Beacon for Rare Diseases
@RareBeacon
Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
ID:510484741
http://www.rarebeacon.org 01-03-2012 16:28:52
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Register now for the MCDS-Therapy Final Conference!
π Join to ask your burning questions and see what the consortium has achieved throughout the international research collaboration.
Register here: ow.ly/LW5g50RcZ0N
Register now for the MCDS-Therapy Final Conference!
π Come along to ask your burning questions and see what the consortium has achieved throughout the international research collaboration.
Register here: ow.ly/LW5g50RcZ0N
If you are an early-stage patient group looking to recruit new trustees, plan to in the near future or are an established group looking to refresh their board, view tips for recruiting trustees to your board!
With thanks to Getting On Board
Watch now: π
ow.ly/tBrA50QpAmS
Are you living with skeletal dysplasia, musculoskeletal conditions, or specific childhood cancers?
Make your voice heard on treatment preferences in MCDS-Therapy 's survey!
The survey will take 30 mins to complete and it closes on 30th April.
ow.ly/Hrm750QZwlk.
Join MCDS-Therapy at their Final Conference!
They're celebrating the outcomes of this international research collaboration by bringing the MCDS and rare bone disease community together. π
Find out more: ow.ly/SFYH50RcfEB
We are so happy to say that the winner of The Student Voice Prize's English as a Second Language category Diya Porwal has written a blog all about her experience applying and the advice she would give to future applicants! π
m4rd.org/2024/04/16/my-β¦
High ammonia kills and people are dying because of overlooked symptoms. This needs to change.
Support the βThink Ammonia!β campaign from Metabolic Support UK which aims to improve outcomes for high ammonia!
#ThinkAmmonia
ow.ly/Ighi50RajS7