There is still time to register for this event. Our Patient Information Day is open to all congenital heart patients and their parents/carers. ❤️❤️
#congenitalheartdisease #patientadvocate #patientengagement
NWCHDNetwork Dr Caroline Jones The Heart Centre @AlderHey 💙 Care & Respond Jemma Blake
Brilliant to be back with Chris Subbe at his #PatientPoweredSafety event. Providing an update on our Care & Respond Patient Health Passport
Thank you also to our app team at Science & Engineering Applications Ltd for their continued hard work. More updates soon.
#patientsafety #empowerment Healthhub
Come and join us at our next patient information day.
I will be talking about my lived experience as a congenital heart patient and our Care & Respond patient passport. ❤️❤️
Dr Caroline Jones The Heart Centre @AlderHey 💙 NWCHDNetwork Jemma Blake Phuoc Duong #congenitalheartdefect #peersupport
Fascinating to hear about the patient controlled Care & Respond patient passport all project from Lowri Smith BANCC💙 #BANCC2023 . Sounds like a great resource.
Thanks to Anna, Linda , Jill (not pictured) and Janet for organising a fabulous NWCHDNetwork Patient Information Day. ❤️❤️
#congenitalheartdisease
Anna Harrison @linda_lgriffo4 Jill Moran Care & Respond The Heart Centre @AlderHey 💙 Dr Caroline Jones Alder Hey Innovation
James from Care & Respond presenting today at Genetic Alliance UK . The app was designed for patients with complex health issues and rare diseases. But it can be used by anyone with a health condition e.g. diabetes Chris Subbe Karen Taylor Sarah Finch Charlie Churchill Phuoc Duong
On Friday myself and Chris Subbe presented our Patient Passport App at BANCC💙 conference. Empowering patients advocate for themselves. Lots of positive feedback. ❤️❤️
Care & Respond #PatientSafety #patientengagement
Patient Information Day
Come join us in #Liverpool on the 14th. Open to all congenital heart patients across the UK. Speakers include clinicians and patients. Somerville Heart Foundation Care & Respond Dr Caroline Jones The Heart Centre @AlderHey 💙 NWCHDNetwork #Team1C Ramana Dhannapuneni Dr Petra Jenkins
Working alongside Chris Subbe I’m delighted to be a co-designer in this project CareAndRespond.com . The patient passport can be used by anyone with a health condition or disease.Please share Care & Respond @TomHowson7 Kelly White Linda griffiths 💙 Shelagh Ross Robyn
Thank you to everyone who has attended our Virtual reception and thank you so much to all of our speakers and presenters.
PCD Support UK Care & Respond Rare Disease Implementation Network Alex The Leukodystrophy Charity Department of Health and Social Care Patrick Toland NIRDP Martina Rodie Office for Rare Conditions Glasgow
No woman or man is an island. We remain safe because of the people who are around us who knows and are for us.
Care & Respond allows the user to build a connected network to ensure safety in an emergency situation given their own complex health conditions.
#BANCC2023
Fab to see Trustees & patients of Wales Orphan & Rare Lung Disease yesterday. Thx to James Ingram & Rob Salter for brilliant talks & our Scarlets hosts. New projects underway😀 [email protected] Rob Salter Care & Respond Scarlets Rugby
Have you booked yet? Lowri Smith is talking about her own experience of #CHD 🫀 and the App (patient passport) Care & Respond suitable for all patients.
Click the link ⬇️
forms.office.com/e/U79EaJtwFi
LHCH The Heart Centre @AlderHey 💙 #Team1C CHA Little Hearts Matter Somerville Heart Foundation
keir_e_lewis Care & Respond Scarlets Rugby Was fantastic to share our vision for healthier and smarter homes with everyone. Lovely to meet everyone.
