People with #cysticfibrosis around the globe are still dying without access to life-saving CF modulator therapies because @vertexpharma charge exorbitant prices for their drugs. #patientsbeforeprofits #NACFC2023 #nacfc #trikafta #kaftrio cf/Aware Marc Cotterill Liam Mc Hugh

#NACFC2023 Following Jonathan Guo’s presentation on equitable access to modulators, with emotional testimony from Lithuanian CF mum urte_g, audience members waited to have their say, including: (1/6)

Following the NICE announcement, in my latest article, I explain in laymens terms: ➡️ What it means ➡️ What happens next ➡️ The root cause ➡️ Key facts ➡️ And what we can do Please share bit.ly/MC-NICE-Article #CF #CysticFibrosis #kaftrio #Trikafta Vertex Save Us Strawfie Challenge

If you are confused about the eligible age of #Kaftrio, whether it will be lowered, and how a decision about this relates to the ongoing #NICE process, this is the post for you. open.substack.com/pub/marccotter…

100,000 people around the world agree that people with #cysticfibrosis have the #RightToBreathe If you also agree then please sign and share the petition for global access to Vertex Pharmaceuticals's CF modulator therapies at a fair price PETITION: actionnetwork.org/forms/cf-drugs… #kaftrio

We are advocating for #CysticFibrosis patients EVERYWHERE, including the UK, where Vertex Pharmaceuticals’s prices are causing anxiety for many CF families. Our petition has surged and we will ensure that Vertex hears ALL your voices, loud & clear. Please sign: actionnetwork.org/forms/cf-drugs…

Hi Nick Ferrari If you are talking about the NICE draft guidance on #cysticfibrosis drugs, please ask why governments around the world have called Vertex Pharmaceuticals 'extreme outliers' in pricing and behaviour - see pmlive.com/pharma_news/ve…

Calling the UK #CF community 💛 We need people to submit comments to NICE. Parents of children over 12 years & adults with CF on modulators. Email [email protected] to receive a form. Answers may help to secure drugs for future generations. Deadline tonight 🙏🏽 #kaftrio #NICE

Diarmaid is a tenacious campaigner for health justice with his work for Just Treatment 💊. You can read more about him & his work at tenaciousawards.org/diarmaid-mcdon…. Many congratulations, Diarmaid! #TenaciousAwards 🏆

US Senator Bernie Sanders speaks out about the unconscionable behaviour of Vertex Pharmaceuticals. 1/2 theguardian.com/commentisfree/…

Thanks to Bernie Sanders for speaking the simple truth that many seem to either avoid or ignore. Shareholder profit should never come before patient health #Trikafta #kaftrio #Vertex Vertex Pharmaceuticals Vertex Save Us Just Treatment 💊

Lives are at stake as #cysticfibrosis patients worldwide struggle to access vital medicines. This is the devastating impact of Vertex Pharmaceuticals's greed ⬇️. Let's end this injustice. Watch, share & join our fight. #RightToBreathe #CFcantwait righttobreathe.net Vertex Save Us

Thousands of #CysticFibrosis patients are dying w/o access to lifesaving drugs. This is the impact of Vertex Pharmaceuticals’s greed ⬇️ Let’s end this injustice. Watch, share & join our fight. righttobreathe.net #RightToBreathe #CFCantWait Just Treatment 💊

Preventing the spread of airborne/droplet diseases like #covid, #flu, #measles, #tuberculosis will benefit all areas of the #NHS Please everyone sign/share this petition #CleanAir #BREATHTAKING petition.parliament.uk/petitions/6545… Dr.Ravij Kuanprasert Marc Cotterill Nicola Johnson Rachel cole

cf/Aware Nicola Johnson David Turner (gs65 on B S k y) Dr Zoe Bagley Jody65 #CFcarer Dr Meghan McGarry Marc Cotterill REGINA SORENSEN 👩‍🦯 CF Get Loud CF Adventurers

This may be the greatest thing I have ever watched in my life.

This petition will be handed in soon, to big pharma in Boston, USA who have priced life-saving #cysticfibrosis drugs out of the reach of tens of thousands of patients around the🌎 If Strawfie Challenge has ever campaigned with you please consider signing/RTing🙏 actionnetwork.org/forms/cf-drugs…

25 years - almost to the day - since I saw them on the ‘Standing on the Shoulder of Giants’ tour at the original Wembley Stadium at 18 years old. They say “you only get to do it once”, but tonight we got to relive it. “There we were. Now here we are." #OasisLive25 ♥️