Ken McEwen

@kmpr

Retired PR chairman. Burgess and Fellow of the IoD. Former radio presenter and motoring writer. Living with PLS variant of #MND.

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ALS Advocacy

@alsadvocacy

ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.

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Breast Cancer Now

@breastcancernow

However you're experiencing breast cancer, we're here. Formed by the merger of @BCCare and @BreastCancerNow.

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The Lancet

@thelancet

Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.

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Christine ‘chrissie’ Batts 💙

@chrissie40

Specialist Nurse working in #nhs. raising awareness of Motor Neurone Disease( MND). proud mum: 2 girls & 1 #westie 🐾

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Kelsie Snow

@kelsieswrites

Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites

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IMNDA

@imnda

The Irish Motor Neurone Disease Association (IMNDA) is the primary support organisation for people affected by Motor Neurone Disease. CHY 8510 R.C.N 20021009

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Lawrence Cowan

@lacowan

Led efforts that funded Scotland’s biggest ever #MND drug trial @mndsmart. CEO @sbhscotland. Stroke survivor. All views own etc

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Cleft Lip and Palate Association

@clapacommunity

The Cleft Lip and Palate Association (CLAPA) is the national charity for people affected by cleft lip and palate in the United Kingdom.

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Iain McWhirter

@iainmcw

CEO at @revivems | Trustee at @BOOM_Arts & Neurological Alliance of Scotland| Previously @MNDScotland | Today's rain is tomorrow's whisky 🥃

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Chris O'Sullivan (he/him)

@mentalcapital

Charity comms, fundraising and leadership. Passionate about mental health. Ally, parent, photographer. Tweeting personal views only.

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Changing Faces

@faceequality

We are the UK's leading charity for everyone with a mark, scar or condition - providing support and promoting respect.

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NHS Lothian

@nhs_lothian

NHS Lothian news & health information. If you have a medical question please speak to your GP or call NHS24 on 111. Please note, our feed is not monitored 24/7.

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Clyde 1 News

@clyde1news

The award-winning Clyde 1 News team brings you all the breaking news and exclusive stories you want to hear. Got a story? Contact [email protected]

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Sandra Abrevaya

@sabrevaya

Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.

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British Skin Foundation

@bsfcharity

The BritishSkinFoundation raises money for vital #research for all types of skin disease including skin cancer. Follow us on IG for more updates: @bsfcharity

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Appearance Research

@car_uwe

CAR: a centre of excellence in psychological & interdisciplinary research of appearance & body image

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Aaran McDonald

@aaranmcdonald

23 | Socialist & Trade Unionist | Fundraiser Lead in the Charity Sector | Church of Scotland Elder | Tweets and views are my own

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Laura Green

@heblau

Senior Lecturer & Programme Director B/M/Nursing at @FBMH_UoM #PalliativeCare #TBL Impermanent & imperfect human

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David Setters

@dsetters

Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.

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CathyACummings (she/her)

@cathyacummings

Exec.Dir. Intl Alliance of ALS/MND Assoc. We are stronger together! Proud CSAE member and volunteer. RT's are not endorsements, views are my own.

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Steve Barrett OBE, Cert. Hon.

@barrett_steve

Retired Director of Prisons, living with and fighting #MND and lifelong Jambo 🇱🇻 @stevebarrett.bsky.social

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Catherine Deakin

@catdeakin

@UKLabour Councillor for St James, Waltham Forest | Charity CEO

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GoodLifeDeathGrief

@lifedeathgrief

Working to make Scotland a place where people help each other through the difficult times that can come with death, dying, loss and care.

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Jamboatthehelm

@steviemorris007

Life is shorter for me by the minute but I intend to make sure every minute counts. #lovefamilylovelife

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Roslyn Neely

@neely_r

CEO @echcharity #ChildFirstPatientSecond Supporting children & young people in hospital, and their families

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MND Association

@mndassoc

Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND

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Mayuri Om Saxena

@mayuri_saxena

40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 linktr.ee/mayurisaxena

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Barbara 🎶

@_barbaraosborne

Chief Executive 🎶@MiHCUK #JoyThroughLiveMusic 🥁 Former Board member @Health_in_Mind ☀️#ProudFundraiser 💡All own views 🦻 #HearingLoss 🤗 She/her

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Gillian Owen

@gillieowen

PR, comms & campaigns for causes I care about. Rediscovering the fun of cycling and weekend netball player. All views here are my own etc #forthegirl

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British Neuroscience Association

@britishneuro

Connecting, representing and promoting neuroscience and neuroscientists across the globe. Follow us on @britishneuro.bsky.social

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ACOSVO

@acosvo

The Association of Chief Officers of Scottish Voluntary Organisations - For Scotland's Voluntary Sector Leaders #Leadership #VoluntarySector #ACOSVOMembers

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Kaye Nicoll 💙

@kayenicoll

SPDN NE Edinburgh @QMUniversity @edinburghnapier graduate (adult nurse) @ScotLDAN core team that won the Andrew Parker RCNi award!! Views are my own

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British Dermatological Nursing Group

@_bdng

The twitter feed of the British Dermatological Nursing Group, a membership organisation for nurses & healthcare professionals with an interest in dermatology.

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Dermatology_UKDCTN

@uk_dctn

A collaborative network of dermatologists, dermatology nurses, researchers & patients developing high quality, independent clinical trials on skin disease.

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Vicky Browning

@browning_vicky

Interim charity CEO

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ALS/MND Alliance

@alsmndalliance

A World Free of #ALS #MND

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Bruce Virgo

@bvirgo1

Aussie #MND #ALS Warrior now living in Scotland. Retired Maritime/Shipping lawyer (non-practising - Australia, England/Wales & Scotland).

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Euan MacDonald Centre

@euanscentre

We conduct vital research into motor neuron disease. Based at the University of Edinburgh, we unite over 250 scientists and doctors across Scotland.

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Andrea Pauls Backman (she/her)

@andreabackman05

Follow me at AndreaALSstrategy.bsky.social. Passionate about people w ALS/MND & fighting for cures.

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Scottish Government Jobs

@scotgovjobs

Official Scottish Government account for recruitment. We promote careers which make a difference to public services in Scotland. Retweets are not endorsements.

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Hande Ozdinler

@drozdinler

Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.

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Fergal Waldron

@fergalwaldron

Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis

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Edinburgh Children's Hospital Charity

@echcharity

More than medicine ❤️ We help children & families in hospital in Edinburgh & East of Scotland. Donate today to help seriously ill children. 👇

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Dr Nicola Marie Stock

@nicolamarie

Associate Professor of Psychology @CAR_UWE. Research Consultant. TEDx speaker. #VisibleDifference #Diversity #Appearance #CraniofacialConditions #Healthcare

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Ammar Al-Chalabi

@ammaralchalabi

Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social

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Face Equality International

@faceequalityint

🌍 Global alliance of NGO's ensuring the #FacialDifference community can live freely without indignity or discrimination. We're fighting for #FaceEquality.

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healthandcare.scot

@hacscot

Scotland's only dedicated health and social care news channel. Get in touch via [email protected]

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I AM ALS

@iamalsorg

I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.

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Anne Rowling Regenerative Neurology Clinic

@annerowlclinic

A charitable facility @EdinburghUni delivering research & trials for people with neurological conditions including MS, MND, Parkinson's and cognitive disorders.

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Alan Davidson Foundation

@adfoundationuk

The Alan Davidson Foundation is a UK registered charity with a strong focus on MND and architecture initiatives.

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AZ Latina ☮️🌊🟦

@avoice4als

Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky

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LesleyDoyleSLT

@sltdoyle

Speech & Language Therapist undertaking a PhD on digital health technology in MND, MIRANDA programme, Academic Unit of Neurology, TCD. CORU and IASLT registered

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APPG on Motor Neurone Disease

@appgonmnd

This is not an official feed of Parliament. It has not been approved by either House. APPGs are informal groups of Parliamentarians with a common interest.

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MND-SMART

@mndsmart

Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.

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Ian Lev

@lev_ian

I have a rare form of MND known as PLS

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Denis Fitzgerald

@denisfi11673707

Living with MND for over 19 years.I love Music and sports particularly GAA. Up Cork! Corcaigh Abú!

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Geoff

@gebinh1

MND WARRIOR. diagnosed with motor Neurone Disease Did love street food.😢 But loves to travel. Takeing one day with my amazing wife at time . SURPORTS NHS.

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Rachel Brown

@mnd_commsaids

MND Association Communication Aids Coordinator. All views are my own

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Edvin Celis

@edvin_celis

Life is beautiful with the right people

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Isaac Chau

@isaacchauneuro

Research Nurse and PhD student at the Anne Rowling Regenerative Neurology Clinic. Working in clinical trials for MND and Progressive MS. 🇨🇦🇭🇰🏴󠁧󠁢󠁳󠁣󠁴󠁿

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MND Education

@mndeducation

The Education and Information team at @mndassoc for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.

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Rhona Baillie OBE

@rhonappwh

CEO @PPWHospice .❤️Proud mum and gran .Director Glasgow Chamber. Animal lover - Especially Harriet #TheRomanianDiva 🐶.Scottish 🏴󠁧󠁢󠁳󠁣󠁴󠁿.My views only.

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Dr Fabio Zucchelli

@fabio_of_car

Senior Lecturer in Psychology at UWE Bristol & former Research Fellow at Centre for Appearance Research. Focuses on men's wellbeing, & visible differences

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lynne hills

@lynne_hills

Occupational Therapist with a special interest in Spinal Cord Injury and MND.

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My Name'5 Doddie Foundation

@mndoddie5

Registered charity, established by Doddie Weir & friends to fund vital research into motor neuron disease (MND) & support those living with MND.

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Susan Stewart

@mndsusan

Clinical Nurse Specialist for Motor Neurone Disease. NHSG. Passionate about compassion. Lover of music, reading, ice cream and my adorable Labrador 🐶

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Brian Wallach

@bsw5020

Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.

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