case number xxx of adolescent with the very same typical story of typical chronic symptoms without alternative diagnosis that started “by chance” with covid.
This from Holland, as countless other kids I had from italy, uk, germany, france, belgium, ukrain.
all same! #longcovid

📣 We’re hearing that some UK #LongCovid clinics (well, mainly England because the rest of the UK has hardly any anyway!) have closed or are closing soon. Let us know if your #LongCovid clinic is one of those and where it is/was!

NEW Pre-Print:

“Conceptual framework of episodic disability in the context of #LongCOVID : Findings from a community-engaged international qualitative study

medrxiv.org/content/10.110…

Week 20 ending 17th May 2024 ONS *Provisional*

165 registered Covid deaths England & Wales
181 registered Covid Deaths UK

11,254 total all cause deaths (E&W) w/e 17th May
753 below ONS Expected Deaths

1,066 above 2015-19 5 year average

#COVID19

Look at this Panda doing a handstand 🥺❤️

ONS have changed the metric for Covid deaths on their twitter/X reports to underlying condition only.

Lowers the number of Covid deaths significantly.

Sneaky & not nice ! 🤬

Our collaborator André Saravia (André Saravia), founder of Long Covid Chile Oficial, will be testifying to Chilean Congress today!

An estimated million people have #LongCovid in Chile & this testimony is critical. 1/

#covidpersistente

Did you know that people with autoimmune thyroid disease are at a higher risk of having coeliac disease. The chance is between 1 - 4% compared with 1% in the general population.

Read Sarah Howells Sarah Howells' inspiring story about her diagnosis and learn how she navigates life

WEBINAR 👉 The role of arts in health and well-being

🌟 Experts will share insights and successful city-led projects, highlighting the arts' role in healthier urban environments 🌆🎨

✅ Date: 4 June, 14:00-15:30 CET
➡️ Register now: bit.ly/4bDsN6a

#Cities4Health #BCI

🚨 New resource

With the 25% ME Group, Blue Ribbon for the Awareness of ME & the ME Association, we have co-produced a new advocacy resource for #pwME in hospital.

Read more & access the resource: ow.ly/eQ1R50S1PQy

#pwME #MECFS #MyalgicE #SevereME #NICEGuideline

“The stubborn presence of #longCOVID reinforces the notion that this is no ordinary virus. Viral persistence, chronic inflammation”

Philanthropic support is urgently required to drive #paediatric #research

fortune.com/well/article/c…

#research #philanthropistREQUIRED #Help

If you would like to raise funds for #CleanAir #Airfilters for The Corsi-Rosenthal Foundation UK
you can do this by signing up to easyfundraising. To learn more about our charity and the fundraising please see the link below.
easyfundraising.org.uk/causes/the-cor…

📣 New paper in Nature Medicine

Three-year outcomes of post-acute sequelae
of COVID-19

By Miao Cai Yan Xie Eric Topol and me

A 🧵

nature.com/articles/s4159…

A Long Thread 🧵…

Astounded to sit in a session at the @ACSM conference where high profile researchers/medical professionals are advocating for the role of GET and CBT in treating #LongCOVID

Checking in on r/COVID19positive. 'I can't catch my breath, my heartrate skyrockets at slightest exertion, I feel dizzy. I have to return to work tomorrow (I'm an anaesthesiologist) for a 24-hr shift.' Leftist media collaborating in the covid is over propaganda should be ashamed

This coming Monday 15 PAIS organisations will gather in
Nieuwspoort
Together with other people our choir leader will be there as a Kinderen met LongCovid representative.
We will have a full programme during which patient registration will be our main topic.
#LongCovid #LongCovid Kids

This coming Monday 13 PAIS organisations will gather in Nieuwspoort
Together with other people I will be there as a Kinderen met LongCovid representative.
We will have a full programme during which patient registration will be our main topic.
#LongCovid

Cardiovascular risks in children after Covid infection. Not “just a cold” exhibit #9999
TY ⁦Sammie McFarland⁩ medrxiv.org/content/10.110…

We are thinking of all the families watching posts on social media as happy children head back to school.

We understand that isn’t possible for everyone.

That’s why we have been working hard on the #LCKEducationalToolKit launching soon
#BackToSchool #Inclusion #LongCovidKids

Conclusions

Both children with and without CHDs showed increased risks for a variety of cardiovascular outcomes after SARS-CoV-2 infection, underscoring the need for targeted monitoring and management in the post-acute phase.

Long Covid Kids - #LongCovidKids #LongCovidKids
Rae