity with the disability community. Covid is not over.

!!!!!

“Most of the people I’ve seen with #MECFS are so much sicker than my cancer patients.” Dr. Fridbjörn Sigurdsson, a former medical oncologist now focused on ME/CFS, speaking at the 2025 @Invest_in_me conference. Thanks to ME/CFS Science for finding the clip.

Twenty one pages of questions to start a disability application vs one page for MAID.

Your gut microbes may influence how well vaccines protect you! 🦠 🧬 New study from Vaccine Immunology Group Nimesh Gupta of @BRIC_NII reveals how a gut microbial metabolite, sodium butyrate, suppresses antibody-producing immune responses by inhibiting key T–B cell interactions —

“What does it mean to love anyone or anything, in a world whose vanishing is accelerating, perhaps beyond our capacity to save the things that we love most?”

If someone you love has ME/CFS, act. When they can’t fight for change anymore, you’re the one most incentivized to do so. It’s not fair, but it’s true: progress depends on those who can act. If you don’t, no one will. We need an order of magnitude more people involved.

another sad and steadily relatable tweet from 2021.

It’s just so weird how every single time republicans are about to totally self destruct democrats rush in and do something that bails them out. Probably nothing.

One more thing: for everyone wondering why Americans don’t just rise up and whatnot, it’s not just police that keep people from doing it, it is also Democrats who have conditioned the American psyche that things can only get worse, not better. Today is an example of that.

This is also where “controlled opposition” accusations come from.

Calling mask bans “sometimes well-intentioned” while eulogizing a disability rights activist is so evil

Resist the urge to immediately turn your rage & grief into words, into fancy metaphors, into something consumable by others. Resist the urge to excavate the wounds for the lesson. We can just exist, go to the water, grieve + scream + cry. We don’t have to make it Instagram-able.

Same lives plans mad stole life. Die Nachricht einer lieben Schwerstbetroffenen - für Mila auf 6 Silben kondensiert. So wichtig, dass jemand die Situation versteht.

Mark Wright My daughter (then 13) was ditched by friends after a few months; family friends took about a year. It’s startling how little life long friendships mean to people when a child becomes ill with this. We have a handful of people who really have our back still; I can count them on

FUUUUUUUUUCK OOOOOOOOOOFFF

Selectively disbelieving your governments about everything but Covid is choice based on convenience not rigour.