NotRecovered
@Not_Recovered
We share the stories of people who have #NotRecovered #LongCovid | #MECFS | #PostVac We fight internationally for research, treatment and recognition.
ID:1578721257708830721
http://notrecovered.org 08-10-2022 12:18:01
1,0K Tweets
6,1K Followers
205 Following
charlos
@loscharlos
😎🌁🎷 #LongCovid March 2020 😵💫Hannah Davis
@ahandvanish
Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedCarmen Scheibenbogen
@C_Scheibenbogen
Immunologist and ME/CFS researcher MD @ChariteBerlinGeoCK
@GeoEduOne
MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #ClimatePutrino Lab
@PutrinoLab
We make people (and technology) better at Mount Sinai. Opinions are my own.Shaney Wright
@ShaneyWright
@WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCBhupesh K Prusty
@BhupeshPrusty
A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.Michael Stingl
@neurostingl
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ TelemedizinChristoph Ströck
@cstroeckw
Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founderMartin Hippe
@pausedME
East Westphalia by Nature ⎮Lawyer by Profession | #HumanRights | #MECFS | @Mirame_Arts | No medical advice!Sandra 👩🏻🔬👩🏻🏫
@RSandra266
https://t.co/tv9iKDwMkf.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS, #SFN | Aktivismus ✊🏻Dysautonomia Intl.
@Dysautonomia
Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.Dr. Bettina Hohberger
@Dr_B_Hohberger
PD Dr. med. Dr. rer. biol. hum. Bettina HohbergerBilly Hanlon
@bhanlon15
Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyJanet Dafoe
@JanetDafoe
Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...It'sME(Jaime)
@exceedhergrasp1
Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Long Covid SOS
@LongCovidSOS
UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]Patient-Led Research Collaborative
@patientled
Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!Long Covid Advocacy 💙
@LongCovidAdvoc
📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborneTimo Strotmann
@TimoStrotmann
Tech Enthusiast - Software Engineer - Health Advocate Co-Founder of https://t.co/0klWgSEzbpGeorge Monbiot
@GeorgeMonbiot
The corpse at every wedding, the bride at every funeral.Andrew Ullmann
@UllmannMdB
Gesundheitspolitischer Sprecher@FDPBT, Stadtrat, Vorsitzender FDP WÜ, Internist 🇺🇸🇩🇪🚦🇺🇦 Freiheit ist mehr als nur ein Gefühl.Whitney Dafoe
@DafoeWhitney
Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊#MEAction Network
@MEActNet
A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJiBen Krishna
@BenjaminKrishn3
Wellcome ECA Fellow trying to understand metabolism and virology with @JamesNathanLab in @MedCambridge, University of Cambridge (he/him)LiegendDemo, Demo im Liegen vorm Bundestag, ME/CFS
@LiegendDemo
Hier werden alle Infos bezüglich der LiegendDemos und Trauergänge bekannt gegeben. 11.05.2024 große LiegendDemo in Berlin! Plakate und Handouts s. Link⬇️Bernie Sanders
@SenSanders
Sen. Sanders of Vermont, Chair of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.UniteToFight2024
@U2Fight_World
100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.Kiran Thapaliya
@ThapaliyaK
Using multimodal MRI to study brain dysfunction in ME/CFS and Long COVID. Research fellow at Menzies Health Institute, Griffith University, QLD, Australia.Long Covid Moonshot
@LCMoonshot
18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding!Petter Brodin
@BrodinPetter
Professor of Pediatric Immunology • Pediatrician • Human Systems Immunology • Experiments • Computation • @MRC_LMS • @imperialcollege • @karolinskainstLong COVID Ärzte- & Ärztinnenverband Deutschland
@aerztelongcovid
Forschung - Information - bessere Behandlung von Long COVID Patient:innen | 2. Kongress: 24.-25.11.2023 in Jena https://t.co/yxLtCx0WjQAmy Proal, PhD
@microbeminded2
Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRFSusan Kandarian, PhD
@susan_mecfs
Professor-scientist (muscle biology) on LTD from progressive #MECFS. Ally for ppl with infection-associated chronic illnesses. #longcovid 🏳️🌈The Sick Times
@thesicktimes
Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJxWorld Health Network
@TheWHN
Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.Katrin Langensiepen MEP/GreensEFA
@k_langensiepen
Mitglied d. Europäischen Parlament | MEP | Greens/EFA Stellv. Vorsitzende d. Sozialausschuss (EMPL) Mitglied im Aussen+Binnenausschuss (AFET+ IMCO) ♿️(she/her)Vox Jo Hsu, PhD MFA
@voxjohsu
Writer. Troublemaker. Rhetoric Professor @UTAustin 🏳️⚧️🏳️🌈🥄#pwME Words in @HuffPost @TheHill @BostonGlobe Author of Constellating Home https://t.co/MRhE1rgTwMDerya Unutmaz, MD
@Derya_
Professor @jacksonlab Human immunologist #Immunotherapy #health #Cancer #MECFS #longevity #COVID19 #AI #syntheticbiology #CRISPR #Scifi #Technology #robotsThe Jackson Laboratory
@jacksonlab
Est. 1929, JAX is a non-profit scientific research institute specializing in 🧬 genetics, 🧮 genomics & 🐁 mouse models of disease. https://t.co/SrWBTGUJ00Ziyad Al-Aly, MD
@zalaly
Physician-Scientist | Studying Long Covid #LongCovid Profile: https://t.co/ywweQn5DHA…Dr. Lisa Iannattone
@lisa_iannattone
Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.Natalie Rogers 😷
@RogersNat70
Trustee of @long_covid. Long Covid is a pathological disease. Listen to patients. Be curious. #LongCovid #FBLC https://t.co/f7O31tAThl…Sawyer 🏳️🌈
@SawyerBlatz
Battling Long Covid since Nov 2022. Advocating for @LCMoonshot. Previously: iOS dev, running, photography. Tweets delete. (he/him) 🏳️🌈Billboards for LC/MECFS
@LCMEBillboards
Public awareness campaign. We need biomedical research and treatments for Long Covid/ME/CFS now. https://t.co/zppTxZjTK8Kathryn Hoffmann
@kahryn_hoffmann
Long/PostCovid, ME/CFS & postakute Infektionssyndrome. Prävention & Primärversorgung. - Univ.-Prof. und Ärztin - !Alles hier: my own opinion!+ BERLIN BUYERS CLUB +
@BerlinBuyers
covid destroyed us, we are young, we want our lives backJohannes Rauch
@johannes_rauch
Bundesminister für Soziales, Gesundheit, Pflege und KonsumentenschutzLCAP (Long Covid Action Project)
@LongCovidAP
LCAP is a united, diverse force of non-partisan individuals taking action to end the Long Covid crisis through awareness & government accountability.Simmaron Research
@RedefiningMECFS
Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.Caroline Ströck
@CarolineStroeck
marketing artist at Ströck • RINGANA ambassador • fundraising for @weandmecfs foundation • spreading awareness for #MECFS •Long COVID Foundation
@LongCFoundation
USA based 501(c)(3) non-profit focused on supporting those with Long COVID & others affected by the COVID Pandemic.Young European ME Research Group
@YoungEmerg
A European forum formed with EMERG to support and encourage early career researchers to pursue a career in ME researchDr Katharine Seton
@Katharine_seton
ME researcher. Chair of the Young European ME Research Group (@YoungEmerg). Diagnosed with ME in 2009. All views are my own.Tove Ernst
@ToveErnst
Member of Cabinet & Communication Advisor to @SKyriakidesEU, EU Commissioner for #Health and #FoodSafety in #vdLCommission.Todd Maderis, ND
@dr_todd
Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmuneFe.
@NoHealthNoFun
Rotting with #LongCovid since May 22. Looking for scientific insights, community, and memes. 😷 Wear a high-performance mask.Tim Schmachtenberg
@TimSchmachtenb1
Medizinischer Soziologe, wissenschaftlicher Mitarbeiter am Institut für Allgemeinmedizin der Universitätsmedizin GöttingenEuropean ME Alliance
@EUROMEALL
The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME)Daniel Missailidis, PhD
@DanMissailidis
Researching ME/CFS and Long COVID at La Trobe University in Melbourne, Australia. Papers/info at the following: https://t.co/fSVtdrjrflStichting Long COVID
@StLongCOVID
Foundation raising funds for biomedical Long COVID research in The Netherlands. Launch July 1, 2022 #LongCovid #LongCovidResearchLisa McCorkell
@LisaAMcCorkell
@patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022Jan Mendzigall
@janmendzigall
Digital Product Designer, Design Mentor, Lecturer – Interested in art, architecture, squirrels and humanityMaria J.G.T. Vehreschild
@mjvehreschild
Prof. of Infectious Diseases | Specialist in Internal Medicine, Hematology/Oncology and Infectious Diseases | Clinical microbiome researcherNicholas Boyd-Gibbins, MEng, PhD
@NBoydGibbins
UCL | Kyoto Univ. | CSO | cell engineering, cell therapy, autoimmune, long Covid, iPSCs, regenerative and predictive medicine, cancer, genetics and neurosciencePhi
@phi_psd
Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyersDr. Robert
@Robert83563198
Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.