Marie James ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
@PMTJames
Tuberous Sclerosis Ambassador @UKTSA;Patient Rep Wales Rare Disease Implementation Group @NHSW_RDIG;Trustee @WalesRare #TSC #Autism #Epilepsy @SOSHDdUHB
ID:572797747
06-05-2012 16:39:32
14,1K Tweets
595 Followers
595 Following
EternalShielder
@TicketToZen
CEV CRUELLY ABANDONED BY TORY SCUM and SNP. Kidney Transplant Recipient ..shielding since March 2020 Deflated but not defeated! #GTTO ๐ต๐ธ
Jane Webster
@JaneWeb81865788
Retired maths teacher, ex-Bridge player, learning Italian in hope to visit Italy again but meds for Rheumatoid Arthritis make me #CEV #immunesuppressed
liz brown ๐๐๐ท๐๐๐๐ป
@lizbrown003
Ex NHS Nurse. Longdog owner, wine drinking , woke. Never voted Tory never will. Feels European. No DMs. Mastodon @[email protected]. [email protected]
Dr Lennard Lee (Oxford University)
@drlennardlee
Associate Prof Oxford (NDM) & Birmingham University | NHS Oncologist | HMG advisor | @independentsage | #cancervaccines #personalviews
Mark Oakley
@MarkOak04974342
fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesuk
Janet P
@JanandJay
I am immunocompromised due to blood cancer and treatments. Still shielding. #ForgottenLivesUk. please follow @4gottenlivesuk
Fi
@WattWatt15
Interested in compassionate communities & enjoying life. Living with metastatic breast cancer & PID . Immune compromised. Opinions my own.
Glyn Huskisson
@glynhuskisson1
Retired uni lecturer. Campaigning for truth about Covid Environmentalist. Keen to stop overdevelopment in South. FB Opposition to S.E. Cambridge Transport Plan
Forgotten Lives Uk
@4gottenlivesuk
People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn
ProtectPatients
@ProtectPatient5
Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.social
Martin Paul Eve
@martin_eve
Principal R&D Developer @CrossrefOrg | Lit Prof @birkbeck_etc | Music on tici taci records | My books: https://t.co/OsmxBx7Bux | Personal account.
Shannon Peters Banks
@ShannonB
Female entrepreneur, mother, lupus warrior passionate about social leadership, action learning and purpose #lupus #stillshielding #cev #immunocompromised
Terry
@quinsrugbytel
Immunosuppressed due to current heavy drug regime. Been shielding and isolated since March 2020 and in need of Evusheld
Mandy
@adantuma
Hello and welcome! Everyone deserves the right to breathe freely.
Clinically Vulnerable Families ๐๐๐
@cv_cev
๐๐ผ๐ฟ๐ฒ ๐ฃ๐ฎ๐ฟ๐๐ถ๐ฐ๐ถ๐ฝ๐ฎ๐ป๐ in the ๐จ๐ ๐๐ผ๐๐ถ๐ฑ-๐ญ๐ต ๐๐ป๐พ๐๐ถ๐ฟ๐ JOIN us on FB โโ ๐ธcv_cev ๐ฆโ๏ธ@cvcev.bsky.social
Dennismcaj
@AngelaJDennis
Brave fun fierce kind soul
Daisy Cooper MP ๐ถ
@libdemdaisy
#StAlbans MP | @libdems Deputy Leader, Health & Care Spokesperson | ๐ง [email protected] | Promoted by Liberal Democrats, 9 Hatfield Road AL1 3RR.
Beacon for Rare Diseases
@RareBeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Torie Robinson ๐บ๐ฆ
@TorieRobinson10
@EpilepsySparks Insights Podcast Host & YouTuber ๐ง ๐งฌ | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Clare English
@claremenglish
Presenter/ journalist and events host/podcaster and communications consultant.
J.K. Rowling
@jk_rowling
Writer sometimes known as Robert Galbraith
SSRA | Living with SS
@LivingwithSS
Superficial Siderosis Research Alliance 501(c)(3) dedicated to funding research | Living With SS information and insight on living with superficial siderosis
Rightful Lives
@RightfulLives
A creative campaign and community focussed on the Human Rights of Autistic people and people with Learning Disabilities.
Medical Laboratory Genetics Hub
@labgenehub
๐งฌ Clinical vignettes to sharpen your medical genetic diagnostic skills - great for exam prep (such as ABMGG, ABGC) and continuing certification. ๐ฉบ
Mary Vasseghi
@VasseghiMary
PhD ing Tuberous Sclerosis Complex (TSC) Trinity College Dublin & FutureNeuro. ITHACA ePAG. Patient advocate Sudden Cardiac Death (SCD) prevention
School of Healthcare Sciences
@CUHealthSci
Cardiff University, School of Healthcare Sciences is the leading provider of healthcare education in Wales. https://t.co/V7iQxWlDA4
Maryam Moshiri
@BBCMaryam
Host of โThe World Today with Maryam Moshiriโ. BBC News 1800-2000BST @ucl @lcclondon and @schsgdst alumna . Married to @jonathanlfarmer . Agent- @noelgay19
Paul Litchfield
@MrPLitchfield
Kind of a comedian. Slightly an actor. Sort of a writer. Thinks in Times New Roman but speaks in Helvetica. https://t.co/CWJEaJeQcJ (it goes on gin)
Buddug~EDS/ME/LC~Tories OUT
@pwsimerimiaw
Violence and Silence are the same. The worst kind of violence is the violence of Silence. Mum to three, Nan to six. Welsh
Usman Ahmed ๐ฆด๐จ
@OrthopaedicOz
MBBS PhD FRCS(Tr&Orth) Orthopod, HEEWM Virtual Learning Head, BOA EdCar Committee, https://t.co/QiOEICCrxO (RTโ endorsements, own views)
Amanda Haddock ๐งฌ
@AmandaHaddock
White House Champion of Change for Precision Medicine ๐งฌ, Pres of @BeADragonMaster ๐ฒ Mom to 4: 3 on Earth, 1 in Heaven because of brain cancer.
Kels Wish 2018
@kelswishfife18
helping raise awerness of cerebral palsy , autism dyspraxia and visually impaired and a heart condition ๐จโ๐ฆฏ
Velindre University NHS Trust
@VelindreTrust
We provide specialist cancer and blood services, care and research through @VelindreCC and @WelshBlood. Yn Gymraeg: @YFelindre
Cambridge Bioscience
@CambridgeBiosci
We're a leading distributor of cutting edge life science research products. Follow for the latest #bioscience news and #research
Rhys Holmes
@RhysHolmes
Brain Tumour survivor, hydrocephalus, previous CSF Leak and now battling the rare neurological disease, superficial siderosis.
Sue Foster
@suefosterinfo
Blogger & Creative. #homeed #CleanAir https://t.co/yJMwIUYAwF
Rich Preston
@RichPreston
@BBCNews anchor ๐๏ธ| @warstudies @ChathamHouse @RUSI_org | Snr Fellow @JSchofieldTrust | Former boy in blue | Scottish ๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ| Rep'd by @NorthbankTalent
Alison M Dunning
@alison_amd24
Prof of Cancer Genetic & Applied Epidemiology; she/her(cis); autoimmune & disabled; Left-leaning; Views my own. #womeninSTEM, #freedomfromabuse,
Wales Evidence Centre
@EvidenceWales
Working to tackle health and social care issues in Wales. Funded by Welsh Government through Health and Care Research Wales. @tystiolaethcym
The LISTEN project
@TheLISTENproj
The LISTEN project aims to work in partnership with individuals living with long Covid to co-design and evaluate personalised self-management support.
Science & Engineering Applications Ltd
@scienap
Lucy Dixon
@LucyD28
Chair of @PCD_UK. Day job = NHS researcher. Unhealthy attachment to Gilmore Girls, Wales & coffee. Love mountains, lungs permitting. Views my own.๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
Rachael Scullion
@Rachael_est84
Genomic Practitioner @ Liverpool Centre for Genomic Medicine Genomic Medicine MSc from #QMUL #GenomicPractitioner #GeneChat #WGS #Genomics
Genomics Policy Unit
@USW_GPU
Research unit at the University of South Wales dedicated to promoting excellence in researching the impact of genetics/genomics on health and society
USWResearch
@USWResearch
News about USW Research & Innovation + Graduate School We are TOP in the UK for postgraduate research experience #PhD #PGRs https://t.co/1l8Dce2rKi
Gary Lineker
@GaryLineker
Once kicked a ball about. Now talk about kicking a ball about. The Rest Is Football @restisfootball @Goalhangerpods ..Instagram . Retweets are not endorsements
Care & Respond
@CareAndRespond
Create a health passport and engage friends & family support when most needed. Developed in partnership with the NHS.
๐บ๐ฆ Prof. Chris Hopkins ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
@prof_hopkins
Professor & ATiC Clinical Director UWTSD, Consultant Clinical Scientist, Head of Innovation & TriTech Institute & ADoTH, BCUHB. Family is my life โค๏ธ
Chris Bryant
@RhonddaBryant
Labour MP for the Rhondda (01443 442521) Shadow Minister for Creative Industries and Digital JAMES AND JOHN out now
Living Well With Epilepsy
@jessicaksmith
Jessica Keenan Smith: Founder, https://t.co/bD8snHHvzl, Exec Dir., https://t.co/J1C7jZJ5P6, #Epilepsy, Host of #epilepsyblogrelay. Rep'd by: @hansenwiter
Kerry Hood (she/her)
@kerryhood
Dean of Research & Innovation for the College of Biomedical & Life Sciences @CardiffUni and Director of UKCRC CTU Network. Views my own.
UKRAINIAN SQUAD๐บ๐ฆ
@ukrainiansquad
Blogger. Here to ask attention for Freedom and Ukraine and for the 3CY. Slava Ukraini!๐บ๐ฆ Support me โก๏ธ https://t.co/ulroHZQpvB
Jack Underwood
@JFGUnderwood
WCAT Forensic Psych Registrar & @gw4_cat Clinical PhD Fellow. Researching mental health in neurodevelopmental disorders at @neurosciencecu. Mistake not...
Dr Emma Thomas-Jones
@emma_tj1
Deputy Director/Principal Research Fellow at Centre for Trials Research, Cardiff University. Infections, sepsis, use of biomarkers and AMR. Ultimately a Mum.
Mike Graglia ๐ป
@JMGraglia
CEO @cureSYNGAP1 ๐งฌ Pod https://t.co/9jkDkMg5R8 ๐ง Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Alison Singer
@alisonsinger
President, Autism Science Foundation
Kay Price
@KayPric94589704
Nikola Brigden
@NikolaBrigden
Straight talking Yorkshire Lass, Wife of a Stem Cell Transplant Warrior, Mother and Campaigner for the roll out of protection for https://t.co/4t8tGMQFvh
KS
@karensmithjs
Nordoff and Robbins
@nordoffrobbins
The UKโs largest music therapy charity, we break through with the power of music
Jo Humphreys
@Jo_the_MT
She/her. Nordoff Robbins Music Therapist in ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ Views my own.
Ray Marco
@RayMarco16
Male, semi-retired, have Tuberous Sclerosis, social work, journalism.
Sue G
@SgHaymoor
Proud ex NHS cancer CNS. Wife, mum, grandmaโฅ๏ธ, OH with AL amyloidosis/multiple myeloma ๐ง ๐ท.