We will not stand for the status quo when that means people are diagnosed with #ALS and told there is nothing medicine can do. Here is our proposed response, not to the outcome of one trial but to all we see happening in ALS research and how you can help. bit.ly/30858rp

Read this thread. Then take an action today—right after you finish reading it—to make hope real. Thank you for daring to change the world.

You get one life. Make. It. Count.

more dangerous than having a terminal illness and not having access to treatment ???? #ALS need priority and urgency, just like for Covid #RIGHTTOLIFE We do not have time!! EU Medicines Agency Stella Kyriakides Ursula von der Leyen Pascal Canfin European Commission European Parliament EUpALS Anne Rowling Regenerative Neurology Clinic

You see when I was diagnosed with ALS and told to get ready to die, I knew one thing: I didn’t want to be alone, I wanted find to others and make those words not come true.

It is amazing how much pain there is in this world and how eagerly we sweep it under the rug in favor of bravado, vapidity, and the search for the perfect. You are human. You hurt. You fail. You fall. And you are beautiful just the way you are. So beautiful. Good night moon.

Anne Hidalgo: Annulation du projet immobilier du 10 rue Muller - Signez la pétition ! chng.it/JDH2J5kw via Change.org España

Hello Canada!!! 👇👇

Some day the story will be written about how we made ALS non-terminal. Like with HIV it will be one of patients, advocates, a few brave doctors and courageous government officials who summoned the courage to overcome endemic apathy/bureaucracy and save thousands. Good night moon

Our hearts break for all families impacted by ALS, a devastating neurological condition. We evaluate each individual request for access to investigational therapies. Please know this is being given every possible review and on-going consideration.

Allow people with ALS access to CuATSM under Compassionate Use protections. - Firma la petizione! chng.it/99RxrrBR via Change.org Italia

This👇 has me dancing in my wheelchair. Thank you Muscular Dystrophy Association for your leadership in the fight to end ALS and beyond. We appreciate you.

Hope is not my strategy. Hope is a state of mind. My strategy is to remake this failed system for ALS patients and I execute the sh*t out of that strategy every f*cking day. Good night moon.

I’m just a guy. Standing in front of the world. Asking it to care about my terminal disease. Say it with me if you would: Not today ALS. Not fucking today.

ALS awareness month isn’t a Hallmark card holiday- it’s a time to speak the truth loudly. My truth: I feel like I’m watching my husband be burned alive, day by day. Hundreds of people shared their pain here today so the world finally acts. We will no longer live in the shadows.

European Commission: Acceso temprano a tratamiento para la ELA (Early access to treatments for ALS) - ¡Firma la petición! chng.it/2DwQcbbk via Change.org España

Necesitamos vuestra firma change.org/p/european-com…

Four years into my ALS fight, still standing, still smiling, still flexing. (Sound MOST definitely on). #flexonals Scott Smith. Good night moon. Keep rocking.

Tomorrow on #LouGehrigDay the first ever national TV ad about ALS airs. First during Jake Tapper 🦅’s show, then on Neil Cavuto and each game. I am dying from the same disease that killed Lou. You can change that. Please make this ad go viral and help I AM ALS end Lou’s fight.

I'm honored to be in this video, representing people with ALS. Thanks to Red Sox and all the other teams that showed this! Oh, if you need a film...hire 4th Floor Creative & Marc Graham!